Vitamin d deficiency

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Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/29/2010 10:56 PM (GMT -7)   
tongue Because of the discussions on a recent post (2 months ago) regarding vitamin d deficiencies, I started taking 2000 iu's more a day now up to 2400iu's. I just had my blood work back and my 'd' levels were upper medium on the scale which means I was probably deficient prior to upping my intake. Ty healing well anther small victory.smile

Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 3/30/2010 2:00 AM (GMT -7)   
Lifes all about the small victorys :-) I've just started taking vitamin D myself, can't say I've noticed a difference but I'm going to keep with it as from what I've read it seems like it could be very beneficial.
 
 


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 3/30/2010 7:30 AM (GMT -7)   
I take 5,000 i.u. a day of Vitamin D.  I think it's key in my overall health, and especially helping to control inflammation in the body.  I would prefer to get Vitamin D naturally from the sun, but I live in the NorthEast and we don't get enough of that year-round sunshine here.
33 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
 
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 
 
 
 


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 3/30/2010 7:44 AM (GMT -7)   
I started taking Vitamin D about two months ago, as I also got blood work back that was saying I had very low levels of D. 
 
  I have noticed I have a little more energy and while I still have upset tummy every day, it seems to be more "solid"...and it HAS to be the vitamin D! :)
27y/o, diagnosed with Crohn's Disease at 25 y/o
Asacol 400mg 3 pills 3x daily
Starting on Remicade soon..... and I don't really know anything about it!


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 3/30/2010 8:44 AM (GMT -7)   
I recently increased the D I am taking from 2,000 to 3,000. I've seen significant improvement with the 2,000 -- before I felt 1,000 years old with some muscle soreness. If all continues to go well, I will add more.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/30/2010 2:04 PM (GMT -7)   
I too recently added Vitamin D3 in to my med regimen. It took a bit to feel the effects, but as for my Fibromyalgia, it has eased that pain immensley. So if you suffer with that, give it a try. My feet used to hurt SOOO bad, and now they don't. It has some good benefits for us and I think all of us should have our levels checked and also be on this very necessary vitamin. I have a sissy gut, and most vitamins tear me up, but this one is very easy to digest. By the way I take 3400 units a day. My calcium has 400 units in it, and then I add another 3000 units. Hugs to my peeps!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 3/30/2010 2:31 PM (GMT -7)   
Congrats! Vitamin D can help with depression, too: http://www.vitamindcouncil.org/depression.shtml

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/31/2010 12:50 AM (GMT -7)   
Well now there's some very interesting points being made here that relate to me!
Misspriss82 I have had a decrease in fatigue the past few weeks.
Nanners at this point, 2 weeks before my next remicade IV, I should be having significant joint pain. I have some but much subdued.
njmom I've also had a huge turnaround regarding depression, I feel very stable the last 2 weeks. I think most of it is due to a doubling in the med cymbalta dose but the vitamin D could be assisting. Regardless I feel relaxed! What a luxury! yeah


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 3/31/2010 3:03 PM (GMT -7)   
Your body makes vitamin D when you are exposed to the ultraviolet B (UVB) rays in sunlight. You probably need from 5 to 30 minutes of exposure to the skin on your face, arms, back or legs (without sunscreen) twice every week. Since exposure to sunlight is a risk for skin cancer, you should use sunscreen after a few minutes in the sun and even in the winter and on hazy, cloudy days.

Vitamin D is found in oily fish like tuna and salmon as well as in fortified foods like milk and breakfast cereals. You can also take vitamin D supplements.

Vitamin D is necessary for absorption and utilization of calcium, so you need adequate amounts of vitamin D for healthy bones.

CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 3/31/2010 6:55 PM (GMT -7)   
I take 1,000 I/U of D3 everyday. I feel a lot like my old self again, but I also started taking it around when I started LDN. Either way I am glad to have some energy back.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 3/31/2010 9:49 PM (GMT -7)   
Shortly after I started taking 5000 IU of vitamin D my fatigue got much better. Probably entirely coincidental, but I've kept taking it for months now and haven't had any terrible fatigue like before.
Cimzia, Asacol


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 3/31/2010 10:54 PM (GMT -7)   
Bsting I understand everything you are saying but I live in BC Canada we get lots of rain, I have a history of skin cancer so no sun regardless without sunscreen. I was taking 400iu's with my calcium but the discussion I was refering to was how so many of us are deficient in D due to crohn's. So we need to take more than the recommended daily dose just to keep from being deficient. This all came about in refference to a study out of Montreal at the end of 2009. So I uped my dose by 2000 iu's and when blood tested 2 months later I was around high medium on the scale. My Dr. said I was probably deficient prior to uping my daily dose.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/1/2010 6:29 AM (GMT -7)   
Even healthy people are being found to be low on this vitamin. Most folks work inside all day and then when they are outside tend to use sunblock so they are blocking the ability of their skin to absorb the Vitamin D while outside. I think all should be using this Vitamin. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/1/2010 10:18 AM (GMT -7)   
Just as an aside. I watch a baby a few days a week for a friend of mine. When she went in for her 6 month check, her pediatrician gave my friend the option of putting her on a multi vitamin or just straight vitamin D. So the vitamin D rage has filtered all the way down to babies. My friend chose the multi figuring she can boost her vit D after she gets her through the first few years.

I take about 64,000 IU a week and still test low on Vitamin D so I don't know how much more I can possibly take. I'm waiting for the last test results to come in and see where my levels are and if I should boost my intake up anymore.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


MIMIO
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 4/1/2010 11:58 AM (GMT -7)   
I am a new member but not new to our friendly Crohn's.
I had a bone scan last year which showed low bone mass and Vit D has done wonders in many ways. I don't think it can hurt....only help. I live in TX where the sun shines most of the time but I think taking the supplement is a good thing.

59 yr old female, diagnosed 2005 with CD. My Brother (60) also has CD. No surgeries, previously on Prednisone now on Asacol & Imuran. Was in remission, now having a little trouble but ok most of the time.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/1/2010 12:54 PM (GMT -7)   
i do take it daily as doc checked my levels and they were really low as well
am gtg for tests to see if they hv come up...lyn



Welcome to HW
please start a new thread introducing yourself so we can al say hello n welcome..glad you found us
lyn
LYN
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 4/1/2010 9:03 PM (GMT -7)   
Suzanne, it sounds like you are taking vitamin D2 - ergocalciferol. You might try 5,000 units of D3 a day to see if that works better.
 
Prednisone interferes with vitamin D absorption.
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 1000, 10mg zinc. SCD diet modified years ago to include potatoes and rice. 

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