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Date Joined Apr 2010
Total Posts : 81
Posted 4/1/2010 3:32 PM (GMT -6)
Hi everyone, I had to re-register again, since I forgot my password, it's athensgirl if you remember me. Well, I spent 5 days at the hospital with a flare up and a partial obstruction, which is now clearing hopefully with pred, flagyl and ciproxine. Now I'm writting these lines full of tears (pred's fault) because I can't believe I'm starting all over again. It's been 4 years since my first visit to the hospital, and I thought I had everything under control.... It's been 4 good years..... and now back to zero: pred for at least two months, strict diet, and all those site effects that come along. 2 months ago I did something really stupid: I stopped taking my 5-asa medicines and I only took Entocort. Now the doctor says that maybe one the reasons of this flare up is due to this.... I know it was stupid, I'm 36 years old I'm not a baby, but you know when you feel well, you can't believe sometimes that this disease is so crazy.
Anyway, I had a small bowel follow through where I had to drink this awful barium, and it showed that the 30 cm of the terminal ileum have a stenosis (don't remember the english word), which is the same as 4 years ago, but he thinks that maybe the wall inside the intestine is more thikened. I saw it on the x-rays and cried. He said we will fight this with the right medication, no surgery needed at this point, but I'm so scared..... I don't want to go through surgery. I'm so sorry to vent, but it's been one very emotional week, it Easter, it's late at night here in Athens, and everyone is asllep besides my dog.
Any suggestions on how to get the situation under control are valuable.
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Date Joined Jan 2010
Total Posts : 265
Posted 4/1/2010 6:07 PM (GMT -6)
Well... you are already addressing the situation. The right meds for a heavy flare.
I feel for you. I was in the same situation an year and a half ago, missing a marriage (and I was going to be the best man!!) stuck in a hospital bed with steroids and cipro (i'm allergic to flagyl).
If you was doing so well with your 5-asa, it is unlikely that you will need a surgery right away (not may case, as you can read below). Just wait the things calm down, and then, try to pay atention to get a low residum diet. You are in a good country to eat good food!
Try to relax and "enjoy" your forced rest. It's what I do, anyway.
Male, 35 (lovely family of wife and two daughters)
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage (popcorn!!) - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade +
75mg Imuran + Iron (doc said i'm in remission, but I'm not sure at all)
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Date Joined Feb 2009
Total Posts : 1810
Posted 4/1/2010 6:34 PM (GMT -6)
Don't beat yourself up about
not taking all your meds. I think it is human nature when we are feeling great to want to cut back on meds. I do it too. Sometimes I think it is a little bit of denial slipping in on us. Just take care of yourself now and concentrate on getting well. Don't be afraid, it sounds like you are doing ok right now and just be happy for today, taking it one day at a time. It is easy to get scared and fearful when you've been sick. I have had that too! Happy Easter Christina! BTW, your english is excellent!
diagnosed 1/09 with "diverticular colitis" ??
location: sigmoid colon
localized scleroderma, IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid,claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel
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