Hello there, I am new to forum.

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J Rapha's Kid
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/27/2010 3:27 PM (GMT -7)   
Hi there to all. I am new to this forum. A friend of mine who was diagnosed with Crohn's suggested that I check this site out for useful info from fellow diagnosed friends. I was diagnosed in 1996. I had 7 major surgeries (last one was in 2005 to reverse a temp ostomy) and praise God I am doing well and feeling better than I have in years. I currently take Entocort and have been doing well with that. Because I have been on it for 2 yrs., my doc seems to think that I should give it a rest and try some injection thing ~ one name starts with an "s" and the other one he mentioned would be Humira.  I told him that I would research and get back with him. My motto is though, if it's working, why change it?
 
Blessings to all of you and if you have any surgery questions or concerns, ask away, I have quite the experience in that area as a patient.

AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 3/27/2010 3:47 PM (GMT -7)   
Welcome aboard Kid,

I haven't had surgery for Crohn's yet and I hope it will be a long time in coming, if ever. Sorry you've had so many. If I do need one, hopefully you'll be around to give me some advise.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 3/27/2010 3:52 PM (GMT -7)   
Hi, and welcome to healingwell, and I'm glad you found us. It's good to hear you're doing well with your crohn's after having such a rough road with 7 major surgeries. I think your doc wants to wean you off the Entocort because it is a steroid. Entocort is a type of steroid that is released into the intestine and is not as systemically absorbed as prednisone; however, this does not mean that it doesn't have the same side effects as prednisone with long term use - it also can cause some serious side effects like osteoporosis. I think your doc is right in trying to wean you off the entocort and on to something else that may work.

I think the drugs he mentioned are Cimzia and Humira. Remicade is another in the same category of drugs, and my husband is on it, they are anti-tnf agents. Remicade has worked really well for my husband so far - he's been on it for 2 years. They are not without risks, but when they work well, they can be a miracle.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 3/27/2010 4:05 PM (GMT -7)   
Hi there
glad you joined us here on HW..imho it is the best site for info and friendly helpful peeps
you sure have been thru hades n back but your positive outlook and energy is inspiring
i sure hope you will stay with us here
blessings
Lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I AmW

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 3/27/2010 9:09 PM (GMT -7)   
Hello! Welcome to the forum! Help is always appreciated... and if you need help, there's always someone here who can give you advice... So... Hope you like it here... //^_^\\
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/28/2010 7:59 AM (GMT -7)   
Although PV does not have Crohns herself (hubby does) what she said was right on. The steroids can cause more problems down the road. Because of the steroid use over my 35 years with this disease I get to have another surgery myself, a total knee replacement this year, and the other probably the following year. I would give the other meds a shot, maybe that you start feeling even better, without doing the damage to your bones. During my 35 years with disease I have had 10-12 surgeries myself, a few for Crohns, and the rest because of the damage Crohns has added. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jamci
Regular Member


Date Joined Nov 2009
Total Posts : 27
   Posted 3/28/2010 9:09 AM (GMT -7)   
just wondering.......what side effects are worse.....the side effects from Entocort or those from the anti-tnf drugs (Cimzia, Humira and Remicade)???
Daily Multi Vitamin, B Complex, B12 sublingual, Probiotics, Fish Oil, Protonix (GERD), Wellbutrin (Anxiety). Apriso (Crohn's), Trilipix (cholesterol), Welchol (cholesterol), Cardizem (blood pressure)

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