Hello everybody, hope you are all Ok. I'm currently on pred after my second major flare in 11 years which landed me in the hospital. I'm currently on 25 mg, tappering 1 pill every week. Although my gut is doing Ok, all the other side effects of pred has hit me. I feel tired, can't sleep, I feel depressed, I have a weird taste in my mouth all the time, plus sometimes I get this pain in my upper back which radiates in front where my stomach beggins (sorry I don't know the english terms
). I had this pain again when I was on pred 4 years ago, and it dissapeared when I finally stopped it. It's not there all the time, it's every 2-3 days, and it's annoying. Anyway, I guess I will have to accept that, as long as I go to the bathroom feeling like a normal person again
My other worry is what happens next. My GI said to visit him when I'm down to 15 mg, so we can discuss medication options. Up till now I was taking mesalamine and Entocort, and he said maybe we should consider Humira or Remicade. I'm scared, I always thought of these drugs as "big guns". I mean, besides my permanent stricture in the terminal ileum, I usually have 2-3 bms which is not that bad. One thing is for sure, I was so wrong to stop taking my medicine the last 3 months, that's what got me into trouble. He said "Christina face it, you have a condition which requires medication for the rest of your life, or until a permanent cure is found!" Just great.... Depression here I come.....
Thanks for listening,