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imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/12/2010 9:53 AM (GMT -7)   
Well, I have an appointment with my GI today...and I have a nagging feeling that he's going to want to admit me.

I haven't been able to eat without throwing up or having horrible abdominal pain for the last 2 weeks...and since the last time I saw him (a month ago), I've lost over 20 pounds. I think I'm pretty malnourished at this point- my vision keeps getting really blurry, my chest hurts, my heartbeat is really fast (it's 120- at the lowest), I get light headed when I stand, my joints ache so badly that when I wake up in the morning and go to stand up, I fall to the floor because it hurts so much...my muscles ache...all of this on top of my abdominal pain. I've been drinking Ensure every day, but I throw up at least half of it...I'm so tired. Tired of this and being given the run around about my diagnosis.
He had me stop all of my medications so I'm on nothing right now.

Just wish me luck...any one else go through this?
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/12/2010 10:27 AM (GMT -7)   
imissicecream,

I have, I would say most of us here have. You are not alone, though our pain does nothing to ease yours.

If your GI wants to admit you, let him. Keep your mind open and go with your best instincts.

If surgery is suggested, consider it. If they suggest an ostomy, consider this too. A bag is by no means the worst thing. You are living the worst right now.

Let us know how it goes...

Wishing you more than luck, I wish you healing.

PS I miss popcorn and apples.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 4/12/2010 10:44 AM (GMT -7)   
Good Luck! It sounds like you need to be admitted, not that that make it easier, being in the hospital sucks, but they can get you on IV's and start getting you feeling better.

I hope everything works out for you!!
Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/12/2010 11:04 AM (GMT -7)   
I agree I think the hospital is exactly where you need to be right now. I will keep you in my prayers that they get you figured out and feeling better soon. Giant Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

chatter
Regular Member


Date Joined Oct 2009
Total Posts : 51
   Posted 4/12/2010 11:44 AM (GMT -7)   
You sound so miserable, be assured we are all sympathising with you because most of us have been there at some time or other. If you get a chance to be admitted take that chance, they will be able to get your energy levels up and you will be able to rest. Also gives the docs an opportunity to see exactly how you are affected. Wishing you the best of luck and a quick recovery.
Teresa

imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/13/2010 11:51 AM (GMT -7)   
Thanks everyone!

I, in fact, am admitted at the moment. My doctor says he has absolutely no idea what is wrong with me...he doesn't think it's Crohn's at all. I think he's pretty qualified...he was voted the CCFA physician of the year a while ago.
I had an endoscopy this morning and it looked "perfect"...how the heck can it look perfect when I throw up EVERY day?! How can my colonoscopy look normal when I'm having BMs full of bloody mucus?
I'm very confused. I've lost 20 pounds in only a month...I can't even eat.
I just want to stay in the hospital until they find out what is wrong with me...I'm tired of waiting and waiting for tests and results. I'm tired of being miserable at home.

Thank you everyone for understanding.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 4/13/2010 12:34 PM (GMT -7)   
If they still haven't done the tests that were suggested to you in earlier threads, please suggest them. Good luck :)
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 12:37 PM (GMT -7)   
Did they not also suggest that you may have Celiac disease? Have you gone entirely gluten free yet? Apparently Cel and CD have similar symptoms...?
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/13/2010 12:37 PM (GMT -7)   
I know being in the hospital is miserable, but remember that often being in the hospital gets you the tests you need a lot faster than being an outpatient so it is worth it in a case like yours when they have no idea what is going on. Plus you have the added bonus of people who can care for you when you are at your weakest. Let them. The nurses can be wonderful at taking care of you at just the right moment when you think you cant stand it anymore. They know just how to tuck a pillow in behind your back or under your knees. Don't hesitate to ask for what you need. If you want something to help with the nausea, ask, sleep, ask, anxiety, ask.....

I will be thinking of you and hope that they can get you sorted out soon and that you will be feeling better soon. ((((((HUGS))))))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 12:38 PM (GMT -7)   
PS. Still wishing you the best!
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/13/2010 4:29 PM (GMT -7)   
I've been tested for Celiac's and everything else under the sun that they thought it might be. Finally though, I have a doctor who says "Just because we're not finding something doesn't mean there isn't anything there". At least I'm not being told that it's anxiety!
And yes, they have done a long endoscopy, but no pill cam in sight yet. I'm at the Cleveland Clinic, so they have some pretty cool technology...such as this MRI I'm getting tonight, which my GI said is better than a pill cam. My hospital at home was clueless as to how to do an abdominal MRI (ugh, typical).
I just want them to see SOMETHING on the MRI. I don't even care what it is. Just something that proves there is something wrong....or leads them in the right direction.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/14/2010 8:18 AM (GMT -7)   
Good luck sweetie!! Let us know what this test shows, Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/15/2010 7:28 AM (GMT -7)   
Grrrr...well, I just talked to a doctor (not the one who has been following my case closely)...and he said the biopsies came back from my EGD and there are inflamed parts.
His explanation for this was IBS. I'm about sick of hearing that I have IBS when I clearly have fevers, joint pain and blood in my stool. How can he even say it's IBS when there's inflammation present?
His other explaination was Celiac's. I've been on SCD for about 2 months, and it helped somewhat, but didn't clear up all of my symptoms. I went off of it because I knew they wanted to test for Celiac's. Well, the blood test came back negative. AHHHH! I'm still waiting for my MRI test results and I just hope so much that it shows something. Anything, actually.

I'll post what those are later, I'm just annoyed with the IBS thing.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 4/15/2010 8:53 AM (GMT -7)   
Hmm...that's strange I didn't know that IBS had an inflammatory component? Crohn's disease is often misdiagnosed. You need to follow up with the first doctor who is aware of your condition.


imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/15/2010 9:39 AM (GMT -7)   
Well, I just talked to the doctors who are more familiar with my case. They think I have Lymes Disease and are going to do a blood test for it now. I also have SEVERE milk allergies/lactose intolerance. Nice to know. Although I knew that about the milk before...and I was following the SCD. Ah well. I'm for sure going back on SCD when I get home.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/15/2010 12:05 PM (GMT -7)   
Lyme disease is a whole 'nother kettle of fish, make sure you get on some forums with that. And if you need any more info, post something here. I've a friend whose dealt with it for years, so she'll have much info for you.

Best of luck, hugs,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


imissicecream
Regular Member


Date Joined Oct 2009
Total Posts : 157
   Posted 4/15/2010 3:05 PM (GMT -7)   
Oh, and on top of all of this- I have a C. diff infection! They just came in to tell me this. I have to stay here for at least 3 more days...all quarantined off.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Currently taking: Entocort 6mg
Off nearly all meds so the doctor can re-evaluate my diagnosis. Ugh.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8546
   Posted 4/15/2010 3:24 PM (GMT -7)   
Could it have been c.diff making you feel this way for all this time? Anyway, good luck and hope you get well soon.

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/15/2010 4:12 PM (GMT -7)   
Wouldn't it be awesome if you felt better in a week??

I sure am hoping you are :)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

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