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RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/7/2010 9:25 AM (GMT -7)   
Is anyone taking this medication? Does this make you drowsy? Can you drive while on this medication? My Dr. is going to prescribe it to me but I was curious about the side effects..
RoseAnnette
 
**Keep Moving Forward**
 
~Awaiting biopsy and bloodwork results.


nightside of eden
Veteran Member


Date Joined Sep 2009
Total Posts : 552
   Posted 4/7/2010 10:05 AM (GMT -7)   
i have never had any side effects with this drug at all...yes you can drive...typcially the side effects are minimal like nausea,some hair loss, headaches.....the usual side effects with pretty much every other drug

RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/7/2010 10:19 AM (GMT -7)   
Hair loss?? Ugh that's all I need :o( I know the side effects differ with every patient so hopefully this wont be the case with me.. thanks!
RoseAnnette
 
**Keep Moving Forward**
 
~Awaiting biopsy and bloodwork results.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/7/2010 10:49 AM (GMT -7)   
I have been on this maintained on this med for the last five years. You can have some hair shedding but not really alot. And no it doesn't make you sleepy or anything. I have had no side effects at all from this med. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Atmosphere
Regular Member


Date Joined Mar 2010
Total Posts : 220
   Posted 4/7/2010 11:07 AM (GMT -7)   
well true everybody is different. generally speaking, hair loss is no stranger to the 5-ASAs as far as side effects ago. Expect the worst and hope for the best.


Personally, I know for a fact hair loss is listed for the Asacol and I took Asacol, before reading through the "side effects" and experienced excessive and annoying hair loss. i'd noticed the hair on my laptop/pillow. weird...
stopped the drug about 6 months into taking it.
but i took/take another 5-asa Lialda and don't have have the hair problem so guess it can depend on the person and drug!
wish you the best dear. don't fret.

gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 4/7/2010 11:53 AM (GMT -7)   
I didn't have much hair loss on Asacol.
BUT
My brother says that before I took Asacol, my memory was fine.
Since taking it in my teens, I can't remember many events from my childhood.
He likes to joke and tell people I took too many drugs and so my memory is shot.
Still, Asacol is the most mild of meds. If your doc prescribed this as a first drug for you, consider yourself lucky! I know I was! After a year of Asacol, I didn't need a med for 10 years.
 
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 4/7/2010 4:50 PM (GMT -7)   
I was on this for two years (3 pills, 3 x a day at 400 mg),  and I NEVER had any side effects at all!!  In fact, it didn't work for me, so now I've changed meds, but I hope it works for you!
27y/o, diagnosed with Crohn's Disease at 25 y/o
2000 units of Vitamin D
1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010
 
(previously on prednisone & asacol)


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/7/2010 11:35 PM (GMT -7)   
I found it caused fatigue at doses above 1600mg/day (4x400) at 3x400 or 1200mg/day the fatigue was gone. I had the same side effect from salofalk another 5-asa as well.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 4/8/2010 1:37 AM (GMT -7)   
I've been on it since 2006, and haven't had any side effects from it at all. I have my tired days though, but that's usually from Crohn's in general.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 4/8/2010 2:53 AM (GMT -7)   
Have you ever thought about Humira? Do you have depression? It kind of sounds like it.

RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/8/2010 5:13 AM (GMT -7)   
Kmfdm-- It sounds like I have depression?? Actually, I think I am taking all this testing pretty well. I try to keep a smile on my face for my children so depression is not an option for me.. What is Humira?
RoseAnnette
 
**Keep Moving Forward**
 
~Awaiting biopsy and bloodwork results.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/8/2010 6:21 AM (GMT -7)   
RoseAnnette I don't think you sounded depressed at all. Just curious about one of our meds. I will tell you the Asacol is one of the mildest meds available and with some of the least side effects. Humira is one of the TNF-biologics like Remicade. For my part, I prefer to stay on the most mildest meds as long as I can before going on the stronger meds. So far for the past five years the Asacol has been all that I needed. Thank God:) Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/8/2010 11:55 PM (GMT -7)   
Don't get me wrong either I'm impressed by asacol especially when my GI said it wouldn't help me.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

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