cant handle this.

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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 12:56 PM (GMT -7)   
my left buttcheek is so sore. its like a swollen leveling. feels like im sitting on a baseball. it hurts like hell.. i went to my doctor twice and she said it was a pressure sore. i always notice it is worse when i am on narcotics or fentanyl.. it feels like a ball of fluid or air.

i asked my g.p if it was an abcsess and twice she said no.. i cant handle it.. i can barely sitdown.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 4/13/2010 1:12 PM (GMT -7)   
I would go to a proctologist immediately. To be honest, I had the exact same feeling when I had my fistula/abcess. I couldn't sit down and it was very sore down there.. I literally laid on my stomach in tears until I could get into the dr. office. My GI told me it may be nothing to worry about but referred me to a procto.... As soon as I went in there and he examined me, he scheduled surgery 2 days later. Good luck; this is not something to play around with!!!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 1:20 PM (GMT -7)   
there is no boil. just a throb ... i sit alot and she said it was a pressure sore,,
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 4/13/2010 1:27 PM (GMT -7)   
Yeah, I didn't have a boil either. It was a painful throbbing and it hurt worse over the course of the week. I couldn't "feel" or see if anything was there from the outside, it was just tender/sore to the touch and throbbed. Very uncomfortable. I wouldn't risk it and I'd go find a procto tomorrow buddy. All he'll do is put a little camera up the rear and say "yes I can help" or "this is just a pressure sore, you'll be fine." But it seriously sounds like its more than a pressure sore. And to be honest, I bet a lot of us do a "lot of sitting." :-p
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/13/2010 2:49 PM (GMT -7)   
That's odd. If it is a pressure sore, I'd like them to explain why you have one. It's not as if you're elderly or bedridden. Is your skin very fragile because of the steroids?

I agree with the others about getting a second opinion. You might also find it helpful to use the traditional doughnut cushion. You might be able to find one in an online pharmacy.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 3:40 PM (GMT -7)   
i need u all to understand that.... first of all ivy, i love u for saying that. i got myne in the mail today and inflated it. Thing is i need to put a pillow behind it and also where my back brace because im finally getting better with my back and i dont want to have bad posture while sitting on this...

heres the thing... I agree. my skin isnt torn WAT SO EVER, i agree with ivy.. it isnt rough, cracked, or even red. its blackish bluish like i got punched. im very thin yes and i def. think its from sitting a lot.

heres the kicker... i ONLY get this when im on narcotics.. ALWAYS. I noticed every time i start the fentanyl patches.. no joke. and when i take em off for a few days.. and let all the gas and stool out.. (even though i do go 2-3 times a day).. it gets better.. weird right?>

i really think its a build up of fluid.pressure and something.

yes im using the donut i OVERNIGHT shipped.. haha and its allowing me to sit on my poor ***. excuse my french.

the main problem is, i need my pain meds. oral ones give me fevers. or overload.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/13/2010 4:03 PM (GMT -7)   
How about you pop over to the chronic pain forum and ask the people there if they've had similar experiences? Many of them are on narcotics, so might be able to offer some insight into what's going on with your skin?

But really, I think it's simply not good enough to tell you that it's a pressure sore and leave it at that. If it *is* a pressure sore (and it sounds like we all doubt that) then I think they need to put some intervention in place to ensure you stop being affected by them. Nobody should have to put up with pressure sores if they don't have to... and especially not a person who is still in their early twenties.

Got to go and get ready for an appointment, but good luck. Please let us know if you talk to the cp people, and what they say. Oh, you might also like to ring your pain clinic too, and get their advice?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Shany
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/13/2010 5:51 PM (GMT -7)   
This sounds all too familiar. It sounds like an infected fistula and possibly an abscess. I have been living with that since mid-December and have just had two surgeries to repair the fistulas and drain the infections. I would NOT mess around with this! I can't begin to tell you how sick I got from my infected fistulas ... nearly hospitalized because the infection made me so ill. And so much pain ... I couldn't sit, walk, stand, or bend over! But I first noticed it when my right cheek was suddenly painful to sit on. Go see a gastroenterologist or try to get yourself referred to a perianal surgeon. My gastro doctor saw the first fistula when he did the colonoscopy on me, but it wasn't infected then. When I saw the surgeon two months later, he couldn't find the fistula in the initial in-office examination. So he scheduled me for an examination under anesthesia (i.e., surgery). In both surgeries, he found the fistula, cleaned out the infection, and cut open a drain. I am still healing, and I still have a little bit of a "baseball". But it is getting smaller by the day, and I can almost sit normally again!

What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 4/13/2010 7:56 PM (GMT -7)   
^^ Right with you Shany. Any time I get any sort of pain in my rear-end, it scares me these days cause I know how painful it can end up being if you let it go. I wish you luck debil!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 10:07 PM (GMT -7)   
Well heres an update. I took the 25mcg patch off this morning and moved it to 12mcg. Already i am walking better and sitting on my Butt. Its been like this for almost a year.. Everytime i am on fentanyl this happens.. it weird.

my g.p called. said, go to 12.. and gave me a script for a generic Feroicet. i dont know. its weird how this happens. I think its a build up of gas, stool and sluggishness.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 10:08 PM (GMT -7)   
oh and since my bowels moved from taking the patch off....... i went nearly 5 times today and only ate 1500 calories.. not a good day.. but had a lot of stool in mee.. its not a pressure sore.. LOL at 22 yrs old.. my skin is flawless.. its the fentanyl And im 100% convinced by it.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/13/2010 10:32 PM (GMT -7)   
... So you think it's related in some way to constipation?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/13/2010 10:44 PM (GMT -7)   
sluggishness or constipation because i still use the bathroom 2-3 times a day.. but without i got like 4-5
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 4/14/2010 12:24 PM (GMT -7)   
Everyone has very good advice here. Just food for thought. When you have been though all the above situations,multiple times/and sx's what in the heck is next?? This fistula/abcess has gotten to the point of draining feces again. I have not tried for DSSI. I know I am in the danger zone. I really think it is time to return to my bag. All the ostomies agreed,but I know you folks better. I have not made it to one softball practice or T-ball game of my grandkids. Yes, I can take an extra perc and try it,but that is wrong. Help my friends!

Mary Lynn


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/14/2010 1:36 PM (GMT -7)   
Well it seems you may have found the anser
there are other pain meds n not patches
keep us posted
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

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