Best Probiotic for chronies

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formedstooler
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 4/7/2010 6:00 PM (GMT -7)   
Hi all,
 
Recently, I was hospitalized again after starting an antibiotic.  Second time in 3 months.  this time instead of assuming it was the crohns docs think I had c-diff.  So they put me on ALOT of flagyl ( ya that was real nice....).  Anyway, I am trying to find out what the best probiotic is.  So many opinions out there on the net and I trust you folks.  So can you all share what you have used and had success with.
 
thanks friends,rolleyes
DX AT 39 (2005)
PENTASA 4000 MG
FOLIC ACID
B12
 
 


Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 4/7/2010 6:20 PM (GMT -7)   
We are doing VSL #3. It has clinical trails to back it's eficiency.
Mom of a 12 year old girl diagnosed on Oct. 2007.
did 6 weeks of Total enteral nutrition with Splash E028 and Vital Jr. (also tied Peptamen) (1900 cal. a day). Eating normally for since Thanksgiving 2009... supplementing with 3 boxes of E028 Splash. Symptom free! Also on Prednisone (5 mg every other day)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: VSL#3/ Omega 3: Coromega/ Vitamin D 2000 IU daily
Warm healing wishes from the Miami beaches....


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 4/7/2010 7:44 PM (GMT -7)   
I make my own yogurt as part of the specific carbohydrate diet - Ellaine believes this is the most potent form of probiotics and it works wonders for me!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/8/2010 6:44 AM (GMT -7)   
I use Primadolphilus Fortify. You can find it in the refrigerated section at your local healthfood store. Others that many on the forum use are VSL#3, Align & Culterelle. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 4/8/2010 9:56 AM (GMT -7)   
I use garden of life primal defense. Not sure if this is the best brand, but it is supposed to be good.
Great thread.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/8/2010 12:45 PM (GMT -7)   
I use Align, but I found through trial and error that some will work for you and others might make you worse. It really is individual. Don't give up on probiotics just because the one you try doesn't seem to work. Give it a few weeks at least to see if it works and then try another. I have tried pretty much all the ones recommended by others here, but found they didn't work for me. So I gave up. Finally my doctor got me to try Align and it worked. I have since found a couple of other brands that seem to work too. Like everything else though, you get what you pay for, so don't go super cheap, go for a good brand and give it a fair shot before moving on to another.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 4/8/2010 1:23 PM (GMT -7)   
I use Digestive Advantage Colon Care (Crohn's and Colitis). Our local grocery stores and pharmacies carry it but I find much better prices online. Good luck with whatever you choose! Sometimes it's trial and error before you find the right one for you.
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 4/8/2010 1:45 PM (GMT -7)   
Hi FSer... smilewinkgrin ...you might want to consider taking one of the brands people are recommending PLUS another like Florastor for its Saccharomyces boulardii. This is a particular strain of beneficial bacteria that has been proven it studies to help fight the recurrence of C.diff infections. Read what Wiki says here....scroll down to "Recurrent C.diff infection":

http://en.wikipedia.org/wiki/Saccharomyces_boulardii

Some doctors will write a prescription for Florastor, or you can just google "saccharomyces boulardii" and lots of different brands will come up. Best I can tell, S.boulardii does not come in a combo probiotic with other strains--at least I've never seen it that way.

I make yogurt and we use different brands of probiotics--VSL#3, Theralac, Solaray, Dr. Michael Murray's...to name a few. They say it's good to have one with lactobacillus acidophilus as a main strain in combination with several other strains. Also, try to find one with at LEAST 10 billion cfu. Good luck!
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 4/8/2010 2:25 PM (GMT -7)   
i use natren's healthy trinity
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil
Remission


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 4/20/2010 5:00 PM (GMT -7)   
Most probiotic supplements are very limited -- only including 1-5 strains (tops), usually starting with Acidophilus.

What you REALLY want are the super expensive ones that contain 10-20 (yes, 20!) different strains. One of the most important is L. Reuteri, which has been shown to reduce intestinal inflammation and thicken the intestinal lining, which can directly alleviate many digestive disease symptoms ("leaking fluid," mucus, bleeding, fissures, "leaky gut" etc).

Probiotics may not "cure" every case, but most people who are taking probiotics don't realize they're not getting a balanced set of strains nor are they getting the most important ones, such as Reuteri.

I take MegaFood brand "MegaFlora," which contains 15 strains:

Bifidobacterium longum
L. Acidophilus & Acidophilus DDS-1 (not sure, but DDS-1 may be a unique strain of acidophilus)
B. iIfantis/B. Lactis
L. Lactis
L. Reuteri
L. Salivarus
S. Thermophilus
L. Pantarum
L. Brevis
B. Bifidum
L. Bulgaricus
L. Casei
L. Rhamnosus

Every single one of these (and more, though these are the most important) is necessary to maintain a functioning GI tract. Leaving ANY of them out -- even though some are more "important" than others -- means you aren't going to get the full benefits.

I know it's frustrating to have to pay so much for these supplements and not have insurance cover any of it....particularly for those of us on SSD. But trust me, these high-end probiotics are worth every penny. You will almost certainly get more benefit per dollar spent than by cheaping out on something that has only Acidophilus and maybe a couple of other strains (almost never Reuteri....that is only present in supplements that approach 50ยข/capsule).
Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.

Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.

Post Edited (exitwound) : 4/20/2010 6:04:56 PM (GMT-6)


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/20/2010 5:25 PM (GMT -7)   
Actually saccharomyces boulardii (florastor) is a yeast (not bacteria) that has shown efficacy against c-diff. This is why it is not part of any other probiotic blends, because it isn't a bacterium. My husband eats 2 servings of SCD yogurt, 2 packets of VSL3, and 3 capsules of florastor everyday. He's had troubles with c-diff, and this is the combination that seems to work to keep c-diff at bay (knock on wood). For some people, this maybe overkill, but it seems to help my husband.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

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