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belle
New Member


Date Joined Mar 2003
Total Posts : 3
   Posted 4/7/2010 5:17 PM (GMT -7)   
I have had Crohn's for 29 years...diagnosed at 16.  I tried everything besides biologics...did not want to go down that path.  I changed my diet, but did not go as far as the SCD diet...but I eat very healthy.  It worked for awile but I didn't stay in remission.  I generally would go on prednisone...the only thing that would get me into remission....periodically, after other medications failed.  I did acupuncture, chinese medicine, chiropratic adjustments, and conventional medicine.  I researched constantly and was miserable most of the time.  Then I read about LDN.  My Gastro would not prescribe it so I called a compounding pharmacy and asked for a list of doc's who did.  I started LDN and it wasn't immediate relief and I was getting discouraged...but as my dose increased my symptoms decreased.  LDN was a life saver!  My husband thanks God all the time that I found it as do I.  It is great to travel and not have to constantly worry about bathrooms and actually enjoy vacations, taking walks with the kids, going to their sporting events...everyday life.  If you haven't tried it...I HIGHLY recommend it!  Good luck!

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/11/2010 9:59 AM (GMT -7)   
I Crohn's, 24 years and have started to flare in my gut (my skin and tendons have been trading hits for the past few years) a month ago after 9 years of relative remission post surgeries.

I found out about LDN through my Rheumatolgist who thought I should try it for my shoulder. Imagine my surprise when I read up and found out about it's use for IBD's -- presently there is one double blind study going on in the US for it's use in treating Crohn's (completion date is July 2010)

I have never responded to any of the immune suppressants from Steriods, through Immuran (put me in hosp) to Remicade. Surgery saved my life, though I got a pouch due to a surgical error. I've suffered through an auto-immune reaction to abdominal mesh (rare, but torturous).

This drug literally fell into my lap. I had to get through the tests before trying it, as opiates are blocked by this drug and I can do scopes without the versaid, but not with out pain killers.

So, I've been on it for 3 weeks, started at 1.5mg orally (liquid suspension, just a titch bitter but water clears it) away from food in the evening, between 9 and 11pm most days. I'm up to 2.5 and because of my body weight 3.0mg is my max (3% of body weight).

The day I started I couldn't eat, I was going to the can 6 -8 times a day. All food hurt, I lost 10 lbs in 3 weeks, which is 10% of my body weight. (I've never been able to get back to an appropriate weight for my 5"5 1/2' small frame).

I was so weak I couldn't stand for more than 10 mins without risk of passing out. I was starving and suffering all the effects that go with that, not to mention the pain.

For the past 4 days I've been able to eat small amounts frequently and am eating a fairly normal diet. The poops are slowing down and I am passing gas again (I don't pass gas when I'm flaring).

My pain killer of choice has been Toradol for years, and I'm down to maybe once a day and this is because just before the flare a colocutaneous fistula abscessed and got bigger. While there is still puss coming out, this morning's stool did not hurt as it went by.

I am feeling stronger, which is saying a lot. I have an appetite, Yay!

I am not up to my full dose and I am feeling MUCH better already. It's too soon to be sure, but this is working for me so far, when other drugs would not.

The side effects are minimal, I don't sleep long but naps help that. I was not sleeping due to pain and being malnourished, so waking to simply be awake is not so bad. Odd dreams can also occur, and I've had a couple that made me laugh. These are the main side effects, which are said to pass once body get's used to it.


My GI was not open to this treatment, she's pretty closed minded though. My surgeon, who is very open minded, thinks the science makes sense, and also thinks it is worth a try.

I'll keep you posted....

i deleted 2 exact posts ya must have hit button too many times lol

Post Edited By Moderator (Howlyncat) : 4/11/2010 12:26:29 PM (GMT-6)


misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 4/11/2010 12:21 PM (GMT -7)   
What is LBD?
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010
 
 


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/11/2010 1:13 PM (GMT -7)   
Sry howlincat, new to forum, grins.

LBD? I don't know...

If you meant IBD, Inflammatory Bowel Disease, of which their are 2. Crohn's Disease and Ulcerative Colitis.

Crohn's can effect the entire digestive system, UC the colon only. Both come with a host of other conditions, effecting skin, eyes, joints, to name but three.

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 4/11/2010 1:41 PM (GMT -7)   
I think misspriss meant LDN. What is it and why is it hard to get doctors to go along with it?
Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/11/2010 1:49 PM (GMT -7)   
Low Dose Naltrexone (LDN)
It is suppose to help with inflammitory diseases, but from what I understand you cannot take opiod painkillers with it.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 4/11/2010 2:00 PM (GMT -7)   
LDN stands for Low Dose Naltrexone. It modulates the immune system and many people with autoimmune diseases are having success.Most doctors don't believe in it but some are coming around. My 14 yr old crohns daughter began LDN in Feb of 08 and we had great success initially. She grew 4 inches and gained 12 lbs in 4 months. She went almost a year without flaring. That was this past Christmas and she just flared again. It seems to have stopped working. I know that following SCD is strongly recommended as LDN dosen't work if you have yeast overgrowth. That may have been the problem with this last flare as we went on vacation and of course the diet was not followed as strictly. She is presently on prednisone and we will try all over again when she gets down to 10mgs of pred. I think that strict SCD is important with LDN. Go to lowdosenaltrexone.org and read up on it. There is also a yahoo chat site which is very helpfull. There are virtually no side effects with LDN, and it is very cheap, so most people are willing to try it. I would urge you to at least go to the website and research it. Some of the successes are truly amazing! Diana

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/11/2010 2:00 PM (GMT -7)   
So sorry...

LDN is Low Dose Naltrexone (easy to google, look for the domain name ending in .org).

It's an old drug, used originally for drug and alcohol addiction that some brilliant doc figured out in smaller doses helps to support the immune system by blocking opiate receptors, which then increases endorphin production, which help to balance the immune system.

It's been used for MS in the main, though like I said a double bind study, one that includes children is currently being done at Penn state and will be done in July 2010.

Doctor issues are due to the lack of scientific data, I would assume. Like I said I got the Rx from my Rheumatologist and my surgeon agrees that in theory this is worth a try. So not all doctors will be against it, though many will be unaware.

There is an international LDN conference in Glasgow in two weeks, as this drug is useful for many auto-immune diseases and certain cancers. Hopefully word will spread... !

I assume the research that is already out there is of little interest as there's not a lot of money to be made. It's off patent, so a cheap drug. Spending millions on research when that money cannot be recouped is a poor incentive for Big Pharma, the number one contributors of dollars for research.

Why profits are put ahead of human suffering, is a discussion for another place.

misspriss82
Regular Member


Date Joined Mar 2008
Total Posts : 221
   Posted 4/11/2010 4:16 PM (GMT -7)   
oops, I meant, LDN, not LBD (I must have been thinking about a Little Black Dress).

Thanks for the info! I am going to do some research on it!
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010
 
 


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 4/13/2010 8:43 AM (GMT -7)   
I have been taking LDN for about 5 months now (I think). I generally have been doing a lot better compared to my other medications. Every once in a while I flare for a few days, but get better quicker than in the past. Right now my body is going back and forth from feeling OK to sorta bad. I think its mostly my diet and now I am trying to eat better so I feel better.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 9:10 AM (GMT -7)   
CrohnieMan, Thank You for you input.

I have not been Rx'd this by my GI, she doesn't know anything about it. My surgeon is also an intensive care specialist, and is open to the science behind this. It was my Rheumatologist who Rx'd it to me because the crohn's hit my shoulder and the one pain med I take, Toradol, did nothing for the pain. I avoid opiates as I have a fistula, which tore when I mistakenly took a drug containing codien, which gave me an abscess, which then lead to this flare.

When I researched and found it being used for CD, I began to hope for a 2-fer. My shoulder pain was better and then I tore it again when I had to catch myself from falling... sigh.

What does your doc say about this drug? Does s/he see it as a long term thing? Still as far as long term drugs go, not suppressing the immune system seems quiet the bonus.

I am still flaring, but my 3 lb a week weight loss seems to have halted. I had a rough day yesterday, but today is a bit better.

I hope we can stay in touch.

Best,
M.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 4/13/2010 11:13 AM (GMT -7)   

In late December 2009, I began taking 4.9mg of LDN, prescribed by my Florida GI who only has 2 other patients on it and doesn't have alot of information on LDN.  Up until 1 1/2 weeks ago, I was feeling great!  No cramps, no backache, more energy, gained some weight back, only one BM a day although it was always veering toward D.  Now I have some cramping, 2-3 bouts of D a day, lower back pain, dry mouth, weight loss.   I am beginning to get depressed that the LDN is not working and I am going into a flare.  I don't know if I should stop the LDN or if this is just a bump in the road.

I can't find any information on how long LDN keeps working or if it just works for the short term.  Does anyone know how I could find this information?

I take Lialda, Immodium, probiotics, botswellia, seda crohn, assorted vitamins and calcium. 

 

 


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 4/13/2010 11:17 AM (GMT -7)   
MToronto2,

My GI is the one who mentioned it to me. He said my next option was to start biologics since Imuran and Entocort didn't help. He said he did have an "alternate" medicine I could try and asked me to research it some. A week later I called him back and got started on 2mg of LDN. After about 3 months we moved me up to 4mg. For the first two months I did significantly better. I am still doing better, but started to have some small flares so I am watching what I eat (spicy and greasy foods for me). I just started skipping some doses every so often since I read the body may be building up too much LDN and needs time to flush it out.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 4/13/2010 11:20 AM (GMT -7)   
cannynancy,

I've read on a yahoo group that even when taking LDN some people experience some flare ups at some periods. But then goes away. I have just started noticing this as well and it does help to watch what I eat. I was eating bad food again and did well for a while then it caught back up to me. Look up the LDNandIBD yahoo group. Some good information and place to ask questions as well.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 12:35 PM (GMT -7)   
Glad to see peeps posting on this.

My understanding from what I've read is that this drug needs to be started really low and work up to the full dose, which should be 3% of your body weight. For me that's 3mg.

Taking it in liquid from is important too.

The idea that Crohnie Man put forth, skipping doses is interesting, do you have a link for that?

I go to my full dose on thursday. I am down to one biologic, Humira, which I would prefer to avoid if I can.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 4/13/2010 12:41 PM (GMT -7)   
3% of pounds or kilos?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 12:44 PM (GMT -7)   
pounds, sry :)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 4/13/2010 1:40 PM (GMT -7)   
Hi, I have used LDN for more than 3 years. If you are flaring despite of using LDN, you could try to keep a close watch on your diet. You could also use a low dose of prednisone with LDN, when I flare, as I do may be twice a year, I always start with 10 mg of prednisone and I gradually reduce the dose over weeks. You could even stay on 5 mg every second day in the end. Don't rush to stop. Prednisone is not systemic and is not supressing the immune system when used from 10 mg and down, but is still helping to stop a flare very fast. LDN does the rest.

Phd. dr. Jill Smith that is leading the phase II trial at and sponsored by Penn State University let her participants use not more than 10 mg prednisone when the arrive the study. They are also allowed to use Pentasa, Asacol and those medicines in that group. Here's her phase II, now closing in May the 5th, I've been told. To read about what meds she accepts as ok, read
here: http://clinicaltrials.gov/ct2/show/study/NCT00663117

Diet or not:
You don't have to change the diet to use LDN. You just need to be careful and eat healty as you should do else where. Some people choose to use a diet like the SCD or the Makers or other, some people are trying to go gluten free and combine this with LDN. And some does nothing. You have to try yourself what suits you best.

Doses:

LDN is sometimes working at only 3.0 mg, some persons stops at 4,5 mg and I have increased to 6,0 mg and found that to be a proper dose for myself. I am now stable and don't even have minor symptoms as earlier. the first years I used LDN, I was told that 4.5 mg is max dose. Now small trials have found that depending on metabolism (not weight) some need more than 4.5 mg.
I also know that you could start at 4.5 mg the first day, but if you know that you are sensitive to medicines, you could start as slow as 1.5 mg and use a month or more to get to 4.5 mg.

Fistulas/fissures/Abscesses
LDN is also healing those. If you join the yahoo group LDNandIBD (register) and search LDN, you will find 250 Crohns/U.C patients using LDN or considering to use LDN.

I recently found a LDN blog that is really informative:
http://www.ldn-for-crohns.com/

Finally, I would like to suggest something that is working well with LDN: use vitamin D, from Omega 3 or from Cod liver oil capsules. Sit often in the sun, you'll get a lot of vit D for free. ;-)
Vitamin D is reducing inflammations.

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 2:33 PM (GMT -7)   
Bee Sting, You the Crohnie.

Thanks, this is just what I was looking for. I am aware of the study being done at Penn and will keep an eye for the reports from the LDN conference in Glasgow April 27.

Thanks so very much, this is a big help.

BE Well,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 4/13/2010 3:25 PM (GMT -7)   
BeeSting,

Do you know any more specifics on amount for the metabolism? For example, if you have slow metabolism should you take less? Then take more more if you have fast metabolism?

I am curious because the tests my GI did showed I was a slow metabolizer.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 3:42 PM (GMT -7)   
CrohnieMan, I would assume the slower the metabolism the lower the dose. I have a very high metabolism, so I may have to use more, but I'm bumping up slowly so I won't know for a while yet.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 4/13/2010 4:08 PM (GMT -7)   
Thank you to all of you who provided more information on LDN.  I think maybe I am getting a little too impatient with my progress.  I am going to try limiting the refined carbs I eat.  Perhaps that will help.  Does anyone know if there is any danger in trying a dose of 6mg for several days?  Thanks 

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 4:16 PM (GMT -7)   
Canny, have you tried eliminating nightshades, aka, potato, tomato, peppers and eggplant? I ask because while these do not cause inflammation they certainly make it worse. I avoid them when either my eczema (bad bad eczema) or gut flares. I can easily notice their effect when my eczema flares, as it only takes minutes for my symptoms to worsen.. holy itch fest scratchman.

http://nutrition.about.com/od/dietsformedicaldisorders/a/antiinflamfood.htm

I avoid refined carbs, I use raw organic sugar, when I eat it, which isn't much. Since I cannot do whole wheat bread, I trade off between an organic Italian Calebresse bread, unbleached flour and pumpernickle (which I cannot eat all the time as I get sick of the flavour fast). I try not to eat bread too much, but darn I love my toast.

What does of LDN are you on now... whatever it is, I would increase dose by no more than .5mg at a time, at least a week apart. From what I've read this is the safest way to up the dose.

Anyone else?
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


cannynancy
Regular Member


Date Joined Apr 2010
Total Posts : 217
   Posted 4/14/2010 5:44 AM (GMT -7)   

MToronto2-thanks for the information on nightshades.  I do eat potatoes and tomatoes occassionally.  Foods I eat one time don't bother me, but they might bother me the next time.  Does anyone have any suggestions for foods that help keep weight on.  Nutritional drinks, even those that are lactose free cause more D and gas.  I want to give LDN a good try ( I am starting month 4) but I'm beginning to suspect it is not working for me.  Does anyone take Citrucel to help bulk up BMs.  Sorry to be rambling, but I just want to feel better. 


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 4/14/2010 7:11 AM (GMT -7)   
Cannynancy :-).,...ok, I would like to suggest that you register at the LDN and IBD group at yahoo, several long time users are sitting there helping people out. Many of them have had a miserable start to LDN due to a few important facts:
LDN is now and then triggering an underlying candidiasis to overgrow, because (Dr. Mc Candless has explained this to the group, she's a nevrolog leading a research in Mali, Africa on LDN and Aids),
well, she has suggested that there's a shift between the Th1 and Th2 arm in the immune system when starting LDN, this leads to some bacterial overgrowth, and further on (up to 9 - 10 months) reduced symptom. Dr. Mc Candless is also a specialist in her field on autistic kids, and these kids often has gut issues. She learns the parents to avoid Gluten and Casein, and these kids are also using LDN, with great improvements. She has found that some people have to avoid: casein (milk products), gluten, soy and sugar.

Another problem might well be that you should take LDN as a transdermal cream, U.S. pharmacists like Ph.d. Dr. Skip at www.skipspharmacy.com and www.riverpharmacy.com are both compounding it. You could alway make a call to Dr. Skip. (a person that has been researching LDN for years). If you happen to have a sensitive stomach/gut, you will be better off taking LDN transdermal cream. It's easy to take and dose, just rub it on your inner arm wrist every night.

If you're having a hard time with LDN, get yourself tested and if candida IS a problem, LDN won't work untill you have got rid of it. Candidiasis is one the typical problems for many with Crohns, and many of us do not know we have it untill we take the stool tests. If you have candida, you'll find an increase in bathroom visits when using LDN. This person is experienced due to candida, lupus and LDN, read her blog her:
http://healingfromlupus.blogspot.com/2010/02/ldn-versus-candida.html
she's got a lot of knowledge.

Metabolism: If you want to try to reduce or increase your dose, don't use more than 6 mg for a long time as a maximum dose. Then gradually try to increase the dose up to 10 mg. Phd. dr. Jill Smith & al. have said that the max dose COULD be 10 mg for a smaller group, but the average group should stop at 4.5 mg. I personally now use 6.0 mg, and for the first time in more than 3 years I am totally symptom free. I am not sure what kind of metabolism I have, but I have just tried out different doses untill I landed at 6 mg as the best for me.

LDN is anyway a minor dose, at a homeopathic small level, and if you want to try out what suits you best, just do it. I think that lower than 1.5 mg and higher than 10 mg should be avoided.

If you know people with fibromyalgia, , asthma, ME (also called CFS, Cronique Fatique Syndrom), lupus, Crohns arthritis, reumathoid arthritis and MS, be nice and tell them to google LDN. LDN is regulating the immune system, if you want to try LDN it's really worth it. Just don't use it with narcotic pain killers.

Many of us will have some extraintestinal reactions when starting up with LDN. I personally had: joint pains, nauseau, a slight morning headache, and I got a rash. All this during the first 10 days. And of course, the vivid dreams. Most of them amusing. I had joint pain long before diagnosed with Crohns. In my hips, my shoulders, my knees. one week, and then: gone. /Bee

Post Edited (BeeSting) : 4/14/2010 8:38:26 AM (GMT-6)

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