Humira hurts more each time

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/1/2010 4:32 PM (GMT -7)   
Ok so I am not going to be a big baby but...

I have done 12 Humira pens and at first I did not feel a thing, but on the 11th pen it hurts a lot more and I was sore in the injection spot fore 24 hours or so.
Now I was doing nr 12 and boy it was not comfy :S not like the first times.

I let them stay out for 20 min before injection so it should not hurt as much. And I do them in the tummy area.
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~

Post Edited (isergodur) : 4/4/2010 4:54:30 AM (GMT-6)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/1/2010 5:36 PM (GMT -7)   
Hi Isergodur,

I only took one pen of Humira (full body hives!) but I used an ice pack to chill my stomach before the injection. That helped some.
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 4/1/2010 5:49 PM (GMT -7)   
I stopped taking Humira because I couldn't stand doing the shots they hurt so bad.  To me, it was like pure hell.
My stomach hurt less then my thigh when the nurse did my loading dose, but I couldn't bring myself to do a shot in the stomach.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

mkl11
Regular Member


Date Joined Jul 2007
Total Posts : 494
   Posted 4/1/2010 7:00 PM (GMT -7)   
yeppp i've experienced the same thing!

i've been on it for about a year and a half now and definitely noticed a change in pain level over time. i have a high pain tolerance so it doesn't bother me too much that i'd consider not taking the medicine, but i've wondered what causes the effect.
21 y/o, diagnosed 6/2007

Symptoms currently under control with Humira and a wheat-free, processed food-free diet. Beginning to have symptoms of GERD...


Missabear
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/1/2010 7:27 PM (GMT -7)   
I usually place them in my stomach. I tried my thigh once and it hurt like hell. I usually let the injection room up for about an hour before injecting it and it seems to hurt alot less. The site usually stings for about 30 minutes but I never have an residual pain afterwards.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/1/2010 7:55 PM (GMT -7)   
How about calling Humira and asking if you can keep it out longer. I've heard of people keeping it our for an hour but I don't know what the guideline is.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/1/2010 8:20 PM (GMT -7)   
Try your thigh - it hurt a lot less for me than my tummy. Might be worth a shot (no pun intended!).

You could also give the syringes a try. I preferred them much more over the pen, which I thought hurt like hell.

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/2/2010 8:07 AM (GMT -7)   
Aimee =) said...
Try your thigh - it hurt a lot less for me than my tummy. Might be worth a shot (no pun intended!).

You could also give the syringes a try. I preferred them much more over the pen, which I thought hurt like hell.


But don't you have to a lot more careful with the syringes then the pen?

I will try my thigh next time.

I will not stop the Humira this is pain I can tolerate, was just curious why it hurts more when time passes.
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 4/2/2010 11:00 AM (GMT -7)   
I hate it too. Burns like the devil. My husband gives me the shot in the fatty part of the back of my arm. I bite on a towel so my kids won't hear me scream. I hate it and can't wait to move on to something else.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5856
   Posted 4/3/2010 6:26 AM (GMT -7)   
     Had my first injections ten days ago.   Just a little sting is all I felt.  A LOT better than being stuck seven times for my Remicade (I have very bad veins).  I would even deal with the Remicade if it worked, but it failed.  Hoping the Humira works, otherwise it is surgery.  How long before you notice results with Humira?  I'm also on 35  mgm of prednisone, Canasa, and 9 Colazal capsules a day.  Bleeding stopped but urgency and having to "go" seven times in the morning is a real pain.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st. 
But suffered thru a 4th infusion...nada.  Starting Humira Mar 24th.


bluemoon7
Regular Member


Date Joined Sep 2007
Total Posts : 62
   Posted 4/3/2010 7:22 AM (GMT -7)   
I feel your pain.....I had to stop taking Humira too.

One reason the pain of injection..Unbearable more each time.

Also I work with the public and stayed sick all the time....Also I worried alot about Bad side effects.

I have to say that it did , just too many side effects.
My Goal is Not to let having Crohn's Define who I am........

45 year old Female

Diagnosed with Endometriosis in 1991 at age 27. Had to have a full hysterectomy. Treated for a herniated disc for about 5 years before being diagnosed with Crohn's in 2006. Had to have a bowel resection because of complete obstruction. Several Infections from surgery.

Medications: Pentasa ,Imodium, Flax/Fish& Borage Oil...Taken Humira, Asacol, Prednizone, and several others...

No Insurance - Or I would be on other drugs...Just can't afford them.


chico41
Regular Member


Date Joined Jan 2006
Total Posts : 135
   Posted 4/3/2010 8:43 PM (GMT -7)   

Ok.  I am one of the lucky ones. I have been taking the shot for over a year now.  I am a thin guy.  I take mine out for 1/2 hour prior to the injection.  I use my alcohol swipes and try to pinch my skin.  the pinching part is what seems to work for me.  I feel for you all.  Hope it gets better.   Bill W.                                                                                                                       


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/15/2010 4:47 PM (GMT -7)   
Ok so I did another shot tonight did not have the guts to do it in my thigh since I have had mixed answers about the pain :P
Well this seems to keep getting worse and worse I let the pen stand out for almost 40 min now and boy did it sting.

I feel like I wont be making it much longer, but the pain is so short but very intense :(
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


vadreamer1
Regular Member


Date Joined Aug 2006
Total Posts : 196
   Posted 4/15/2010 6:45 PM (GMT -7)   
I opted NOT to use the Humira Pen. I wanted control over how fast/slow it goes into me. So, I asked specifically for the pre-filled syringe. It stings a bit, but nothing all that bad. I warm it up in my hands before I inject it. You couldn't pay me to use the pen.
Diagnosed in April 05, resection in May 05. Have gone through 6MP, Remicade and am now on Humira and Colestid.

I am in remission!


melinds
Regular Member


Date Joined Sep 2003
Total Posts : 62
   Posted 4/16/2010 5:11 AM (GMT -7)   
I have been using the Humira pens for a year and a half and I am counting down to the end of the prescription.  I think I have four refills left.  I absolutely hate the stuff.  I have noticed that the right leg is worse than the left.  I will never take them again and I don't see any difference in my Crohn's.  I leave them out for 30 mins and numb the area for about 3-4 with an ice pack.  My husband has to do the shot because there is no way I would make it through the pain.

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 4/16/2010 8:44 AM (GMT -7)   
I usually do my injections in my thigh. I have noticed the longer I have been on it the more it seems to hurt, but what has helped is that I get it out 30 mins before I do it and then for that 30 mins I sit down with an ice pack on the spot I am going to do the injection. Once I do the injection, I put the ice pack back on for a few minutes. It seems to help some with the pain.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Xifaxan, Zoloft, Ritilan SR, B12 injections, Calcium and Vitamin D
Married, mother of 4


PainC
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/16/2010 3:22 PM (GMT -7)   
Anyone ever heard of taking Remicabe instead you get it injected through IV at infustion center at hospital painless....

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/16/2010 8:44 PM (GMT -7)   
yes PainC, usually Remicade is a stepping stone to Humira. But I would not say it is painless. You just have not developed the lupus like syndrome/antibodies/etc that can sometimes occur with it, and cause extrordinarily painful issues.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5856
   Posted 4/17/2010 5:31 AM (GMT -7)   
     I thought Remicade was a LOT worse than Humira.  I don't find Humira bad at all!  My veins are terrible and the nurse had to stick me seven times before finding a decent vein....not fun.
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed. Now on Humira, Colazal, 20 mgm of Pred and tapering, Cort enemas, Canasa, Calcium with D, Benecar with water pill for blood pressure.  Ambien/Tylenol PM for sleep.

 


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 4/17/2010 1:15 PM (GMT -7)   
I don't think you have to be more careful with the syringe. With both, you need to find a vein/stretch mark free area that hasn't been already injected into. You clean the area and pinch it off prior. The syringe you just inject as slowly as you want. I was able to often do it completely pain free. It's the medication itself that hurts so bad, not the needle. The pen, it just shoots in there and burns like hell because it's a rush of medication at one time.

I also found that pinching the heck out of that area of skin helped transfer some of the pain =)

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 4/17/2010 3:20 PM (GMT -7)   
The pain of the shots definitely is worth it for me. I was having obstructions at least twice a year, and that pain lasts WAY longer. I just try to remind myself that when I inject. (I'm not trying to lessen how much it stinks to be in pain to prevent worse pain, but I just keep in mind it's worth it)

I also make sure to ice before and after and that works for me. To me it doesn't matter how cool or warm the pen is when injecting. For me, the ice right after lessens the sting. Also, as much as it hurts, I try to massage the area for a minute after injecting and it helps the sting to go away.
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/22/2010 8:15 AM (GMT -7)   
I just talked to my nurse and she said I could try the syringe :)

Can't wait only one more pen to go and then we will do the syringe
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 4/22/2010 2:42 PM (GMT -7)   
I've been using Humira (pen type) for over a year, and it absolutely hurts & stings more than when I first began it. Although the stinging is pretty intense, it's over for me as soon as the injection is over. My thighs definitely sting WAY WORSE than my tummy.

One VERY important thing to remember is to not touch or put ANY pressure on the injection area for awhile after injecting. I made this mistake when I first began Humira (dabbed the area with tissue as it was bleeding), and OUCH!!!!! The area actually bruised. So now, for me it's hands off the area after injecting!

Good luck!
54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 11, 2016 7:05 AM (GMT -7)
There are a total of 2,736,310 posts in 301,367 threads.
View Active Threads


Who's Online
This forum has 151462 registered members. Please welcome our newest member, barbarwhit.
230 Guest(s), 4 Registered Member(s) are currently online.  Details
Asha00, mrs. george, reminder, LMusings


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer