lowered white blood cell count on Remicade?

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snappy
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Date Joined Sep 2005
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   Posted 4/5/2010 4:25 PM (GMT -6)   
My new infusion doctor tests my blood everytime and for everything. This time he told me my WBC count was lowered to 3.6. He said there was no cause for alarm but that I should stay vigilant and if it went lower we might consider taking me off Remicade for awhile. So, of course I'm worried. Anybody else experience this? Thank you!
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


Ides
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Date Joined Nov 2003
Total Posts : 6816
   Posted 4/5/2010 5:03 PM (GMT -6)   
Are you taking anything like Imuran or 6MP in addition to the Remicade? When I first started Remicade I had also just started Imuran. My WBC plunged. I was taken off Imuran for a couple weeks and then restrted at a lower dosage. Remicade can lower the WBC. My GI had my WBC tested every week to see how it was bouncing back. I got back to normal in two weeks. I was down at a serious 2.0 and back in the okay range in two weeks.
Moderator Crohn's Disease  & Osteoarthritis Forums
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snappy
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Date Joined Sep 2005
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   Posted 4/5/2010 5:20 PM (GMT -6)   
Not taking anything like imuran. I couldn't tolerate that at all. Hopefully it's just one more thing my marathoning was doing to me. I ran 3 marathons in 3 months and really got run down. caught every disease within 75 miles of my house. My last blood test was right about that time. maybe the one I got today will show improvement since I'm just doing some short runs now.

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


snappy
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Date Joined Sep 2005
Total Posts : 673
   Posted 4/5/2010 5:50 PM (GMT -6)   
with a little reseach I blew my theory out of the water. marathoning causes an INCREASE in WBC count! and that is only for a short duration.

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


PV
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Date Joined May 2006
Total Posts : 1158
   Posted 4/5/2010 7:58 PM (GMT -6)   
I'm surprised you have this side effect after being on remicade for 4 years! I've heard of it affecting blood count numbers, but usually when you initially start taking it - I thought it was one of those side effects that if it was going to show up at all would show up when first starting remicade, not after 4 years of use. :-( I guess it can happen.

Oh, one thing I read is that certain viral and bacterial infections can actually reduce white blood cell counts. Perhaps you were fighting on such virus/bacteria when the blood was drawn? You did say you were sick during that time frame.

I'd go ahead and get another blood draw, and see how things are. And let your doc monitor your blood counts, to make sure things stabilize, and go back to normal. I hope it's just some random infection that caused the low WBC. Keep us posted on what you find out.

I'll keep my fingers crossed for you.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


snappy
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Date Joined Sep 2005
Total Posts : 673
   Posted 4/6/2010 5:00 AM (GMT -6)   
Thank you, PV!

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


c_azzy
New Member


Date Joined Jan 2010
Total Posts : 5
   Posted 4/6/2010 9:34 AM (GMT -6)   
Hi, I'm not on Remicade but am on Azathioorine back in August last year my WBC dropped to 0.6 and as my doctor was on holiday at the time nobody was checking my bloodwork so two weeks went by before somebody noticed. Was feeling very sick and tired but didn't think anything of it, they dropped my dose and it returned to within a safe range within 2 weeks had to have bloods done every two days during that time though. It's funny when someone says your WBC counts are seriously low i'm like well maybe if you stop taking so darn much of it it might get higher lol!
They dont know why i suddenly dropped like that as had been on the stuff for a year, now every time they try to increase the dose the same thing happens which isn't helpful but they keep trying.
Age 22, diagnosed with Crohn's Disease March 2007, currently taking 100mg Azathioprine, 2g Pentasa, Solpodol for pain


chroniemomx2
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Date Joined Apr 2005
Total Posts : 2346
   Posted 4/6/2010 3:27 PM (GMT -6)   
I'm on remicade and I had this happen once. They didn't do anything just had it rechecked and it was fine the next time. My dr. has me do labs every 3 months.
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