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New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/2/2010 2:29 PM (GMT -6)   
 Hi, I am Mia24 and i have just been diagnose with crohn's disease. I am the only one in  my whole family diagnose with it, and i have no friends who have an idea what crohn's disease, so i joined to get to know people who are like me and who can hopefully help me with my issues.
 I actually have an question for those who know, my doctor has just pescribe me stearoids to help control the flare ups or  something, and i was wondering if that was the best choice? Should i maybe go on something else?
 Well glad to meet people,

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 4/2/2010 4:04 PM (GMT -6)   
Hello and Welcome, but I'm sorry you have to join our group. In answer to your question. Steroids are probably the quickest way to stop a flare and bring things under control fast, but they are not a good way to keep things that way because of the long term side effects. You should always be on some form of long term maintenance medication. Crohn's is a chronic incurable disease, but it isn't a death sentence. There are lots of medications out there and the trick is to find the right one (or ones) that work for you and stay on it to keep things manageable. Most people with CD lead long productive lives barely giving their CD a thought except to take their daily dose of med.

There are lots of helpful people here who are happy to answer any questions you have. But you can also find lots of answers at

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 4/2/2010 8:27 PM (GMT -6)   
Welcome to the Forum Mia24! You iwll find lots of wonderful people who are very kind and willing to share their experinces. You are not alone in this disease.

I do want to point out that many on this forum have serious cases of Crohn's. Yet most people don't have all of these problems. Each person's disease is different. Don't automatically assume the worst for yourself!

Take care!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 4/2/2010 10:18 PM (GMT -6)   
Welcome... like others, I'm sorry you find yourself needing to be here. Like Zanne said, steroids are a fast way to get the disease under control. I would let your doctor figure out what's best. Sometimes it takes a while to find the right course of treatment for you, as everyone is different with this disease.

As difficult as it is to be diagnosed, I have found myself to grow and learn from having this disease. So, hang in there and good luck with your decisions along the way. Everyone here has support to offer and experience to share.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 4/3/2010 1:54 AM (GMT -6)   
Welcome to healing well Mia24 here's a website that explains quite a few things about our disease that you'll find helpful. Let people here know specifics so they can offer advice. Like what steroid are you on and what are your symptoms? This info comes from John Hopkins in the US
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 4/3/2010 7:49 AM (GMT -6)   
Hi Mia, welcome to this wonderful forum you will get a lot of support on here, and everbody is very freindly. Bev x :-)
Diagnosed with crohns at 13 now 43
Reversal of temp ileostomy finally have a date 7th April 2010
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."

Regular Member

Date Joined Nov 2009
Total Posts : 145
   Posted 4/3/2010 9:43 AM (GMT -6)   
Glad to have you here but so sorry you have been diagnosed with CD.  This is a place with a ton of information for you.  I love it because it gives me a place to start often, but I also remember that each person is different.  Yes, the steroids can potentially get you there the quickest, from what I understand.  I myself have not taken them, or any drugs, yet.  I'm working on my diet and with a Naturopath who has Crohn's.  That's my story, so far, with Crohn's.  I wish you the best!
newfoundsun  (my blog about this journey I have just started)
CD diagnosed 11/12/09
Being treated by a Naturopath who himself has Crohn's.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/3/2010 11:00 AM (GMT -6)   
Just wanted to add my welcome to the others. As Zanne stated steroids are one of the best way to quiet a flare down quickly, but you will also need a daily med to keep the disease under control. Both Zanne and myself have learned the hard way what happens when you have Crohns and do not take a maintainence med, and we both do not want you to experience the same. You should always treat your Crohns and should consider diet and medication as complimentary of eachother. We look forward to hearing more from you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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