Colon Transplant

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gimike35
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 12:21 AM (GMT -6)   
 
   Good day all... Been quite a while since i last posted something, but thought i would shoot this idea past y'all....  In nov of 09 i had the rest of my colon removd due to crohns leaving me with an illeostomy and all its glory{ha ha]... Had a dream the other night that i had a colon transplant and it was if i had never had crohns. So naturally i began to wonder does this really exist. I love the fact that im not miserable anymore, but im always wondering if there is something better than what i have now...

gimike35
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 12:55 AM (GMT -6)   
Sorry Nanners... Forgot to re-intruduce myself. Was known as Southpaw75 in the past. Dx'd w/crohns Jan 00. Past meds were pred, 6mp, immuran, asacol, remicade, humira, several types of probiotics, lots of vitimins, folic acid, and pain management.... have had three peri-rectal bypasses, 4 strictures, 2 resections, and 1 illeostomy. Lots of fun that crohns has afforded me in 15 yrs. Also have been dx'd with mild bi-polar, fibromayalgia, panniculitis, and pyro-gangrenoesum... last one really sux, have to wear jeans evrywhere i go in public plus i have a ventral hernia the size of a softball that will put me under the knife once again next month...

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 5958
   Posted 4/13/2010 2:39 AM (GMT -6)   
small bowel , yes, colon i dont think so.. plus you have to be near death to get the small bowel anyway.
randynoguts 



     http://www.geocities.com/randynogutsweb/


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 4/13/2010 6:58 AM (GMT -6)   
This is funny...only because at one point I was thinking the same thing.  I would think this would be a fairly simple procedure and wonder why they don't do it? 

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily, Loperamide HCL - 2mg every other day


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/13/2010 7:15 AM (GMT -6)   
My husband just doesn't understand why they can't put something in the entire intestinal track, similar I assume to what they do to blocked arteries, to make them stay clear and not allow the disease to take over. Of course he's an engineer not a doctor, but I do love the fact that he's thought this through and would like to try to make me better. Maybe when he's done at his real job and has spare time on his hands he can get to work on this. yeah
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/13/2010 8:07 AM (GMT -6)   
Unlike the kidney and the heart, the intestinal tract is but one part of the digestive system, a delicate system despite all it's hard work. What your talking about here is a transplant of a part of the system, not the whole.

Not only is the digestive system, then, huge, esophogus to anus, including the liver, pancreas and spleen, it interacts with the outside world, like our skin (doctor's consider the digestive system outside the body), it is full of bacteria and each of us have our own garden. So to take out one piece and put in another comes with a host of infection issues, on top of the usual transplant issues, and since the later must be treated with high octane immuno suppressants, the prior is more likely and more deadly.

I heard/read somewhere that transplants of the entire digestive system are being done, in part because of the gut bacteria issues.

I lived with an illeostomy for 4 years, there are days, like now -- I'm flaring -- when I miss it, even though I know a pouch does not prevent further CD attacks.

Yes, it has to be attended to, but hey, at least it's not dialysis.

Here's a rather nicely written article that gives some info on the complexities of bowel transplant. http://www.theage.com.au/national/intestinal-fortitude-required-20091113-ieta.html

Having watched friends go through kidney transplant, I'd rather have a pouch that have to take all the drugs, which have much higher risks and side effects than a pouch does.

We are lucky that some one figured out we can live with these attachments.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17880
   Posted 4/13/2010 12:10 PM (GMT -6)   
Intestinal transplants have been done but have failed because the disease returns...it's a very expensive, timely and dangerous prodedure and a life long commitment of anti-rejection meds, and it doesn't work in the long run because afterall it's our messed up immune system that causes the disease specifically in our intestines, fix the immune system, fix the disease.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 2855
   Posted 4/13/2010 1:02 PM (GMT -6)   
Having read the Op reports and seen the current outcomes of visceral transplants, I would never go through one. The last expert physician I spoke with on the subject said that it is still being considered for those with short bowel syndrome, but only for those in the most dire situations (as said above).
The biggest problem that I have seen in the OP reports I have read is not from the transplant itself, but from complications. The risk of infection in multiple systems is huge. Also the problem of moving so much around to get to the anastamoses leads to complications with other organs.
I work with our organ transplant product and spoke with the facility network creators we use. Most of them agree that a few more facilities are being approved as eligible based on a few better outcomes. However, they would not send their loved ones for the transplant as the best surgeons still see many risks. They do feel that this is a possibility in the distant future but it would not be to cure a disease but to repair past surgeries realting to a disease....i.e as said above to fix past operations that resulted in short bowel.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 4/13/2010 6:03 PM (GMT -6)   
I googled a bit and it appears they'll only consider doing transplants of the small intestine.
Cimzia, Asacol


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 4/13/2010 9:37 PM (GMT -6)   
My cousin was just telling me a while ago that she saw a show that they were talking about this. Apparently they had it on the news about a person having a colon transplant and doing so well after it....but I wondered...wouldn't your immune system attack you at some point again anyway?
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17880
   Posted 4/14/2010 12:19 AM (GMT -6)   
Yes bar, it would attack again at some point, as I mentioned above "fix the immune system, fixes the disease" a transplant would merely be a short-term bandaid, not a life-long cure by any means. The risk of death is quite high with any kind of transplantation from rejection/infection alone.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 02, 2014 1:59 PM (GMT -6)
There are a total of 2,207,370 posts in 245,701 threads.
View Active Threads


Who's Online
This forum has 155514 registered members. Please welcome our newest member, Mandella.
425 Guest(s), 26 Registered Member(s) are currently online.  Details
foretexas, Mandella, greyeyedbeauty, Loring, Cavalier9, Pirouette, lamasu, Dixie6, kcat11, Backtolife, Revive, sapoho, BillyBob@388, Flip Flop, Sherrine, Mauvaise foi, Sadolderman, ninjakiller1, couchtater, SharonZ, ak angel, VeganOstomy, Deviantstoma, Chrissysoul, Longhornsfan42, UCandMe


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer