Ok a few more questions

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Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 9:27 AM (GMT -7)   
I am sorry for all the questions but I'm just trying to get a few things understood, I realize everyone is different, However I think some things probably help alot of people. So I have been reading thru the posts and see that alot of people are staying away from sugar and dairy, and doing the low residue diet. On the sugar, I drink coffee and I usually put sugar in it, I really do not care for the fake sugar as it leaves a nasty after taste, I thought Oh i'll use honey instead, well low and behold I came across a page that says honey is actually as bad as sugar, So, Any suggestions? And is it best to be totally sugar free or is there some "limit" i should try to stick around? Also, I have been reading that coral calcium works well for people with crohns, is anyone on this and do you notice a difference? Just figured since I'm new to this whole CD, I might as well try to get started off on the right foot from the begining.
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2010 9:32 AM (GMT -7)   
It is very individual, but I have to admit I had to give up coffee. I switched to green tea. Real sugar is better then fake because the sorbital (and other art. sweetners) can cause D. Honey is better then sugar.
 
I actually drink milk three times a day.  But you will find out what works for you.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 9:40 AM (GMT -7)   
humm, well my Dr told me to switch to soy milk and to stay away from cows milk, something about the antibiotics they feed the cows can make CD worse. But I have always been a Huge milk drinker since birth, so this has been hard especially since I actually crave milk.
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 4/3/2010 9:44 AM (GMT -7)   
When I am flaring I have to give up coffee. It is is one of the hardest things to give up. When not flaring I can drink a small amount and be fine with it. For me it is all about moderation. I eat small portions throughout the day. This seems to help more than anything else. I also never drink carbonated beverages during or after a large meal. It makes me extremely miserable.

You sound like you are on the track to managing your disease with a lot of great info. I wish you the best of luck.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2010 10:00 AM (GMT -7)   
You can buy antibodic free milk, just be aware it is twice the price and half as much (I actually do). I actually buy mine from my university dairy, and so I have alot of laditude with what I can get. Plus I should have said that this has just been my experience.
I would do what my doctor orders.
But I would also start checking around to see what my alternatives are.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 10:52 AM (GMT -7)   
oh well maybe thats what he said, I was crying from hearing the news for the first time, but I thought he said to get either soy milk or acidolpolis milk, and I had never heard of that nor could I find it..lol he probably said antibodic free milk I will have to check into that. is it reg cow milk?
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2010 11:05 AM (GMT -7)   
There are brands like Horizon that are suppose to be antibodic free (and it is what I use when I am traveling), but I feel better going to my university dairy so I know the cows I am getting it from.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 11:13 AM (GMT -7)   
Thanks for the info MMMNAVY, I do have another question for the ppl that have taken the prednisone , I usually have muscle aches from my fibromyalgia, but I have noticed since taking these meds I'm having other then normal fibro muscle aches.. Is this a side effect that will go away or one I should be worried about?
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2010 11:23 AM (GMT -7)   
Pred does not really work very well for me. But pred "should" reduce all forms of inflammation. I do not know if that is a side effect. But what I found works for me is muscle/joint/bone pain that I have is heat.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 11:25 AM (GMT -7)   
Thanks I'll try that today, hopefully help some..smile
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/3/2010 11:54 AM (GMT -7)   
You really need to experiment and see what does and does not upset your body. I can tolerate sugar just fine, but fat is difficult for me to process. So sugary things with fat in it like cookies and muffins don't work well, but a little sugar in coffee wouldn't bother me at all. I would have thought the prednisone would have helped your fibro, but you need to pay attention to your own body.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/3/2010 12:00 PM (GMT -7)   
I too get antibiotic free milk for my hubby, which I also use to make him yogurt. He sometimes sweetens things with honey, but avoids sugars and artificial sweetners, and watches his intake of carbohydrates.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/3/2010 12:55 PM (GMT -7)   
Hey PV how do you make yogurt? would you mind sharing?
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/3/2010 2:52 PM (GMT -7)   
I have read many post from folks who keep a diary of what they eat every day and what problems they have. Maybe it will help you figure out what works for you?
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/3/2010 5:03 PM (GMT -7)   
Make a Food Diary: Record what you eat.
What causes problems.
What doesn't
Eliminate that that DOES cause problems.

Matthew
This is the only REAL diet for CD IMHO & IME.
I cannot really handle caffeine, either.
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