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LoLo613
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 4/6/2010 11:50 AM (GMT -7)   
Hello
 
I'm new to all this but figured i'd give it a try to share things with others. hey i could learn something and maybe i could help someone else..
Been diagnosed with crohns for 5yrs now and have only had about 2 good years since knowing this is what i have. things have pretty much been kept under control with humira but  it seems it too doesnt want to help anymore. no fun. just had scope to discover a stricture that he balloned or dialated open..thought i'd be feeling better by now but still having pain. goodness i am just ready to feel better. increasing humira to once a week and added entocort. hope this will work. well i'm ready to start talking to people and interested in learning how they deal and things that work for them. gotta get better for my little one.:-)
 

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 4/6/2010 3:27 PM (GMT -7)   
Hi and welcome to the forum! I have learned so much from everyone here and it really helps to know you can come here to ask questions or find answers to things you may not have felt comfortable asking elsewhere.
Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/6/2010 3:43 PM (GMT -7)   
welcome! I've had Crohns for 5 years too. You will learn so much on this website and everyone here is very encouraging!
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/6/2010 3:45 PM (GMT -7)   
Welcome, Lolo! It's good to meet you.

It's hard, isn't it, to never regain full health despite treatment? I wonder if you've been on any of the other anti-TNF meds, like Remicade (Infliximab) or Cimzia? Sometimes people find that they do well once they change medication, especially once they've started to lose response to their original anti-TNF med.

Some of the people here find that they do better on a low-residue or even liquid diet because of their strictures. How's your diet? Do you notice that your symptoms worsen if you eat particular foods?

I'm looking forward to getting to know you better.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/6/2010 4:08 PM (GMT -7)   
Welcome to HealingWell! But sorry you needed to come here in the 1st place. Still its a great forum for support & CD info.

Sincerely,
Matthew

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2010 6:54 AM (GMT -7)   
Hi Lolo just wanted to add my welcome to you too. You will find alot of support here. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/7/2010 8:17 AM (GMT -7)   
a Very warm welcome to you
keep posting n get support you need
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


LoLo613
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 4/7/2010 2:22 PM (GMT -7)   
thank you all for welcoming me..
ivy yes i have tried remicade. it worked for about 10 months before i flared up so we switched to humira which has been wonderful till about 3 months ago. now were increasing dose to once a week.  we'lll see how that goes.
oh another day.  yes food does seem to play a major role dont yall think? of course spicy sends over the edge and fried foods arent that good either...read alot about SCD sounds like something i want to try..rolleyes
28 y/o female(1 beautiful little girl!)
dx in oct '05
prev meds:colazol;pentasa;asacol;entocort;imuran;remicade;cipro and flagyl and pred during bad flare; humira every 2 weeks
status;flare right now;scope showed stricture
plan is to increase humira to shot once a week and add entocort.
"the only way to keep your health is to eat what you dont want, drink what you dont like, and do what you'd rather not." -spanish proverb
 

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