First hospitalization since diagnosis

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Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 4/12/2010 10:35 PM (GMT -7)   
So...

I haven't been around much due to no Internet. about two weeks ago, I was hospitalized. It was supposed to only be an overnight 'cause my potassium levels were dangerously low "heart attack" low. The Crohns flare that came with it...was no picnic. Dilaudid shots every three hours, IV anti-inflammatory meds AND IV prednisone twice a day as well as oral pain killers and my usual mix of Pentasa, Lyrica, Cymbalta, and multi-vitamin. They also kept me on potassium chloride IV drip. I was there from a Monday night through to Friday.

Now all I want is scrambled eggs on toast, Jell-O, and popsickles. LOTS and lots of popsickles. Grape, cherry, and orange popsickles. They ran a CT scan and saw that I had ulcers from my stomach on through my entire tract. I was told it would take months to heal since it took months to make them. I didn't even realize they were there and that bad in the first place. Now, I'm all swollen. Yay prednisone. At least I only had the one IV and I'm home now to enjoy my birthday on Friday. Golly, I'm tired of all this.
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 4/12/2010 11:15 PM (GMT -7)   
Erm...also should mention that for about four days before I was hospitalized, I was having pains...right below ribcage in the center and trailing off to the left of my body. As soon as I started vomiting and having D at the same time, I knew I needed serious help at a hospital. Actually, I knew it because of everything I've learned here. Plus, the way the pain was going, it kind of scared me. No blood in the stool or vomit though, just agony in the body. Now, they want me to see a specialist which I can't afford for the GI. Plus, I'm supposed to follow-up with my regular doc. I was kinda mad about missing out on the pain management specialist that I was supposed to see that week. Now, I have to make a new appointment, when I have the time and money. I'm kinda glad that my insurance hasn't hassled me about the week-long stay though. I just wish so much sometimes that none of this was happening to me.

I'm depressed all the time. I'm tired all the time. I'm in pain all the time. It wakes me up and the constant throbbing puts me to sleep as well but that's due to the fibro and not the Crohns mostly. Also on this new medicine for stomach cramping called Hyscyamine. Anyone else ever been on it?
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/13/2010 6:47 AM (GMT -7)   
Yes, hycosamine is an anti-spasmodic. I hope it helps you. Sorry you are feeling so badly. Hopefully the meds will kick in soon for you. Looks like you take some antidepressants. After being sick and getting well, I realize what I thought was depression was actually just being very sick and having malaise. I think having inflammation in your body makes you feel so bad physically, you also feel a type of depression. Does that make sense? Anyway, when I am feeling better and inflammation is gone, I don't feel that "depression." Hope you feel better soon!!
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/13/2010 6:57 AM (GMT -7)   
Joie1 were you on maintainence meds before this most recent flare? If not, you really need to stay on your meds. My non compliance with following my doctors orders and taking my maintainence meds ended up causing me to have an emergency resection and it took forever to get my Crohns back under control. Make sure you stay on those maintainence meds this time, so you don't have a repeat. I hope they get you feeling better soon. Big Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 4/23/2010 11:04 AM (GMT -7)   
Hey Nanners, I'm on Pentasa. That's BEEN the maintenance med for the Crohns.

Meanwhile, today...started my period...ahhh...but last night and through to today; I've got...that burning tummy again. Left work early because when I used the restroom, I saw bloody stool for the first time in the nature of my disease. I finished the prednisone taper last Saturday. So, I've only been out of the hospital for umm, two-three weeks and it looks sort of like I'll be going back tonight if the pain doesn't calm down.
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

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