Do I have Crohn's??

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ctv
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/12/2010 2:16 PM (GMT -7)   
Life seems to have gone upside down lately. Here is my story.

I am a healthy, athletic 37 yr old male. about a month ago, I woke up one morning with stomach pain, it kept getting worse and worse. I thought it was the stomach flu or something I ate the day before. I went to bed to just rest. I couldn't sleep as the pain kept getting worse. I decided to go to the doctor's office. They did a EKG and it was normal. They touched my stomach which was so painful to just the slightest touch with most of it being the lower right. They thought I had appendicitis and told me to go to ER. I went to ER where they did a CT scan which showed my appendix to be fine but my large intestine was inflamed. I was admitted and spent 4 days in the hospital on IV with antibiotics and a ton of tests. All tests came back negative except my blood work showed inflammation in my body. They did a colonoscopy on me and did a biopsy which came back negative. The colonoscopy showed that my large intestine was inflamed. I was finally released as my stomach got better. They had me on Cipro, Pentasa, and Flagyl. I stopped the Cipro and Flagyl as it was making me so weak and tired. Two weeks later I had a barium xray which also showed my small intestine near the ileum inflamed. My doctor doesn't know but thinks I have Crohn's. He wants to put me on steroids or 6MP. I am questioning this saying he doesn't know for sure what I have. He says based on the symptoms and what he sees he is leaning towards Crohn's...I am just wondering how this can just come on like this out of no where.

Any suggestions? Do Probiotics help and if so which ones, and where do I get them.

Thanks

Post Edited By Moderator (Nanners) : 4/13/2010 7:47:20 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/12/2010 2:31 PM (GMT -7)   
yes it can come on just out of nowhere but generally people suffer for years without being dx. I am always a big fan of getting a second opinion and a pill camera done.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/12/2010 3:52 PM (GMT -7)   
My major symptoms came out of nowhere but I had been having mild symptoms for 8 years that was written off as IBS. Multiple bowel movements, off and on cramping and I had a few allnight bouts of pain which felt like I was giving birth with throwing up and cold sweats. We now know those were actually crohns flares. So I think for the most part you would have had some symptoms but I suppose it is possible. I do know that my GI ran multiple tests on me because he wanted to be sure it was drohns he was treating. He did not just want to throw me on some drugs that I did not need. I would definitely want some follow up tests. My dr ordered and immunoassay analyte and immunofluorescent study on me and that was what helped him dx me along with a colonoscopy, abdominal ultrasound and barium swallow.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8581
   Posted 4/12/2010 3:55 PM (GMT -7)   
It can come on out of nowhere. It did so for me a couple of days after Christmas one year. I got diarrhoea and naturally put it down to too much rich food over Christmas, but the diarrhoea never cleared up, so three weeks later I went to the doctor. After the usual tests, I got my diagnosis. Just like that. Secretly I didn't really believe it was Crohn's and thought the diarrhoea would just go away at some point and never return, and that would be that. Ah, such innocence. Such merry, trilling, youthful.... Sorry. Got a bit carried away there.

On a serious note, it sounds quite likely to me that you have Crohn's, but obviously I can't proclaim with confidence that you do. I'd go with your doctor's opinion for now and begin a treatment regime because, if it's Crohn's, you don't want to go leaving it untreated long-term. Steroids are for the short-term only and their effect doesn't last once you stop taking taking them, but they do work immediately. In the meantime, while you're tapering off steroids, a long-term maintenance med is usually prescribed - 6MP is one of them. Bit surprised your doctor suggested that, as it seems a tad heavy at this stage. It's not the most powerful Crohn's drug there is, but it's still quite a powerful immunesuppressant. In mild to moderate cases of Crohn's, the 5-ASA drugs are normally the first line of attack - they're anti-inflammatories rather than immunesuppressants, thus milder. Two things to be said about that: 1) it seems to be becoming far more common for doctors to skip the 5-ASAs with new patients in favour of jumping straight to the middle or big guns eg 6MP, Imuran, Remicade, Humira. 2) the immunesupressants are more effective at treating Crohn's than the anti-inflammatories, so maybe that's why.

As for probiotics, I don't really know a lot about them to be honest, but many on this board take them and I'm sure will give advice. One brand which seems to be top dog in the probiotic world is VSL#3.

Phew. Tired myself out writing this post... skull

ctv
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/12/2010 11:24 PM (GMT -7)   
Thank you all. The one thing I forgot to mention was that 1 1/2 years ago I had a week of stomach cramping/diarreha. Was in bed for a week. Did blood work tests and came back negative. Did CT scan and it showed mild inflammation of appendix. They thought it might be appendicitis. Same GI did an endoscopy, did a biopsy (which was negative) and found nothing except slight inflammation. Everyone teed this up as a virus as it went a way after a week. Because of the episode above and this past history he is leaning towards Crohn's Maybe I am just in denial. Been doing a ton of research, besides the stomach pain this month, I don't have any other symptoms.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/13/2010 6:53 AM (GMT -7)   
I think I would request a pill cam as MMMNavy suggested. It can see Crohns where the scopes can't reach. If you do the pill cam and nothing shows up there, then I think you can say you don't have Crohns. But for now its best you find out one way or the other. This is a chronic and incurable bowel disease and you don't want it to go untreated. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ctv
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/13/2010 10:39 PM (GMT -7)   
I want to thank everyone here. This has been a bit scary. I am not new to taking on challenges. I have been a Type I diabetic since I was 2 years old. I don't even know I have it as I have been healthy and fit since being a kid and know how to take care of it.

My concern is the Dr. says he thinks it is Crohn's, but there is no definitive test that says YES, you have Crohn's. I am meeting with him (he is the GI at my facility) on Thursday and he wants to discuss me getting treatment 6MP or steroids (which throw diabetics sugar levels into havoc).

What other tests should I ask for besides what you all posted? I want to know for sure what I have before we start treatment. I am also getting a second opinion from another doctor that my former co-worker recommended (my coworker has had Crohn's since he was 8 and is now 47).

I stopped taking Pentasa a day ago to see if that was what was causing white beads in my stool. Got major abdominal pain this morning and all day. Went back on Pentasa, pain has gone down.

Any inputs and help appreciated.

Symptoms Currently
Pain randomly for a day here or there
soft stool, but only after I eat
loss of appetite
lost 18 lbs in last month since hospital stay

Thanks
C

Post Edited (ctv) : 4/14/2010 12:50:02 AM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/14/2010 8:07 AM (GMT -7)   
The white beads in your poop from the Pentasa is perfectly normal. The med dissolves in the intestinal tract, and the beads are just the shells that realeased the med. I think the Pill cam is the best test out there. It shows the disease in areas the scopes can't reach. Another good test is the CT Enterograhy. Have you had that one? Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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