So sick of always having aphthous ulcers

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mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 4/3/2010 10:42 AM (GMT -7)   
I have had aphthous ulcers sense I have been born. Seem like they don't ever go away. So painful and I have tryed few different medicines and nothing seem to ever help. I have magic mouth wash and it only helps for few mins then the extreme pain is back again. I was wondering if anyone knows anyone that specialist in ulcers? Also what to eat when you have them. Because seem like when I do live on nothing but mash potatoes and mac cheese. Get so sick and tired eating same old stuff. Not ever being able eat anything spice or acid or salt. My doctors they don't know how to treat them. My mom thinks I need be put on steriod but my gasterogist won't do it. So I don't know just so sick dealing with it. Even more extreme pain everyday...

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/3/2010 10:48 AM (GMT -7)   
I am sorry I do not have any advice. But I hope you can find something to help.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

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Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 4/3/2010 11:21 AM (GMT -7)   
I've had chronic canker sores since my Crohn's started in 2005. I mean, 5-20 at a time, ALL the time. Once I started on the 5-ASA meds they decreased in severity and frequency to the point that I don't have them all the time.

I just had a flare in Feb/Mar and those suckers are big and painful! Hard to eat, hard to talk. Miserable all around. I did use a dental paste called Triaminclone that helped but wasn't a magic bullet.

I find that if I eat sugar candy (M&Ms and skittles in particular) I can immediately trigger a huge canker sore. They seem to form where the food touches my mouth - the roof and in between my upper molars and cheek. They are deep pits. Each lasts about 2 weeks. I have permanent scars on the inside of my cheeks from biting them when my entire mouth is swollen.

What works for me: avoiding all sugar (especially those citrus type candies) and gluten, and staying on my meds.

Hope you find something that works.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 4/3/2010 11:24 AM (GMT -7)   
whats 5-ASA?

Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 4/3/2010 11:29 AM (GMT -7)   
The 5-ASA meds are the aspirin-like lower level crohn's drugs: Asacol, Colazal, Canasa, Pentasa, etc.

I took Colazal and Canasa for several years to treat my colitis until I developed an intolerance. My inflammation is the distal colon. It seems that if I treat that then my mouth gets much better as well.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!

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