Questions about colonoscopy (had one earlier today).

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mom-who-hurts
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Date Joined Mar 2010
Total Posts : 28
   Posted 3/31/2010 6:54 PM (GMT -7)   
So I am in the middle of testing to rule out IBD as a reason/cause for my chronic diarrhea, weight loss and abdominal pain etc.  I had an anal fistula the last two years and had surgery last fall-which I think is fianlly fully healed (but took a long time).  Between this and my other symptoms, they want to look for inflammation.  I had an abdominal/pelvic CT scan a few weeks ago that the radiology department messed up.  (they were supposed to do a CT enterclysis and just did a regular CT scan)  Today before my colonoscopy, my doc said he is still upset about that whole ordeal (i mentioned on another post recently) and doesn't want to expose me to anymore radiation, so we talked about doing a camera pill thing if today's colonoscopy is normal.
 
After the colonoscopy, my doc said that it all looks good (up to the last few inches of the terminal ileum) but he took lots of biopsies all throughout to have tested.  So my first question is to see if anyone has had an apparent "normal" colonoscopy only to find out later that the biopsies showed abnormalities that weren't detected by the doc during the exam.?  And the other question is this: If my exam AND pathology are normal, can I breathe a sigh of relief that I most likely don't have an IBD/Crohn's condition?  Or is this still just the beginning of ruling it out?  I think he still wants a better look at the small bowel. 
 
Second part of my questions has to do with polyps.  I am 36 years old, and he found 2 polyps in the left (descending?) part of my colon.  He said both were about the size of his finger tip.  (he has big fingers..lol.)  He was very concerned about this because of my age.  He kept saying that although we didn't discover obvious cause for my symptoms (which he said couldn't be caused by the polyps) it was good they got in there to remove the polyps.  He said if I had waited until the "typical" age for colon CA screening that could of been disasterous, and that I will need to have this test every 5 years from here on out.  My mom (late 50's) had 4 polyps at her first exam and they turned out to be the kind that are most likely to turn into cancer, so he is assuming this is probably the same kind I have, although he sent them to pathology to be characterized.  Has anyone had polyps?  Particularly anyone that is younger than the higher risk age group?  Could this have anything to do with my other issues, and maybe a result of underlining problems with my bowel (even though they didn't really see anything else?).  Or is this (as my doc suggested) just incidental finding and not related to my symptoms.  I keep thinking something is definately wrong with me, but the only thing they saw were these polyps, so why can't those be the cause...?  (ugh..im desperate for an answer...and too impatient to wait.)
 
Any thoughts?  I would really appreciate input.  He said as soon as pathology gets him the reports he will call me and we will "go from there.."

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 3/31/2010 7:56 PM (GMT -7)   
Take his word for it, the polyps are just incidental.
 
You are never going to know for sure w/o a good look, the best look, you can get at your small intestine. Given your recent CT experience, that means the Pill Camera.
 
The best way to go w/that when in doubt is to do the Agile Patency Capsule first. That is a dissolvable pill the same size as the Pill Camera. You swallow that pill first thing in the morning. 26 hours later you go back in for an abdominal xray. IF the APC is found on xray you are NOT a candidate for the Pill Camera because of a partial obstruction too narrow for it to pass. The APC will dissolve w/in 2-3 days if it doesn't pass. If it had been the Pill Camera instead you would most likely be facing surgery to remove it.
My computer says I need to upgrade my brain to be compatible with its new software.


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/1/2010 1:09 AM (GMT -7)   

Hello,

My son had a colonoscopy back in November (he's 16) and they found a polyps , one over 1 1/2 cm in diameter although there was also large areas of deep ulceration too. Biopsies were taken (3 if I recall correctly) the initial diagnosis from this was Crohns(confirmed by path results on biopsies) There is thing called pseudo polyps that can simulate malignancy(don't be alarmed) if I recall correctly it is actually a build up of inflammed tissue that causes a polyp type mass. I had several sleepness nights waiting for the biopsy results!

My gut feeling is that a Crohns Diagnosis will follow but that is just a gut feeling.

I can totally empathise with how you are feeling, I am sure you will get some answers very soon

 Son's colonoscopy was to rule out IBD tooeyes


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/1/2010 5:15 AM (GMT -7)   

Above replies are accurate -- and take his caution  about regular scopes seriously. Once you have large polyps you are very likely to develop more, and the older you get the more crucial that regular screening will become.

Yes it is possible to have Crohns with a visually unremarkable colonoscopy. You could be in an interval between flares (biopsies would likely show microscopuic evidence though if your disease is active in the colon) or you could have disease confined largely to the small bowel, in which case the pill cam would be fairly decisive. But a good rule of thumb is that the presence of your reported symptoms plus a fistula (a hallmark complication of Crohns) all point in the direction of a Crohns diagnosis -- which is good, since you can then get on meds and get into a possible remission and long term maintenance care.


mom-who-hurts
Regular Member


Date Joined Mar 2010
Total Posts : 28
   Posted 4/1/2010 7:58 AM (GMT -7)   
Thank you to all replies.  I appreciate it. 
 
Vixen, Im glad you told me about the inflammatory type polyps.  In my online research into polyps last night I found that on rare occasions, the polyps are the inflammatory kind, and not really polyps (as you described.) So I was wondering about that.  I guess it's just more waiting now...

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/1/2010 8:50 AM (GMT -7)   
Fingers crossed that you get answers quickly.
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