Cyclosporine Treatment of Chron's

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New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 4/6/2010 9:49 PM (GMT -6)   
Hi Everyone,
I went today for a second opinion to a new GI, as my past year hasn't been very good. Since I have been on pretty much every medication and multiple surgeries my options are very limited.  The GI I went to told me that I have an option to start Cyclosporine, which would require me to be admitted to the hospital from 7 - 10 days to receive a continuous IV flow of the medication to set the correct levels right away.  After 7 - 10 days I would be discharged and would just take oral medication.  He said that based on study this has been a really effective medication for both fistula's and Chron's disease.  I wanted to know if anyone has heard of it as he was the 1st doctor that has ever mentioned this medication to me. 
Thank you,

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2010 8:41 AM (GMT -6)   
I have heard of it, but really don't know much about it. Sorry not of more help. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Nov 2009
Total Posts : 1651
   Posted 4/7/2010 9:57 AM (GMT -6)   
Cyclosporine is actually a drug that has been used for many years for transplants as an anti rejection medication. My father was on it for 15 years post heart transplant. After 12 years or so he started developing kidney failure and he was told that could have been a side effect from the medication. Other than that, it was a great medication for him.
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions. 
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me. 
Learning how to love life and relax. 

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 4/7/2010 10:15 AM (GMT -6)   
My docs have talked to me about that and Tacrolimus. I'll be curious about how it goes if you chose to start it...
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 4/7/2010 5:11 PM (GMT -6)   
Cyclosporine was the only medical option I had left back in the early '90s when I'd used all the other meds that were available at that time, and my disease was too extensive for surgery.

I did all the pre-administration workup (which required a week in hospital in itself; I don't know if that will be necessary for you) but was ultimately told I couldn't have the drug.

You might like to pop over to the UC forum and ask about it there: I believe it's more commonly used with UC than CD nowadays.

All the best to you,

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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