Update with the new GI

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Regular Member

Date Joined Feb 2010
Total Posts : 403
   Posted 4/9/2010 9:42 PM (GMT -6)   
I had my appointment today..so small update.... the new dr needs time and more information before we can move forward...I have a followup in two weeks..I found out today that I have lymphangiectasia in addition to the crohn's , I will learn more about this as well.. The new GI just needs time to go through all of the tests.. I kinda dumped three months worth of tests on his desk.. he said I gave him homework... =)

I am ready to move forward and admittedly am anxious to know where we go from here...I guess I thought I would have answers today.. I didn't even think that he would need time... in hindsight... of course he does..

has anyone heard of lymphangiectasia?

thanks for everything...
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Entocort, Colestipol, Propranolol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 4/10/2010 7:14 AM (GMT -6)   
Hi Junerainbow,

I think that is a good sign. Some doctors don't like to accept tests from other doctors, and they want you to take them all again. Sounds like he wants to consider all the information available rather than guess. I hope he finds the answer for you!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 4/10/2010 3:42 PM (GMT -6)   
I'm sorry you have more waiting to do, but it sounds like he wants to take his time to go through everything and not just rush. That sounds like a good doctor who cares. I know its hard to wait, but in the grand scheme of life, 2 weeks isn't very long.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

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