Infertility and Crohn's

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ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 3/30/2010 5:25 AM (GMT -7)   
 
Hello Everyone,
 
I am wondering if any of you have delt with infertility issues and crohn's? Specfically blockage of the fallopean tubes due to scar tissue of inflammation affecting them. Since my resection April 2009 - my cycle has yet to get started even after taking provera twice. I am in Canada and dealing with the slow health care system plus other incompetence that I would rather not get into now. So, I am wondering how many of you had to take fertility drugs (i.e. clomid or other drugs or in vitro.) I am 34 years old and will be 35 this July. Please be delicate with me on the responses ---> I don't think I can handle answers like I got pregnant without trying right now.
 
Thanks in advance,
 
Ladybug
Crohn's 18 years, Humira, 1 Surgery


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 3/30/2010 2:12 PM (GMT -7)   
I don't have any suggestions for you, but just wanted to send some (((Big Hugs))).
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 3/30/2010 3:01 PM (GMT -7)   
Thanks so much Gail. I thought Crohn's was tough to get through but I am finding this much harder on me emotionaly.
Crohn's 18 years, Humira, 1 Surgery


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 3/30/2010 5:33 PM (GMT -7)   
I had scar tissue around my ovaries and fallopian tubes as a result of peritonitis during my first crohn's flare and bowel resection when I was 28. I had microsurgery to remove the scar tissue but didn't get pregnant. I had a son before this happened when I was 22. I feel for you because that was one of the most helpless feelings.But things are better now. This forum is a place where you can express all your thoughts and feelings and you will not be judged. I had no one to confide in about Crohn's or the infertility back then and it seemed the weight of the world was on my shoulders. You can let go of some of that weight here. Hugs.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/30/2010 8:52 PM (GMT -7)   
Hi,

I'm so sorry to hear about your struggles. My H and I have been trying to conceive since Nov.08 and have had 3 losses. All tests come back fine, so it leads me to believe that my crohn's is causing the trouble.
I did try clomid last cycle (and responded very well) but unfortunately it was when I started to flare so couldn't continue. Our next step is injects (gonal-f), but my RE and gastro will not let me start until the flare is under control. I'm currently on 6MP and quite nervous about being on it while conceiving.

I wish you the best of luck with finding a solution and am here if you need to talk about IF.

Kel
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 3/30/2010 8:57 PM (GMT -7)   
My GI told me I shouldn't have kids.
Based on her attitude, it seems like she doesn't believe anyone with Crohn's should have kids.
I don't know why she would think that way.
I never even heard of Crohn's effecting the fallopian tubes!!!
Good luck and happy conceiving! :)
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 4/3/2010 4:35 AM (GMT -7)   
Gypsyfo,
I am so surprised your GI told you this. Would you like to have kids?
Ladybug
Crohn's 18 years, Humira, 1 Surgery


kittygalore
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/3/2010 4:57 AM (GMT -7)   
I do not know if crohn,s affects fertility as such but I tried to get pregnant after my 1st child for 15 months and eventually it happened after a missed miscarriage. In my opinion my crohn's defo affects my fertility as my periods are worse and so is my crohn,s at the time. I did not get a period for 6 months after I came off my pill and my crohn,s was very bad at the time so I agree with you. <y GI has told me not to have a third child as my body wont be able to take another trauma.

Hope this helps

Crohn,s for around ten years but only diagnosed 2 1/2 years ago, 2 ressections and only on pentasa.

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 4/3/2010 12:34 PM (GMT -7)   
I always felt that my Crohn's was worse during my periods.
Even though my fistula was diagnosed as a skin to rectum fistula, I'm wondering if there might be another one that is rectovaginal or whether it's creating more internal problems because there's no fluid from the fistula except when I'm on my period, and then it is every day.
I've got Crohn's disease, and a family history of lyme disease and mental problems. If I did have kids, they would probably get some of these things. How could I explain to them that I'm the reason they're here and the reason they're suffering? Doesn't that seem selfish?
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 4/3/2010 6:59 PM (GMT -7)   
I too can contribute a lot to this post. As I have experienced IF as well due to scar tissue.
I feel your pain and worry, I really truly do!
I had all the tests done and it is vertuily impossible for me to conceive naturally. And doctors said it would be a HUGE risk to go in and remove the scar tissue because there is so much of it. I guess they say scar tissue is like raw dough, it just sticks to everything inside of you and to remove it is a big long surgery and no garuntees!

I did however do the invetro and was on the fertility drugs in 2006. It was not a successful process for us, .... for me.
And it became a terrible COSTLY experience that disappointed us greatly.
We had 2 embryos transfered in but they had an abnormal growth rate. And things just didn't look positive.
Abnormal embryos DO NOT turn out to be abnormal babies - they can be perfectly normal.
But I had something that they call Hydrosalphings - fluid in my tubes - and lots of it.
And embryos can not survive with this fluid in there. the fluid was from the surgery - removal of my colon.
I miscarried the 1st month in.

It was hard to find a purpose in our lives, in my life, after that.
After the invetro journey, we started looking into surrogacy in the states - which is even more costly - and now we are on a wait list with a private adoption agency.
It's a horrible feeling not being able to have children! I feel like a part of me has died.
It is hard to find hope and remain strong.
I feel our marriage has suffered because of it and this disease has thrived and made me more sick due to the stress & depression that comes along with it all.

I really do wish you the best, just remember, there are other options out there that you can look into.
You may want to start now.
I did not have CD when I was on the fertility drugs, but I remember that there was a very strict schedule with them.
I was on injections as well as some sort of nasal spray and I had to take a pill whatever it was I can't remember but I did keep a journal and a binder with all the info in it. I suggest you do the same as it may come in good use to you later on as there is a lot to remember.

Many (( HUGS )) GOOD LUCK & best of health to you and your partner!
HOPE 4 A CHILD.
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


Pirate's Life at 40
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/5/2010 3:29 PM (GMT -7)   
This is a hard thing to deal with a long with Crohn's... I can relate
 
I had an ectopic pregnancy at 28 due to blocked fallopian tubes, later had a HCG test that sort of 'flushed' things out but it still took me 18 months to get pregnant on my own.  My corhns wasnt as bad then and I was on no meds.  I do now have 2 beautiful girls now and would have loved a 3rd but its so bad now that I dont see myself being well enough to care for my 2 kids and be pregnant.
 
I hope you work things out...  I tried acupuncture and it really helped relax me and I think helped me get pregnant!

jrskarpe
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/9/2010 3:33 PM (GMT -7)   
I have Crohn's and my infertiltiy was caused by scar tissue related to an abdominal abscess and bowel resection.  Both of my fallopian tubes were blocked with scar tissue and no eggs can make it to my uterus.  I also had a hydrosalpinx in one of my fallopian tubes and had it surgically removed to increase my chances of conceiving.  It took two attempts, but I was finally able to conceive a baby boy through IVF.

KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 4/9/2010 6:37 PM (GMT -7)   
Hi All,

Have any of you used fertility meds (specifically Gonal-F injects) while on any type of meds for your crohn's ? My RE would like to have me use the injects with IUI, but says there is little research on how they will react to my meds (6MP).

Thanks,
Kel
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 4/9/2010 6:52 PM (GMT -7)   
Well, i can say that this infertility from crohns makes me really sad. My 14 yr old daughter has crohns and I know that she really wants kids when she is older. She is always talking about what she will do with her kids etc. I can only imagine how much more damage will occur in the next 10 to 12 years when she may be old enough to have kids. I didn't realize how much crohns could affect her ability to have children. I'm so sorry for all of you who have had so much trouble conceiving. Diana

KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 4/10/2010 6:37 AM (GMT -7)   
Hi Diana,

Crohn's does not automatically mean that your daughter will have fertility problems. All of my doctors swear up and down that the 2 are not connected. Personally, I have had 3 losses and all were when I was in complete remission from the Crohn's. All of my tests from a reproductive endocrinologist have come back perfect. I guess I just have to acknowledge that some people just have crap luck and work through that.

Most women with Crohn's will have healthy babies and your daughter will most likely be one of them. Don't give up hope for her...the odds are with her that she will be doing everything she wants with her future kids :)

~Kel
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 4/10/2010 7:29 AM (GMT -7)   
Riesasmom -- don't stress. Infertility is not directly related to CD. It can be an issue after CD-related surgery. The experts I've seen at conferences just say that scar tissue after surgery just makes it take longer. I, and many other women on here, have had healthy babies without issues. My first took longer than I expected, but still in the normal range (7 months). The one I'm expecting now was first cycle while still breast feeding.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/10/2010 8:12 AM (GMT -7)   
I had issues for yrs there is 12 yrs between older son n daughter then after cait was born i had to have radical hysterectomy

i think many hv issues with this not only cd ers
be well
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 4/10/2010 6:40 PM (GMT -7)   
I was at the dentist office this week and the assistant asked me about this same subject.  She had known another lady with chrones who was in her 20's.  I am in my 40's.  She was told I guess by her doctor that she could not have children.  I have passed chrones on to at least one child so far which I was not willing to not have children.  I became asymptomatic during pregnancy if that helps.  I was able to conceive and carry. I have heard before due to scared tissue it can affect fertility.
 
Cindy

riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 4/11/2010 1:40 PM (GMT -7)   
Kell, sorry to hear of your losses. I hope that you will successfully conceive someday. Thanks for your positive outlook. I find that watching my 14 yr old daughter suffer with crohns has really caused me to think negatively about her future. There are so many unknowns, and everything is such a struggle. I guess we'll have to take it one day at a time and not worry so far into the future. Thanks again, Diana

Inflammed, thanks for telling me of you success! And congratulations! I'm so happy for you! My children have brought me so much happiness. I hope my daughter will be blessed with children some day. Good Luck, Diana
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