my daughter questioning crohns

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Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 4/2/2010 2:11 PM (GMT -7)   
My daughter has now told me after a while of suffering that she gets really bad stomach pains, quite a lot of diarrhoea and sounds like a lot of symptoms that would relate to crohns. I know it can be hereditary, is there any way she can be tested for crohns with out having to go through the horrible scopes and scans? Maybe blood tests and tests that are not do invasive to start with. I have told her she may not have it and just have IBS.
How would you start to investigate if she has it? Does she have to go to a normal GP and get referred to a GI or could she go directly to my GI,bearing in mind we are in the UK.
I hope for her sake she doesn't have it but it also sounds like my grandson has a lot of stomach issues as well, he never has a 'normal' stool', he is always either constipated or a runny stomach too :(
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 4/2/2010 2:57 PM (GMT -7)   
Hi there Michelle,
I too am in the uk. With my son (when GP decided to take my concerns seriously) he was initially given a blood test for caeliac(sp?) which came back negative so then he had a full blood test and based on those results he was referred to gastroenterologist for all the 'horrible scopes and scans' so I would imagine that with your history and how she is feeling your GP would carry out initial blood tests which would show up any 'red flags'.
Fingers crossed that she doesn't need to be referred

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 4/2/2010 3:08 PM (GMT -7)   
Thanks for the reply, I think I will try and get her an appointment with my doctor and go with her and then see what happens from there,atleast my doctor knows me and my history and won't fob her off and tell her she has IBS or something without investigating.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/2/2010 4:23 PM (GMT -7)   
They were testing / trialling / developing a non-invasive test for children in Australia a few years ago. I can't remember much about it, and can't tell you if it is now commonly used diagnostically, but it might be worth asking your gp about it anyway.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8559
   Posted 4/2/2010 4:25 PM (GMT -7)   
I'm pretty sure your daughter would need a GP to refer her to a GI. In the UK, it's impossible to see a consultant without being referred by a GP first; I think this is the case even if you go private.

When I went to my GP for diarrhoea that wouldn't clear up, the first tests that were done were blood and stool testing. It wasn't much fun trying to get a sample of stool into a titchy container, I can tell you. Presumably the purpose of the stool examination was to test for infectious disease. When that (also presumably) proved negative, only then was I referred for a colonoscopy and SBFT. Unfortunately, no doctor will diagnose Crohn's on the basis of blood test results alone; they will always want to see your insides. Even then it can be hard to diagnose or to distinguish from UC.

I'm sorry about your daughter. The genetic link for passing on Crohn's between parent and child is a weak one, but still there. The vast majority of children of parents with IBD will never get it, but obviously the occasional one will. I hope your daughter isn't one of them and that her symptoms are part of something more short-lived. Good luck!

twinsx2
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 4/2/2010 8:43 PM (GMT -7)   
My 14 year old son just did some blood work and a colonoscopy today. The dr. says he has ileitis. (Crohn's) The worst news I could get. Just make sure she gets tested. I was also misdiagnosed and told that I was lactose intolerant. after about 8-10 years I was finally diagnosed with Crohn's. I've now had it for 23 years and hating every minute of it. Let us know how it goes. I didn't get a referal for my son I just took him to my dr. . With my history of Crohn's they had no problem seeing him.
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