Crohn's Flare?

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RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 4/11/2010 11:25 AM (GMT -7)   
Have any of you had a crohn's flare with all the blood work looking normal?  I have been having severe D since Tues. and today is Sun. Went to GI on Thurs where blood work was done and stool checked for c-diff. My CRP was normal, platelets normal, the only abnormal value was on my urinalysis where I had some ketones from starting dehyrating. I am not able to eat anything except crackers and maybe grits (just tried). Keeping liquids down but Pedialyte just too sweet and makes me nausea. I have been nauseated other times as well. No vomiting. My stomach hurts off and on (sometimes bad) but not like it usually does during a flare. However, I don't have anything on my stomach that would hurt as when food passes through digestion. The c-diff came back neg. Any other suggestions? I have been lying on the couch all week with no energy to do anything. Plus I keep feeling like I have D even when sometimes nothing comes out.. Basically this feeling is all the time today. I do have mucous in my stool, aches in joints and back, and low-grade fevers. Have also been having night sweats really bad. Told MD this but she seemed not impressed. No xrays have been taken.  Thanks for your help.
36 yo--Crohns since 2000,  Ileocecectomy in 2009 with post surgical wound infection. MRSA infection 2008 x 2 and 2009 x2. Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Humira, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Zinc, and Multivits   
 
RxCrohnie 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/11/2010 7:16 PM (GMT -7)   
Yep, I have some normal bloods, but still been pretty sick. Keep telling them. You know what your body is telling you!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 4/11/2010 7:34 PM (GMT -7)   
ditto dunny
 


becoolhoneybunny
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/12/2010 6:04 AM (GMT -7)   
I feel like I just read my own post. I'm going through the same symptoms, which are new to me. I was diagnosed in 2007, but never had extreme fatigue, nausea, or vomiting until 4 weeks ago. I went to see my doctor, but my bloodwork was fine so they did nothing else for me. I was just told that it's because I'm not on medication. My pediatrician won't give me an ok to take any until I'm finished breastfeeding, and I can't seem to wean the baby. Anyway, out of the past four weeks I've had maybe 3 days when I felt good enough to get off the couch or not sleep 12 hours a day. I feel like something needs to be done, I just don't know what. Oh, and yes, I also have been achy and having mild fevers. The only thing my doctor was slightly concerned about was rheumatoid arthritis, but I haven't heard back since they said I was referred somewhere.

RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 4/12/2010 1:25 PM (GMT -7)   
Thanks for the replies. Can you believe she called today and wants me to use Imodium AD. Like that will work. I did try it and tried to eat lunch. Guess what?? The big D came and came again. Then her nurse called and told me to get Dannon Active and eat twice daily. I told her that I couldn't even eat rice without going to the bathroom like crazy. I don't think she is taking me seriously. She even said she was going to have me see my regular MD. Now come on, she is the GI specialist. What is my regular Doc going to do? I just don't know what else to do because my regular Md always refers everything to her. Sorry to vent. I will try to get my GI to listen more. Her nurse may not be telling her everything or missing parts of what I say.
37 yo--Crohns since 2000,  Ileocecectomy in 2009 with post surgical wound infection. Surgery again in 2010 to correct wound inf., found MRSA and staples which never dissolved from 3/09, removed a few in. of colon.  Also, MRSA infection 2008 x 2 and 2009. Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Humira, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, and Multivits   
 
RxCrohnie 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/12/2010 3:27 PM (GMT -7)   
Mmmm I think I would look for a new Gastro, IMHO!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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