Disappointed, flares, meds

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/16/2010 1:23 PM (GMT -7)   
Just as I was feeling really perky for a few weeks, another "flare" came on. I swear it is so frustrating.  It started with unexplained extreme fatigue and aching for a while but when it started my stomach was feeling pretty good (except GERD.) Then, the colon started acting up again. I did miss several doses of my colazal so I guess I am to blame-:) nono Nevertheless, I get frustrated that the remissions don't seem to last all that long. It took me the better part of the year to figure out zoloft and nexium were not agreeing with the colitis, so I switched meds and was good for a while. Then this. My GERD has been acting up big time. I went to the rheumatologist last week and he did some more tests for auto immune disease. He gave me plaquenil and my stomach has felt so bad I have not taken them yet. I am afraid it will make things worse. It did when I tried it before. Thanks for listening. I just needed to vent! Oh, and I have to work a very long day tomorrow! Yuck!!
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 4/16/2010 2:18 PM (GMT -7)   
Sounds like you are riding the roller coaster of crohn's. I'm really sorry that it's so rough for you right now. Sometimes it takes a while to get the right meds figured out. Have you considered a change in diet (like SCD or Makers)? Some people find that dietary changes really help too. Maybe that would help? Hang in there and I hope you get through your day at work. I'll send good vibes your way!

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/16/2010 2:27 PM (GMT -7)   
Stef, I have tried gluten free but it didn't do anything for me. I tried it for two weeks with no change.
When I have a flare, roughage really gets to me. Otherwise, I'd do the SCD. I don't drink milk, as I am lactose intolerant. I also can't have many nuts b/c they upset the stomach as well. On top of the inflammation, I have diverticula-:) Actually, the less I eat, the better I feel when I am having a flare. Tonight, it will be soy milk and rice. lol... And, I don't lose weight when I don't eat either!
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/17/2010 8:39 AM (GMT -7)   
Jeanneac I would maybe try a low residue diet and see if that helps some. Thats what I have found works the best for "my" Crohns. I don't do too well with roughage either. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/17/2010 4:58 PM (GMT -7)   
Thanks Nanners, that's exactly what I have to do. I am actually a little better today. I think my fatigue is easing some and my stomach feels a bit better as well.
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/17/2010 5:13 PM (GMT -7)   
Sounds like my early experience with CD/IBD. Got a good little remission that lasted 6 weeks, followed by a much more devestating/demoralizing Flare.
This DD will take you on ALL the theme park rides, I'm afraid..

Matthew

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/17/2010 5:41 PM (GMT -7)   
That's a perfect description if I ever heard one Matthew. It can be a drag.
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel

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