Great news from my new GI!!!

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HabsHockeyFan
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Date Joined Jan 2006
Total Posts : 3130
   Posted 4/16/2010 5:18 AM (GMT -7)   
I went in yesterday for results from my CT and scope with my new GI.  No colon involvement still, only one ulcer at my surgical site, no addditional narrowing except the small bit at my surgical site that has been there forever.  Based on the push for anti-TNFs by my last doc, my not taking my pentasa and the many trips to the bathroom that I told to him, he thought I would be in horrible shape internally.
 
He told me...it's not that your cured, just that your CD is not active.  He was amazed at how well I was.  He is putting me back on the pentasa as it has worked this well so far.  He also came up with the thing that I always said was my problem....he asked when i felt best in the past.  I told him it was on the Questran and whenever I have been on antibiotics.  I go in a couple weeks for a breath test to see about bacterial growth.  Doc has me going back on Questran and if the breath test comes back as bacterial growth I will go on regualr courses on/off of antibiotics.
 
I am rambling, but so excited that he is treating the actual problems I have and not what possibly could happen in the future.  Yay...I could feel again like I did 15 years ago...just after I started feeling better post surgery.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/16/2010 5:34 AM (GMT -7)   
That is great news!!!
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Entocort, Colestipol, Propranolol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/16/2010 6:21 AM (GMT -7)   
Congratulations!!!!!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/16/2010 6:23 AM (GMT -7)   
That's wonderful. The Xifaxan on continuous use has made the most difference for me, it might be something you want to look into. It is only absorbed in the intestines so as antibiotics go, it is pretty low risk. It is expensive, but if your insurance will cover it, it is well worth it. I have had to get prior approval, but that hasn't taken more than a few days any of the times it has run out and my doctors office has handled all of it.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 4/16/2010 7:30 AM (GMT -7)   
Zanne....I will ask about the Xifaxan at the breath test appt. I was wondering if you know if it affects birth control as other anitbiotics do. I am definitely too old to start a family now and this was the only downside to the care I could think of.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 4/16/2010 8:02 AM (GMT -7)   
Cheers—sounds like a very successful visit. Since you always feel better on antibiotics, have you considered replacing the Pentasa with sulfasalazine? The latter combines the 5-aminosalicylate in Pentasa with a sulfa antibiotic.

HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 4/16/2010 9:02 AM (GMT -7)   
Writer...I had thought about this with someone else's post about sulfa. As I noted in their post, I had a very quick to burn with it. If I can avoid that, I will. plus I did so well for so many years on Pentasa....if it ain't broke, why fix it theory.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/16/2010 9:05 AM (GMT -7)   
Habs, No affect on birth control that I know of. I had my tubes tied years ago, but was on birth control pills for the hormones. Every time I filled a script for antibiotics my pharmacy would tell me that it would affect my pills (of course they didn't know about the tubes), but I was never given the warning when filling the Xifaxan. Obviously I'm not a doctor or pharmacist, but that's my experience.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/16/2010 10:52 AM (GMT -7)   
Am so happy for you n i agree with Zanne on thisMy daughter has never been warned about using pill n antibiotics when rx

wishing you all the best

lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/16/2010 11:40 AM (GMT -7)   
Great news, Habs!!! I had good luck w/alternating Tetracycline and Amoxicillin (along w/a good probiotic) the first 10 days of every month for quite a while for bacteria overgrowth. Of course, I was taking my faithful ole Pentasa during that time as well. We are fortunate being amongst those who respond well to Pentasa!!!! The research community is less thrilled w/it and sure do like the biologicals but they "ain't" my cuppa tea if I can be so blessed as to still not need them.
My computer says I need to upgrade my brain to be compatible with its new software.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/16/2010 8:42 PM (GMT -7)   
Habs glad to hear when things come together for the better. Keep us informed!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/16/2010 8:47 PM (GMT -7)   
Now you see, I always knew you were a beautiful person, now there is proof you are beautiful on the inside as well. Hope all continues to be well...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 4/16/2010 10:01 PM (GMT -7)   
's great, habs!!! glad that you are on the UP escalator, now.

vv
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