entocort now- MD plans Imuran or 6MP-benefits?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

haulmark7
New Member


Date Joined Mar 2010
Total Posts : 11
   Posted 3/31/2010 4:20 PM (GMT -7)   
Hi again,
Iahve now been on entocort for a week.  Doing ok- mild cramping at time only.  NO diarrhea.. I have never had diarrhea- only pain.  I am waiting to go for a cat scan-then the plan is Imuran or 6Mp after tapering off the entocort.  I am nervous and scared about this drug.  Things are well on Entocort- but MD says you should not stay on it long term.  He is concerned if I wean off and take no meds- I will likely flare again.  I sure could use some input my friends...cry

KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 3/31/2010 8:19 PM (GMT -7)   
Hello,

I'm currently on 6MP for the second time. I was placed on it soon after my Dx and it really did work well. I took myself off of it, because I was concerned about using it long-term (and I also wanted to get pregnant). GI said that I would flare after it was out of my system and he was correct! Now I'm back on it (along with my prednisone taper) and I'm much more open to staying on it. I have not responded well to other drugs and GI says that if I keep going on and off I will need surgery.

I completely trust my GI, but to make me feel better, he is sending me to another doctor who has been doing research on long-term use. That will be in June, so I will be interested to hear what she has to say. I guess I just have to trust what they say, and know that its in my best interest.

Good Luck...I hope you find something that works for you.
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/1/2010 12:50 AM (GMT -7)   

Hello,

We (son and I ) are pretty new to all this but I would firstly say that I think that being on entecort for a week isn't very long at all for it to take affect(believe it can take a few weeks for it to kick in) but as indicated it is not regarded as a long term solution.It does appear to be fairly normal to then move onto something else-son put on entecort January, now in his final few weeks of tapering off of it. Approx 6 weeks ago he went onto azathioprine(immuran). I can fully understand your apprehension about taking these drugs but I think that after you have been on them a while it just becomes part of the 'norm'

Your symptoms appear to be similar to my son's mild cramping and no diarrhea!

If you go onto the Immuran just remember to keep having the blood tests-especially in the first few weeks(son has had  one per week for past 5 weeks)

Without taking something then you could very well end up flaring again.
 
Good Luck    
 

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/1/2010 5:19 AM (GMT -7)   
All steroids are "acute" drugs to treat and diminish flare symptoms and immediate inflammation in the short term. The immunosuppressants (6mp and imuran) and the biologics (remicaxde, humira, etc.) are for long term maintenance to keep you out of future flares or to minimize their severity. A good analogy would be antibiotics for the sinus infection and then allergy shots to help prevent future ones. And fear not -- 6mp and imuran are two of the most widely used maintenance drugs for Crohns with multi-decade records and side effects in only a small percentage of patients. There are hundreds of people on this site (me included) who have done well on them for years.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 1:21 PM (GMT -7)
There are a total of 2,731,738 posts in 300,955 threads.
View Active Threads


Who's Online
This forum has 151128 registered members. Please welcome our newest member, Diane82256.
307 Guest(s), 6 Registered Member(s) are currently online.  Details
Artist Mark, Tirzah, Mrs. Brady, Mustard Seed, Myself 09, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer