perianal crohn's

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defa
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/13/2010 6:23 AM (GMT -7)   
hi im new to all this, and just want to hear from people who have my disease.
ive had a skin tag for about 10 years, i finally gave in and had it removed beacuse it was so itchy.  since my surgery 4 months ago i have now got 6 grown back....... when they looked at the skin tag they found it had crohns cells.  ive since been diagnosied with perianal crohn's.  i have fissures, itching, bloated, excess 'wind', stomach cramps (which are mild, except the odd one that feels like ive been stabbed and last about 20 seconds),  constipation, diarrhea (maybe 2/3 times a month) and then theres the dreaded skin tags. 
i always thought these symptoms where just part of normal life, but i now know its part of a disease!
i have asked to have these skin tags removed, they are really uncomfortable- my surgeon is referring me to see the gastroenterologist, for further advice and investigation.
does anyone know if i have these removed- will they just keep growning back??
thank u for your help in advanced
defa
 

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 4/13/2010 6:38 AM (GMT -7)   
I am sure pb4 will be by soon with her story...listen to her!
I have many tags of various sizes and have been told MANY times not to have them removed. The healing will take an extremely long time if it ever heals. I would discuss with your doc meds that would help in your disease control. My tags are a great indicator of the severity of my disease at the time. The tags get larger and cause more pain when I am flaring and tend to shrink some and are less of a problem when i am doing well.
For the itching....a lot of people on here and in my ccfa support group recommended calmoseptine. It has been a wonder for me! i highly recommend you order some (I go to the drugstore and they order it for me with no shipping cost, it is an over the counter med but not regularly stocked)
Finally...sitz bathes and a handheld shower head are my best friends to alleviate more of the pain and itching involved with my tags. Keeping the tags wrapped in gauze to absorb moisture during the day has also helped.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/13/2010 6:39 AM (GMT -7)   
We had one member who had them removed while she was flaring and she has regretted it ever since as it has caused her alot of problems. She just recently lost her Mom, so not sure if she is posting right now or not. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/13/2010 7:08 AM (GMT -7)   

Hello Defa,

Welcome to the Forum!  I agree with what the others said.  Skin tags seem to get worse when your disease is active.  Removing them during an active time is just asking for trouble.   I had a few very small ones removed by a very experienced colo-rectal surgeon and had no huge problem, but everyone is different.  I strongly suggest you only see doctors who are very experienced with Crohn's -- GI docs and colo-rectal surgeons rather than general surgeons.  While people without Crohn's get skin tags, treatment for people with Crohn's is different and needs to be handled by a specialist.

As Habs mentioned, reducing irritation from toliet paper helps -- using a hand-held shower sprayer not only reduces irritation but gets you nice and clean.  Sitz baths help reduce inflammation too -- 15 minutes in a hot tub (not the type that sits on the toilet).  See a GI as soon as you can because there are various cremes and medications that can help reduce inflammation in your rectal area, and help heal fissues and reduce itching.

Take care!



Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 4/13/2010 8:19 AM (GMT -7)   
I just yesterday had an appointment with my colo-rectal surgeon because I knew I had "something" there and suspected it wasn't a hemmie. I had originally called my GI and he referred me to my surgeon. Turns out it's a skin tag. Luckily it's very small, apparently, so I was relieved to hear that. My surgeon told me she's not going to do anything about it ~ and said it would just make matters worse if she did. So I'm sure it depends on your surgeon as to whether or not they take action.
 
Personally, I find it a little hard to keep the area clean with the skin tag there ~ so I have been using Prep H wipes after a BM which seems to help get rid of the residual stuff.
 
Best of luck to you!
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/13/2010 10:18 AM (GMT -7)   
Thanks Habs and Nanners....

Yes I had surgery done on mine, they actually banded them and because they thought I had hemmies, they should have just shrunk up, but they didn't, they remained in a flare ever since and being large and hard (flared) they are quite bothersome for me...they did the banding while they were flaring so that's why they've continued to be in a flare ever since causing me internal issues with my CD not being able to go into full remission (which I've never been in my 19 yrs of having this disease).

Getting them cut off (especially if they are in a flare (large and hard) can result in them never healing and having a constant "open wound" which will often be infected considering the area passes bacterial filled stool. Apparently as long as they are small and soft they can be snipped off, but as you've experianced yourself, it doesn't stop new ones from appearing...docs like to leave them alone rather than you risk having infections indefinitely or risking the development of a possible fistula forming.

I was told to do lots of sitz baths daily and to keep the area as dry and clean as possible...I've also been told that a script of cortifoam can shrink them down under normal circumstances (not in my case as the damage has already been done, missed the boat on that one)...so maybe ask your doc for cortifoam enema to help shrink them down, it seems that it works for some patients dealing with perianal crohn's skin tags.

Good luck
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Shany
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 11:36 AM (GMT -7)   
I was diagnosed with Crohn's in December. All of these strange things I've lived with like the skin tags, fissures, abdominal cramping, etc. finally make sense to me now, too. I just had several huge skin tags surgically removed by a colo-rectal surgeon on Feb. 22. Glad I did it! Recovery was no big deal ... maybe two weeks. I took Vicodin for the pain, stool softeners, used moist/wet wipes, and showered to cleanse after every BM. I realize the skin tags will grow back. But I won't hesitate for a second to go back into the operating room to have them cut off again if/when it needs to be done. The recovery was no worse than the constant irritation, itching, and pain I lived with for years.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 4/13/2010 12:28 PM (GMT -7)   
There's a difference between skin tags left behind from hemmies and perianal crohn's skin tags (aka; elephant ears)...I have true perianal crohn's skin tags, I've never had itching issues with them, just pain...perianal skin tags are diseased tissue, skin tags left behind from previous hemmies are not and that's the big difference between the 2...
 
here is a link....the first set of pics is of actual hemmies, the pic below is of perianal crohn's skin tags, there is a noticable difference between the 2....
 


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


defa
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/13/2010 12:59 PM (GMT -7)   
i also have true perianal skin tags. before i had it removed i thought it was just a lump, but when it was sent away they found crohns disease cells in it. and thats when things went down hill....... mine are itchy, and at times feel like they have a knife stuck in them. although i had all my symptoms prior to removal, i thought it was 'normal'. ive learnt to 'live' with the disease, but things are getting worse. i wanted to ask it people who are diagnosed with PCD, later develop it further up, i havent really suffered with diarrhea and wanted to know if there is a possibility things could/would get worse........ but the last 2 days have answered that..... cramps worse and diahrrea. i fly to australia in a month, and im starting to painic!!!
Shany, my first removal, op was ok, recovery good, until i got a really bad infection in the wound, but once it was healed it was brilliant, for a week, then they started to grow back. now i have 6, and possibly more growning, i would also have them removed again.
i feel positively sick today, is this also a new crohnie symptom??
thank u so much, its so good to talk to people who also suffer like i do- i dont feel so allien!!!
xxx

denoli82
Regular Member


Date Joined Apr 2010
Total Posts : 35
   Posted 4/13/2010 3:09 PM (GMT -7)   
When yall refer to "skin tags", do you mean like a small wart or tiny growth? A friend of mine gets these from time to time and swears by apple cidar vinegear and tea tree oil, used in combination with one another. They say within a few days the tag simply falls off. Hope this info was helpful.

Shany
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 4:05 PM (GMT -7)   
Mine were definitely skin tags. Before my first examination with the surgeon, I told him that I had severe external hemorrhoids. He very quickly corrected me as soon as he looked at them and said they were not that at all but were skin tags that are common with Crohn's patients. That would explain why all those hemorrhoid treatments I tried never worked, which frustrated me to no end. I felt vindicated when I threw all that stuff in the trash just before my surgery. 'Elephant ears' is a great way to describe them as that is what they resembled.

Defa, I know JUST how you feel about the relief in talking to others who have suffered in a similar manner. I have been through hell since the middle of last June with the strangest and most painful of symptoms. You wouldn't believe my story. The more I read others' stories, the more I realize that problems I experienced earlier on (like the skin tags) were signs of this disease that I have been living with (for how long???) but didn't know I had. I just stumbled onto this forum today and am so glad that I did. Please get in to see a gastroenterologist ASAP!!! As soon as I got treatment, the Crohn's symptoms were controlled. I got two successful Remicade infusions and have been on Entocort EC. The Remicade fixed me in a hurry. I felt like a whole new person shortly after the first infusion. Unfortunately for me, I developed an allergy to Remicade and had a terrible reaction during my 3rd infusion in February. We tried again 10 days ago with a pre-infusion of anti-allergy drugs. It didn't work and I still reacted. So I go back to the GI doctor tomorrow to discuss other alternatives for maintenance treatment. But the important thing is that I was at least able to get the disease and symptoms (pain, cramping, diarrhea, malaise, feeling rotten) under control for the time being. It changed everything for me once I got referred to the gastroenterologist.

My story with Crohn's is a complicated one of odd-ball symptoms, weeks and months confined to bed, fruitless medical tests, and referrals to all the wrong specialists. But then, this is a very complicated disease. It took the right symptoms and the right tests at just the precise time for a gastroenterologist to diagnose the severity of the disease in my GI tract. I have been very sick since mid-December and have been off work since my surgery in February (not so much from Crohn's but from other problems as a result of Crohn's). In addition to having the skin tags removed, I had a surgery to treat a very nasty, infected perianal fistula which had snaked itself all around the right side of my derriere ... and which was making me very ill. A week later, we discovered that there was a second fistula and a new infection ... and I was back in the operating room 7 days after the first surgery. Two surgeries did my body in, and I have been off work recovering since then. I have a little open wound/drain that will be there for a couple of months so that the infection can drain while the fistula heals. But I am getting well and feeling good ... and I am going back to work on Friday!

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 4/14/2010 8:18 AM (GMT -7)   
Hi Shany!

I also am allergic to remi. I was put on it because of three delightful (NOT!) peri-rectal abscesses. They switched me to Humira but I am allergic to that too. I am one of the rare ones, I guess. I have been on 6MP and have not had another abscess. Yea!!!! As you will read from others, it sometimes takes time to find the right meds that help. My advice is to not stop taking the meds once you good ones -- even if you feel fine! Just my opinion. I hope you find the right med soon!!
Diagnosed with Crohn's in early 2007.  Several peri-rectal abscesses and two fistulae with setons.  Allergic to Remicade and Humira.  Currently on 6MP, and vitamins D and B-12.


garthbrooks
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/20/2012 6:27 AM (GMT -7)   
Shany said...
I was diagnosed with Crohn's in December. All of these strange things I've lived with like the skin tags, fissures, abdominal cramping, etc. finally make sense to me now, too. I just had several huge skin tags surgically removed by a colo-rectal surgeon on Feb. 22. Glad I did it! Recovery was no big deal ... maybe two weeks. I took Vicodin for the pain, stool softeners, used moist/wet wipes, and showered to cleanse after every BM. I realize the skin tags will grow back. But I won't hesitate for a second to go back into the operating room to have them cut off again if/when it needs to be done. The recovery was no worse than the constant irritation, itching, and pain I lived with for years.
Hey Shany i had skin tags removed and I am healing up well according to the surgeon. First week the pain was intense but now there is very little pain and the wounds seem to be scabbing over. They are starting to itch a little which I think may be a sign of healing.  I just want to ask you how long was your healing process. I have no more blood with bowel movements but i have to keep gauze there all day still. Every now and than i pop some cipro to prevent an infection. (I had some lying aroud the house). I am reading all these horror stories about skin tag removal that wont heal. I am on remicade and have one or two formed bowel movements daily. Do you think I will have any problems? and if so go to my GI?

garthbrooks
New Member


Date Joined Apr 2012
Total Posts : 2
   Posted 4/20/2012 6:40 AM (GMT -7)   
ps its 11 days post removal
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