I am a mom with crohns and just found out today that son might have crohns

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twinsx2
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 4/2/2010 8:27 PM (GMT -7)   
The absolute worst news I could hear. I know what I go through with this dang disease and I don't want him to go through it. I always hoped and prayed that none of my kids would get it. I haven't even told him yet. I thought I might wait until the next time that we go to his Dr. because he would have the results of the blood work and the biopsies. As my son has seen, it isn't an easy disease to deal with. He has seen me in pain and seen me go to the hospital. He has even seen me go through the surgery. Now I may have to watch him go through all this stuff. I just don't know how I'm going to do it. I just really hate crohns disease. Please say a pray for my son.

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 4/2/2010 9:16 PM (GMT -7)   
Yes, I will pray for both of you.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/2/2010 9:44 PM (GMT -7)   
I will surely Pray for your son, I would not wish this on anyone, least our kids, or grandbabies, How old is your son?
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


twinsx2
New Member


Date Joined Mar 2010
Total Posts : 7
   Posted 4/2/2010 9:51 PM (GMT -7)   
Tink, My son is 14 yrs. old but has been having problems for about 1 year. I was 13 when I started to have problems.

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/2/2010 11:17 PM (GMT -7)   
I definitely hope and pray that your son has been spared IBD. However, if it does happen, he has you - a mom who knows what this disease is, and can help him keep a positive attitude, and can help him figure this out. He knows a little about what this disease is, and you can help him cope. Of course, the best would be for him to not have to deal with it at all, and I hope this will be the case. But if it isn't, I'm glad he has you to help him through it. But either way, have faith that he will lead a happy and productive life, because you are here to guide and help him.

(((Hugs)))
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 4/3/2010 7:49 AM (GMT -7)   
Wow...I totally share your fear.  I have a 7 year old who has had "tummy" problems for over a year.  Nothing close to Crohn's, but still, not exactly normal I think.  I have not had her tested because she is still growing and doesn't exhibit any other problems.  But I always have that nagging fear in my soul that she, out of the two kids, might develope Crohn's.  It is a scary ride, as a parent.  Stay in the fight, as I know you will.  He has you, and thank goodness you know about this disease.
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Being treated by a Naturopath who himself has Crohn's.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/3/2010 8:53 AM (GMT -7)   
I am so sorry to hear your little one has Crohns too. In one hand he is lucky that he has you though, so that he can come to you and ask whatever questions he has. I will definetly keep you BOTH in my prayers. Hugs!

Oh there is a site also for teens with crohns disease too, he might want to check that out. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 4/3/2010 8:55 AM (GMT -7)   
I do hope your son does not have crohns too. One in the family is too much! My 13 year old daughter was diagnosed at 11 with crohns. Now, when ever her 3 older brothers have a stomach ache or D etc., I can't help but worry that they too might get crohns . I think I will worry for the rest of their lives.  There is nothing worst than having your child suffer and not be able to help them. I'll pray for us all as I pray everyday that a cure will come along soon. Diana

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 4/3/2010 10:06 AM (GMT -7)   

Sorry to hear your son has Crohn's. It is one of the worst things ever when you pass down a disease to your kids. My oldest daughter has been sick off and on with D and low grade fevers over the last few months. Yesterday she vomitted and had violent D  most of the day. She has also had trouble swallowing at times. This is exactly had I started this stupid disease, at just the same age. She just broke up with a boyfriend after a long 3 year relationship and I know she is stressed so I am hoping that this is causing these symptom.  I already gave her polycycstic kidney disease so it breaks my heart to think she also has Crohns. 

Good luck with your son and I hope all goes well. I am sure you have learned a lot of tricks of the trade over the years you can share with him. Maybe he will have a much easier time than you did.

Elizabeth 

 

 


Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/3/2010 12:28 PM (GMT -7)   
I will also pray that your son won't have CD.
I hear you, that's the worst possible thing that can happen, but you must be strong and optimistic and encouraging for your son no matter what.

curesearcher
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/11/2010 8:08 PM (GMT -7)   
what does the naturopath have you on? what is his/her plan? my daughter was diagnosed 4/10 with crohn's. I have her on the Blood type/geno diet with vitamins, probiotics, homeopathic remedies, etc. She is also on 25 mg Prednisone and tapering off. very interested in alternative medicine. it has always been a good alternative for my family so always interested.

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 4/11/2010 8:41 PM (GMT -7)   
My Naturopath has me on digestive enzymes, vitamin D, thyroid support (for mild Hashimoto's), adrenal support, human-specific probiotics, UltraInflamax.....to name the main things.  I also take Cod Liver Oil.  I have been doing an IV treatment as well.  This treatment puts the vitamins and minerals, as well as natural anti-inflammatories, directly into my blood stream.  I HAVE felt an increase in energy since starting the plan of the Naturopath.  Our plan right now is to continue this another 2 months, then reevaluate with tests to see how things are progressing.  I also do SCD, have since I was diagnosed, and follow that with utmost strictness, as far as I can tell.
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Being treated by a Naturopath who himself has Crohn's.

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