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cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 4/8/2010 10:09 AM (GMT -7)   
What is your experience with Sulfasalazine?  The side effects looked pretty scary.  I don't think I have not taken any medications recently that have not had a list of scary side effects.  I tried to get the dr to take me off predisone, and it was a no go.  She did discuss the Remicade option, but my insurance coverage right now kind of sucks! Did anyone actually have their skin turn yellow/orange?
 
Thanks so much,
 
Cindy

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 4/8/2010 10:27 AM (GMT -7)   

My skin didn't, but my pee did.

The only side effect I remember from when I was on it years ago was extreme fatigue. I could have slept all day.


Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 4/8/2010 10:50 AM (GMT -7)   
hi,
I took the medication for years, and yes my urine turned orange. The other main thing i remembered was the terrible nausea which went on for so long. Eventually the Drs. gave me enteric coated and that helped a lot.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/8/2010 11:10 AM (GMT -7)   
This is one of the oldest Crohns meds out there. Alot of folks have good results with it. All our meds have side effects, shoot just look at the side effects of Tylenol and you would freak out. I took this when first diagnosed and it successfully put in me into remission. I can no longer take it as I am allergic to sulfa meds, but I would give it a shot. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/8/2010 12:40 PM (GMT -7)   
This was the first drug I was ever put on when I was first diagnosed. Back then there really was only Sulfasalazine, Prednisone, Flagyl, and Cipro used for CD on a regular basis, this was only 22 years ago, shows how far we really have come. Any how back to the topic, after about a month I started to have massive headaches and eventually vomiting, turns out I'm allergic to sulfa drugs, so its a no go for me and I was left with prednisone. Still the one and only drug that will stop a flare for me in its tracks.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 4/8/2010 1:18 PM (GMT -7)   
Going a bit off track, but talking about drugs that worked to stop a flare. When i was really ill, (hospitalised about 3 times a year for 1 month each time) I was initially tried on Oral and then IV steroids, neither worked and i always ended up on ACTH injections twice a day, this was all about 20 plus years ago. These injections eventually brought things under control and then i was allowed home on Predniolone. Has anyone else ever been put on this?

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 4/8/2010 1:38 PM (GMT -7)   
Thanks for the input.  I have been on predisone, cipro/flagyl, a host of anti-acid, anti-cholergic,and anti-spasmotics
 along with phenegren for nausea(my life saver!).  I have had problems taking Bactrim in the past which I know is a sulfa based drug.
So far, I feel alittle dizzy & sleepy & have orange pee. 

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 4/9/2010 3:27 AM (GMT -7)   
Cindy,
This is my main CD med & has been for about 4 years now since I had to stop the Remicade treatments. It was also the first drug I was ever given -- back in the dark ages of the early 80s!! I don't have any noticable side effects except if I don't drink enough I get dehydrated. I've been nauseous at times, but since I also have CD in my stomach we can't say for sure which is causing it.

And actually to me, it's one of the least scary drugs I've been given considering what could happen with Remicade & 6mp. JMHO.
 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 4/9/2010 9:08 AM (GMT -7)   
My rheumy put me on it for my arthritis and we had to stop it because it raised my liver enzymes too high (although most meds do).

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 4/9/2010 10:26 AM (GMT -7)   
I started on sulfasalazine way back in 1990 after I was dx'd. I was on it for quite a while before I was switched to Pentasa. My only problem with the azulfidine was the sun sensitivity. I am very pale and sun sensitive to start with...when i took the stuff, I literally could not be in any sun or my skin would burn and sting almost instantly.
I have to say I felt fine on it other than that though.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/9/2010 4:06 PM (GMT -7)   
It has been a wonder drug for my inflammatory arthritis...As to side effects, for me, I've had none...not even the sun sensitivity and I live in a very sunny place(called Valley of the Sun for those of you in know)...

I guess with all meds there are issues...this worked best for me, where Imuran caused pancreatitis in me, and yet other people take it with no ill effects...I hope this help med helps...though for me it helped more for the joint issues than the Crohn's issues.
"The earth laughs in flowers"


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 4/9/2010 4:42 PM (GMT -7)   
Sulfasalazine is the best med I've been on for UC. 
 
I get a little dehydrated now and then, and my skin and eyes are a bit photosensitive.  Other than that, no side effects, not even orange urine.  It has also helped immensely with joint pain. 

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 4/10/2010 7:02 PM (GMT -7)   
So far I don't feel any worse than I have with Flagyl stints.  I do have CD in my stomach, and I am a frequent user of phenegren which I call my miracle pill. Nausea and severe diarrhea all the time with no pain was my first real symptoms of this disease 20 years ago.  I also have severe joint pain with a flare.  I am hopeful.  I was worried since Bactrim made me vomit. I have noticed the pain & bloating has gotten better immediately. I did notice when I was driving today that I was oversensitive to light. I have been overly sleepy as well. Thanks guys for all your help.  I keep recommending this board to my oldest son who is in college and has Chrones.  He called me this evening and is really flaring.  I know Asacol has worked well for him in the past, and he was asymptomatic for a while.  He does not not like to talk about the disease.  He also was born with a rotated colon(backward), but it functions normally.

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 4/11/2010 1:12 PM (GMT -7)   
I have been on Sulfasalazine for about 2 years. Side effects have been orange pee, slight headache, and nausea when in the sun for too long. Other than that it has not been a problem for me. Good luck to you.
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