Best Pain meds?

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sissy22
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Date Joined Mar 2010
Total Posts : 23
   Posted 3/28/2010 8:28 AM (GMT -7)   
I have a doctors appt on Thursday and currently I have nothing for pain. I am tapering down on my prednisone right now and am finally at 5mg. I also am on imuran and nexium. Any ideas on what the best pain med I can ask for is?

pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 3/28/2010 9:37 AM (GMT -7)   
Describe your condition and he'll probably have a pretty good recommendation for what to try. My guess is your doc will recommend starting with Vicodin and move to something stronger if that doesn't cut it.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


MoobyDoo
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Date Joined Sep 2009
Total Posts : 212
   Posted 3/28/2010 10:02 AM (GMT -7)   
To me, Vicodin IS something stronger but I guess that all depends on your experiences. My daughter uses hyoscyamine, and it does help.

imissicecream
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Date Joined Oct 2009
Total Posts : 157
   Posted 3/28/2010 10:31 AM (GMT -7)   
Vicodin works really well for me. I was on tramadol earlier, but it didn't really help my pain and it gave me horrible stomach aches...but that doesn't happen for everyone. If you're looking for something stronger than tylonol but not as addictive as vicodin, I would recommend giving tramadol a try.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


PV
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Date Joined May 2006
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   Posted 3/28/2010 10:34 AM (GMT -7)   
If you're having so much pain, perhaps you need to re-consider tapering off the prednisone, and up the dosage to bring down the inflammation and then try to wean off the pred again. It sounds to me like your flare up may still be going on, and continuing to taper the pred may make you worse. The pain med is just going to mask the pain, not heal the inflammation. I am not saying you don't need pain meds, I'm just saying that it maybe prudent to address the cause of the pain as well.

My husband has used loratab (5 - 7.5 mgs) for pain as needed when he's had a rough time, if tylenol is not working enough to control the pain.

Hope you get to feeling pain free soon.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 3/28/2010 11:48 AM (GMT -7)   
I find Tramadol very effective. However, I have been on it for over 3 years, so I have quite a bit of physical dependcy on it now. Tapering off the stuff a bit, now. Even if its not a narcotic your body will still want it. Like pred..
For short term, I'd use a stronger version of Hydrocodone than Vicodin. Once you've used it for 2-3 days the worst side effects seem to subside. If you are going to be needing the med9s0 for less than a month or so, that is what I would choose.
If your pain is from cramps, you might want to use Bentyl, its VERY good for this ( it messes up my eyesight terribly though!)kind of pain.

Matthew

sissy22
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Date Joined Mar 2010
Total Posts : 23
   Posted 3/28/2010 7:27 PM (GMT -7)   
Thanks to all replys. I forgot to mention I have a really high tolernance to pain meds. A vicodin is like taking a tylenol to me. And I build a resistance really fast. I have a feeling that my doc will want me back on the pred but I just feel like Why would I keep taking it if it doesnt seem to be helping me? Ugh I dont know anymore.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 3/28/2010 7:43 PM (GMT -7)   
im on fentanyl 25mcg (morphine patch) Oral meds make me feverish and dehydrated
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/28/2010 9:56 PM (GMT -7)   
I have used all of these in the past (generally I try to aviod long term pain killers after needing them for surgery), but I will say it is highly dependent on you.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3110
   Posted 3/29/2010 5:38 AM (GMT -7)   
Matthew~isn't Tramadol and NSAID? Which can hurt Crohnies more than help them! I think one of it's side effects is bleeding sores:( do you have active disease?

Sissy22~I would describe your pains and let you doc suggest what he thinks...then you can discuss the suggestions in more detail with them. It sounds like it's the pred so you might have to taper slower from this point on.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/29/2010 6:03 AM (GMT -7)   
Tramadol is another opiod. Because I take codeine daily for diarrhea I find most painkillers useless - even pethedine didn't completely get rid of the pain and wore off after just 3 hours during my last flare. Tramadol I find does help if I'm in mild pain but thats mostly because it knocks me out lol.
 
 


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3110
   Posted 3/29/2010 6:53 AM (GMT -7)   
lilcrohnieUK~thanks I was thinking Toradol...so close, but so different!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


JaSanne
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Date Joined Oct 2006
Total Posts : 2041
   Posted 3/29/2010 9:28 AM (GMT -7)   
I use an old narcotic medication that apparently isn't used much anymore since I have had to get it ordered for me at times. It's called Talwin NX but some people can't tolerate it. I also use hydrocodone (generic for Vicodin and Lorcet) at times. But I agree with tsitodawg as to approaching the doctor. Just let him know that OTC isn't cutting it.

As to whether your pain is an indicator of needing to go back up on prednisone, that will depend on whether the pain is from something like the inflammation or from something that doesn't come and go such as scarring, adhesions, or nerve pain. I live with constant chronic pain and it doesn't matter where I am on prednisone or other steroids any longer. It's always with me and pain meds only make it a bit more tolerable.

There's nothing wrong with using narcotic pain meds for real pain and this disease causes real physical pain.
50 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.  Severe depression past two years.


MAG102886
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Date Joined Jul 2008
Total Posts : 674
   Posted 3/29/2010 11:19 AM (GMT -7)   
If you ask for pain meds by name your doctor may question your motives, or lable you a drug seeker.  My GI will NOT prescribe pain meds, the only time I've ever had them was in the hopital, or after surgery.  If you build a resistance really fast it's probably best if you don't take pain meds at all on a daily basis, because when you REALLY REALLY REALLY need them, they won't help and building a resistance to pain meds is a slippery slope leading to more powerful drugs that are higher risk of addiction.
 
Did you have this pain when you were on a higher dose of prednisone? If not then you should probably up your dose again. Pain meds mask pain, they don't fix the problem.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 3/29/2010 5:06 PM (GMT -7)   
Tramadol is NOT an NSAID. Nor is it an Opioid. Its a synthetic pain med that functions similar to Opiate narcotics, but it isn't one. Works for some pain, but not others ( Stones!!) in my case. But like many meds dependecy can happen.
If you ask me, it is almost an anti-histamine.
****
Make sure you tell your doctor what kind of pain you are having, too.
One note on the downside: Many Gastro's will NOT prescribe pain meds, at least Old School.

Sincerely,
Matthew

sissy22
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/29/2010 5:28 PM (GMT -7)   
I dont plan on taking pain meds every single day. I was just wondering if theres anything out there that would even help. As I said I have a very high tolerance to pain meds. The pain im in right now is pretty bad and I just dont think I can sit here and wait it out anymore.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/29/2010 6:41 PM (GMT -7)   
I think it depends alot on what your pain is (hard tissues/soft tissue, etc issues). I wonder what is going on that you have pain issues. Granted this disease alone can do it. But if it is new, I wonder if something is going on.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sissy22
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/29/2010 6:49 PM (GMT -7)   
Yeah I have no idea what kind of pain it is. I guess I will have to wait untill Thursday and see what the doc has to say :/

Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 3/29/2010 10:31 PM (GMT -7)   
My paperwork says vicodin is 6 times stronger than codeine thus 30mg of codeine is equivelent to 5 mg of vicodin. Mathew is right tramadol is no longer considered an opioid. Tramadol is equivelent in strength to codeine. Above vicodin on my list is morphine at 10 times the strength of codeine and oxycodone at 15-20 times stronger than codeine. I agree with Debilitated that a good choice is fentanyl which is 500-1000 times stronger than codeine and is very adjustable strength wise. I aslo agree to approach a Dr. with a certain drug in mind is asking for trouble. I gave these equivelencies so you'd be more informed. Tread lightly. Good luck, I truely hope your pain can be controlled much more effectively, nobody deserves to be in bad pain if treatment is reasonable.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Airik
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 3/30/2010 7:59 AM (GMT -7)   
my experience is stick with vicoden dont go stronger it stopped working for me an i was put on percoset and it caused my to have a inflamation in my prostate so bad i couldnt pee an i had to have a tube and bag in my ya-know,that is terribly inconvienent don't wanna go there but they said it could have been a reaction from the perc's so i refuse them.and my advice is dont ask them for a specific pain med.im not saying u are but they more than likely will claim u a "seeker " and not give u anything.sad many people have ruined that for those who need it from theyre addictions.but im not one to judge good luck.

JaSanne
Veteran Member


Date Joined Oct 2006
Total Posts : 2041
   Posted 3/30/2010 9:20 AM (GMT -7)   
I hope you can get your pain under control. I know it's hard for some to understand just how bad it can be, but many of us know and have empathy.

Some of us have to manage, with our doctors' oversight, the chronic pain that debilitates us. Not all my pain has to do with my Crohn's, but it's chronic and I have to have something to be able to function. It's not a sign of weakness of mind to need strong meds, but of damage to body. I've been in pain for over 25 years on a daily basis and it has worn me down these last few years. I spent about 18 years not taking anything for pain, but I can no longer do that.

My PCP oversees my pain management. All doctors are different on their take of pain management, but it is a legitimate concern for the chronically ill.
50 yr. old. Ileocolitis.  CD since early teens, misdx'd until age 36.  Hemicolectomy-left side in 2001.  Disease returned in 2003. Arthritis, episcleritis, chronic pain due to surgeries (nerve damage, adhesions) and disease.  Recently dx'd scoliosis.  History of endometriosis.  Severe depression past two years.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/30/2010 9:49 AM (GMT -7)   
Please understand I am not saying do not take pain meds if you need them. I understand what it is to be in so much pain you pray to die. But what I am saying that pain is messenger, and if it is new or worsening then it is something to get checked out. Not just necessarily throw more meds at and not get checked out. For me I still have unexplained pain in my femurs that the doctors have not satisfactorily explained, and I do have to have toradol injections (which work best for that kind of pain for me, but are very bad for crohnies) to manage that sometimes. I think if it is to the point that if it affects your quality of life and absolutely your ability for sleep then yeah I would absolutely do it.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 3/30/2010 4:34 PM (GMT -7)   
hi,
sounds like a lot of people are in a lot of pain with their IBD and often the doctors don't appear to understand. I too, like JaSanna have been in pain of varying degrees for the last 28yrs. I remember when i was first diagnosed with Uc and then more recently CD, the doctors were incredulous when i said that i had terrible back pain which they then realised was referred pain from my bowel. Now i have pain in all my joints, the only pain free areas are the space between mid thigh and ankle. The rest of my body is always sore at one time or another and even my sternum and the left side of my jaw become inflamed and painful. DOES ANYONE ELSE HAVE THOSE PARTICULAR SYMPTOMS? I take codeine or tramadol but i must have quite a low tolerance because even one tablet makes me feel sleepy and i cant take them when i have to drive and i have to drive for my job.
You know, they say you can get used to anything if you have it long enough, even pain and that's terrible but true. To MMMNAVY, i hope you get your pain under control soon because it can really wear you down. I have just started a new regime of multivitamins, calcium and vit D and Primrose oil and i think i am feeling at least a little more mentally positive even if physically i dont feel any different yet, but it is early days. good luck to you all.

chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 3/30/2010 4:35 PM (GMT -7)   
sorry, that last comment was meant for Sissy2

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/31/2010 4:56 AM (GMT -7)   
chatter, the pain in the left side of your jaw could well be TMJ - a lot of us here have it - mine is also in the left side and aside from being extremely painful its also a total nuisance! Eating is hard and as for speech some days I talk like I'm trying to be a ventriloquist or something!! One of the best things to do is to go to a dentist as they can make splints for it to help.
Joint pain is really common in CD, when I was first diagnosed I was told that 30% of Crohn's patients have joint issues with it but I swear its more than that as the majority of people I speak to with Crohn's seem to have at least one joint play up on them!
 
 

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