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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/5/2010 7:30 PM (GMT -7)   
Last week had really bad stomach pain right in the middle of my belly that radiated to my back. I thought,  Here I go again... kidney stone! Drove myself to the E.R.!!! Pain was at an 8 and just wouldn't go down. I've had 4 kidney stones before so I thought that's what it was.  The E.R. Doctor said, Oh it's not a kidney stone and wanted to know why "if it's a Crohns flair" I don't keep strong med's at home for pain to get me through times like this!!!
 
I was so upset! crying made the pain worse.  I don't have strong drugs at home because my G.I. doctor doesn't just prescribe them for no reason. Finally the E.R. Dr. said he was gonna leave it up to me whether to stay at the hospital or not (while he looked at his watch a 100 times) He really thought I should go home with pain med's and make an appointment with Dr......and I was thinking..Yeah, if there's an opening in the next week I'll be lucky and which Dr.? I have six!!!!!! the E.R. Dr. never came back into my room.
 
Anyway, I ended up staying at the hospital. The next morning early my G.I. was at the end of my bed consulting me. I was sooooooo glad I stayed. Pain just hung at 8 for four days while they tested and tested me. They did a colon/endoscopy...clean out was horrible. I never would have made it at home. Finally they found 2 hernia's  through a barrium CT.  The hernia surgery that I had two years ago....(with pig skin vs. mesh)  broke down completley. It wasn't strong enough.  My Intestine in two different spots was getting caught in the layers of stomach linning and creating a TOTAL blockage on and off. Well, I totally felt it!!!..ever since Christmas I'd been noticing something going on.!!!! Had surgery on Good Friday...I'm very thankful that my G.I. Dr. kept searching for the problem until he found it. This really was Crohns related at all.  So hard to know with Crohns though. Anything in the stomach we relate to it.
 
So back home today after 7 days at the hospital. Glad to be in my own bed!
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/5/2010 7:51 PM (GMT -7)   
Oh gosh! What an ordeal! I am so glad it was fixable though. I'm glad it wasn't kidney stones, or a crohn's flare, and that hopefully this surgery will mean the mesh will hold everything appropriately.

I am glad you're home! Now, you just have to get better and recover fully from this terrible terrible ordeal. It is so darn hard with crohn's to know what the heck is wrong - you always think it's crohn's, but this just goes to show, that there could be other causes. Every time my husband has something wrong, I suspect the crohn's, but I know I need to give the other possibilities a thought too.

You made a really good call to stay in the hospital rather than go home. I can't believe the ER doc just wanted to send you home with pain meds . . . we really do have to be our own advocates, because sometimes we get pretty crappy advice from physicians. :-) But I hope this is a story of all's well that ends well.

(((Hugs))). I wish you a really speedy recovery.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/5/2010 8:29 PM (GMT -7)   
Thanks PV! Yes, we do get crappy medical advice sometimes and have to be our own advocates!
So important and yet scarey because there are times you can't speak for yourself.

*correction
this really WASN'T Crohns related at all.
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/5/2010 9:02 PM (GMT -7)   
Glad they found the trouble but sorry you had to have surgery. Hope all goes well from here on out and you heal well.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/6/2010 6:47 AM (GMT -7)   
I too am glad they figured out what was going on and got you fixed up. Hope you start feeling much better soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 4/6/2010 7:30 AM (GMT -7)   
Flowery,
Ok this post regarding the treatment from the ER doc, just ticks me off. I would have to talk with this doctor. Mistakes in diagnoses happen but just that attitude is so wrong! I worked in ER and they are uder pressure from the hospital to get the pt's out of there ASAP & this is just one factor that contributes to this attitude. But me personally, I would have just had to take a little stroll down to the ER and have a face to face conversation with that doc....tactfully, but I probably would have. Just me tho. Feedback to the hospital via phone call/letter is good tho.

Glad you stayed and are doing better, continue healing well.
Diagnosed with CD 2006.  Refused to take meds until recently started Colazal. 
 Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
 Off of the Prednisone!!
I live by faith and not by sight....


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/8/2010 7:29 AM (GMT -7)   
Thanks PV, Nanners, and Dinky
After being home for a few days ....the ER Dr. thing is just really making me more and more angry. I know they are sapossed to get you in and get you out..but I seriously was in so much pain. Weird now how the back and pelvic pain is gone. I think I was suffering alot long than I knew. I do need to address that ER Dr. thing. for sure!

Another thought I've been having is...
So....I had the hernia due to (a pig skin) breaking down from previous hernia surgery. The general surgeon told me it was the "cadillac" of the meshes back a few years ago..but more and more of the (pig skins) have FAILED!....and they have had to replace them.
Do you think I'd get a call or something saying..umm....you had one of these meshes and welll.....they break? a RE-CALL of sorts?
Kinda like a car that has a re-call? Accept this is my freakin' body. And..I get to pay for the surgery all over again. I don't mean to ungrateful for really awesome care and quick care here in America...but it just seems odd that when the medical field knows they have a "recall".....
and...
I NEVER GOT the call...just saying:)
what do you think?
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 4/8/2010 8:24 AM (GMT -7)   
Glad everything worked out for ya Flowery, And I can relate to Dr's having attitudes ...gggrrrr
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/8/2010 11:53 PM (GMT -7)   
Good for you making the right decision regardless of the pressure from the ER Dr. Glad to hear your problem was fixed and you back home!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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