Thanks for the info! you sure have been through it! not fun at all!! I also have joint problems, espeically my hands/fingers and knees. I know all the prednisone has caused a lot of extra problems! while I have not had any kidney issues, every since my colon surgery I have started having female issues! I have had 6 abd surgeries now between my colon and ovaries. i was still in so much pain that they thought it was adhesions. so I even had adhesion removal sugery- still no luck!
Right now I cant seem to stay out of the bathroom, I am about to OD on lomotil and pepto- I have hardly eaten or had much to drink... I just don't know where it is all coming from!
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa,
99- multiple failed remicade treatments, more hosptial stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis and almost didn't make it.
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck