My body is deceptive!!! (test results)

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mom-who-hurts
Regular Member


Date Joined Mar 2010
Total Posts : 28
   Posted 4/13/2010 7:34 PM (GMT -7)   
So I have had chronic diarrhea for over a year...with "flares" (if I am even allowed to say that) that cause me to go over 10 times a day, night-time abdominal cramping, cold sweats and nausea and body aches etc...yadda yadda...oh and the stupid anal fistula (repaired last fall-finally resolved last month, a 5 months recovery)  With the flares comes weight loss.  When things settle down (like they did Dec thru March this last year) I still have urgency and diarrhea every day, but only a few times a day.  Abdominal cramping is there, but doesn't wake me up at night like it does when it gets bad. 
 
Finally started the whole GI work up thing March 3rd.  Have had abodomen/pelvic CT (supposed to be enterography but radiology messed up and didn't do it right.)  Blood work, and stool cultures that I was told were all "normal" and colonoscopy that didn't find any sign of inflammation.  (found two pre-cancer polyps that have earned me colonoscopy test now every 5 years-but that has nothing to do with the symptoms.)  I just today got the call about everything being normal, but I had called earlier today to let them know that things seem to be getting worse again...(was up all night last night soooo sick with cramping/pain/nausea and trips to the bathroom), and had an intimate relationship with the toilet ALL day the last couple days.  Pain in back is so excruciating at night.  My follow up with my GI wasn't until June 1rst but because of feeling so crummy he wants me in sooner "to go over my results in more detail and go from there..."  (?)  In the meantime, he wants me to do a trial of Flagyl for 10 days and then see him the last day of that. 
 
Can someone explain to me what his thought process might be?  I am not familiar with any of this, so Im curious what this means.  I do know that he had said something to me at the time of my colonoscopy that if the biopsies were normal we'd do a pill cam test...so maybe that is next?  But does it make sense to try this medicine first?  I'm dying to have something/anything to treat just in case it works, so I was glad he is doing something, but just curious if this seems appropriate.  And does it make sense to keep looking for IBD/Crohn's if all other tests to date were normal...wouldn't something of showed up ...in the blood at least.
 
I feel like my body is torturing me but then "pretending" all is ok by coming out looking normal on all test results...hence the title to this post of my deceptive body. 
 
Im frustrated.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/14/2010 5:17 AM (GMT -7)   
I doubt that "everything came out looking normal" if your doctor has scripted Flagyl for 10 days. It is not a drug a doctor would put someone on "for the fun of it". Crohn's can be a very difficult disease to detect, especially if it occurs in the small intestine or in an "unusual" location. For instance, Crohn's most often first rears its ugly head in the terminal ileum at or adjacent to the ileocecal valve. Mine first appeared in the mid-ileum.

Good luck and God bless.
My computer says I need to upgrade my brain to be compatible with its new software.

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