I'm currently on 6MP for the second time. I was placed on it soon after my Dx and it really did work well. I took myself off of it, because I was concerned about using it long-term (and I also wanted to get pregnant). GI said that I would flare after it was out of my system and he was correct! Now I'm back on it (along with my prednisone taper) and I'm much more open to staying on it. I have not responded well to other drugs and GI says that if I keep going on and off I will need surgery.
I completely trust my GI, but to make me feel better, he is sending me to another doctor who has been doing research on long-term use. That will be in June, so I will be interested to hear what she has to say. I guess I just have to trust what they say, and know that its in my best interest.
Good Luck...I hope you find something that works for you.
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin