Has anyone tried DigestaQure??

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sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 4/17/2010 2:15 AM (GMT -6)   
Hello, I am so desperate to feel better and be able to live a normal life again. I have kids and I feel so bad because I can't plan anything at all and it's so sad when my youngest who are only 4 and 5 years old come in my room to ask me if I am feeling better. I was diognosed about 3 years ago and have really been in denial and in the beginning it wasn't that bad. I basically would eat certain things that would make me run to the bathroom but I didn't think anything about it because I suffer from anxiety and panic disorder since my father passed away and I thougt I just had a nervous stomach. As time wenton I was in the bathroom more and more. After a year,I finally went to the doctor, andto make a very long story short was told I had mild to moderate crohn's disease. I never had or have horrible pain but just can't keep anything in and have to run to the bathroom all the time. I haven't had a formed stool in years (sorry for to much info).
 
Ok, so recently I realized i really need to get myself better especially because I have lost so much weight. I was 154 pounds and now am about 104 pounds. I have become very anemic and am getting very scared. I am basically skin and bones and as a women I don't feel attractive at all. I had a endoscopy and colonoscopy last Thursday and after the procedure I walked out and started having really bad shakes (chills). By thed time I got home, 20 minutes later, I started running a fever. My husband called and they told him to give me tylenol and fluids. It was a horrible night with a fever that went up to 104 and I thought I was going to die. The tylenol didn't seem to be helping and Friday morning I went to the ER. They gave me fluids and my temp was low grade at that point and I was feeling better. The blood work came back as usual showing I was severly anemic. The doctor asked me if I wanted to stay or go home confused , I thought she was crazy. I have no way of getting in touch with my GI doctor except on Tuesday when she is in the office which is so frustrating because I had no clue what she saw during the procedure (she never spoke to me or my husband). I decided to go home being that the hospital really didn't see a reason for me to stay. This is the 3rd time I have changed GI doctors and this one is the worse. I only saw her one time before the procedure and she rushed the whole exam. On Tuesday my husband was going nuts trying to get in touch with her (the GI doctor) and it was unbelievable. She finally called me after 5 and told me I have severe crohn's. Since I have found out I have had crohn's it has been located where the small a large intestines meet. I asked her if it has spread and she said it hasn't but the area where I have always had it is severly inflamed and she did a biopsy that said I have severe inflamation in that area. She told me to take Flagel (sorry if it's spelt wrong) and continue with the asacol. She also said someone would call me to make an appointment for a CT scan and a sergeon because I have a rectal abscess and a fitula. Nobody ever called and everytime I try to call they tell me I have to wait till she comes in on Tuesday. I don't understand if it has turned to severe crohn's why I wasn't admitted into the hospital. I don't even trust the doctors at all anymore.
 
Anyway, I went online and after reading very depressing and scary stuff about the medications I came across something called DigestaQure. I want to try it so bad especially because it says if it doesn't work there is 100% money back guarentee. The website also says that it won't interact with any medications and there are NO side effects. Has anyone ever tried this and it worked for them? I don't have money to spend if it's a scam. I am on disability and my husband lost his job and we have 5 kids. I am willing to get the money up if this can really work but I know there are companies out there that feed off of people who are desperate. I am so sorry for any typo's and that this is so long but I just would love some advice. My GI doctor is talking about remicaid ot 6mp and I am so scared to take anything. I don't want anything to lower my immune system being that I have kids and for some reason someone is always sick. Before reading about DigestaQure I have actually been thinking about surgery and removing the section that has been inflamed for 3 years (and I am very scared of surgery so that shows how desperste I am feeling). I don't even know if I can make it through surgery though because I am so malnurished and can't afford to lose any weight at all. Please if someone who has been going through this longer then I have can give me some advice about DigestaQure, surgery, or medications that won't make me more sick i will reaaly appreciate it. Thank you so much in advance and once again i am sorry this is so long and i am sure there are a lot of mispelled words because it's after 3 in the morning and I am sitting her stressing.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/17/2010 8:53 AM (GMT -6)   
Well, I almost thought this was a scam myself because your first post is about a bogus product.
I wouldn't use it. There is no cure for crohn's, and especially someone who went from 154-104... digestacure isn't the answer.

Welcome to HW.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 4/17/2010 9:50 AM (GMT -6)   
I just quickly googled it and I don't see anything in this to think it will work. Personally looks like something from a snake oil salesman. I think you really need to think seriously about taking either the Remicade or Imuran/6mp. One thing you can be sure of is that your Crohns is out of control and really needs proper treatment. The Remicade will help alot to heal the abcess and fistula. As for making you more suseptible to illness, we have many members here who have been on one of these meds for years and don't get any more colds than anyone else. You should just plan on being a little more proactive and washing your hands alot and when the kids are sick have hubby step up a little more until they are better. I am sorry you are feeling so bad, I hope you will get on meds soon as this is not a disease that should ever go without treatment. You need to remember that Crohns is a chronic and incurable disease and must be treated at all times. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 4/17/2010 11:36 AM (GMT -6)   
So my crohn's is really out of control? I didn't think it was severe because I don't have horrible pain that I hear people get when they have crohn's. The doctor's are even suprised that I am not having horrible stomach pain. I am so scared that it will get to that point. I was told I couldn't start any medication, not even steroid until I had surgery for the draining rectal abscess because there can't be any infection in the body. When she told me I had severe inflamation in that area that I have always had it I asked why she didn't start me on steroid and she said because I need to see a surgeon regarding the abscess and get that taken care of first. This is all so depressing and I try so hard to have a positive attitude but when I go on the internet and read about it I just start getting so depressed. One part of me wants to get surgery to remove the bad part but I am so scared of what it's going to feel like after (regarding pain) and how long it will take before I feel better. Then I am scared if I do have the surgery and remove that part that it's just going to spreed to another area and make things worse. I would love to have some years of being in remission so I can enjoy life again. I heard when you finally do go into remission that when it comes back it comes back much worse. I just don't know what to do anymore, my head is spinning with so many questions and worries.

My husband thinks I should try the DigestaQure to see if it helps. He said that it might be something that helps and maybe the reason I don't see people talking about it online is because they are feeling so much better and are out living their lives. I don't know what to think :-(. I let this go for so long without wanting to believe that I really had to go through this for the rest of my life and possibly die from it or the medications that I would have to take that may or may not work. Has anyone had surgery and felt better and was able to live their life again? Is the recovery time long? Does anyone think I should just try to have the surgery being that it's in the one area? I asked the GI doctor if it's severe inflamation then should I have surgery and she just told me that I need to speak to the surgeon. If I do decide on the surgery does anyone know if the crohn's will come back worse? I am so sorry for so many questions but I am really depressed and want my life back, even if I can have a few years of life back before having to worry about crohn's again. Has anyone had surgery and not had it spread to another place? Is it a definate that it will attack another part of my intestines if I remove the bad part that has been inflamed for years now?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 4/17/2010 12:31 PM (GMT -6)   
I have had two resections and for "me" after the recovery life has been much better for me. I am a big advocate of maintaince meds, but I can understand your doc not giving anything to you yet till you have your surgery done. The Crohns more than likely if its going to return it will return to the reconnection site. But my last surgery was 5 years ago and I have been in remission (thanks to my meds) since. My first surgery was an emergency because I did not take care of myself properly. I did not eat properly and I did not take my maintainence meds. This is a disease for life unfortunately, and we all have to learn to live with and to take care of it. I hope your surgery takes care of your problems and once you get on the right med for you, I am sure you will start feeling better. I have had this disease for nearly 35 years, and believe me you will get feeling better soon. Sometimes it just takes a little while to find what works best for you. Hang in there. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5864
   Posted 4/17/2010 12:44 PM (GMT -6)   
Your Crohn's sounds pretty bad to me. Please don't waste your time and money on the DigestaCure - if something promises a "cure" for an almost endless list of ills, you can be certain it's fraudulent.

"I heard when you finally do go into remission that when it comes back it comes back much worse" - Nope, that's not true. If anything, the first flare-up is often the severest one. Over a period of time, Crohn's can get worse, due to the progressive nature of the disease, but the flare-ups themselves don't tend to get any worse. Also, people learn to manage their Crohn's so that when flare-ups do arrive, the symptoms aren't as bad - they learn which drugs, foods, and supplements work best for them in keeping the disease under control.

I think you sound in a bad way and really need to get this ongoing flare sorted, whether it's through drugs or surgery. I can't advise on the surgery front - never had any myself - but most people who get it done seem satisfied with the results and don't regret that they did it. But for drugs I can say to disregard the long list of scary side-effects; the drug companies have to mention every conceivable effect that might happen, even if there's only a one in a million chance of it occurring. The cancer/lymphoma risk has been pretty much ruled out for IBD patients entirely at the low dosages they take immunesuppressants (compared to transplant patients) at. And for some drugs, you'll get regular blood tests in the first three months to check for a low white blood cell count or pancreatitis - if such problems do occur, they go away when you stop taking the drug in question.

Best of luck...

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 4/17/2010 1:27 PM (GMT -6)   
Thank you so much Nanners for your support. I guess the one good thing I have done since I have found out about the crohn's about 3 years ago is watched what I eat. I haven't had any fried, spicy, or good food in so long :-(. I believe thats why I have lost so much weight is because I am so scared to eat. I do best when I make homemade mashed potatoes, rotisserie chicken, and stuff the chicken with stuffing. I am craving chinese food so bad because it's been so many years but my husband is worried it will make me sick. I kind of figure I go to the bathroom anyway when I don't take imodium so maybe if I take some Imodium i can get the craving for some chicken and brocholi out of my head but then I get scared to do it. Another strange thing is I tried rice 3 times since I have found out I had crohn's (which I was told to eat, plain white rice) and it make me run to the bathroom so bad. Has anyone else had this problem? I ususally make mashed potatoes or egg noodles and I'm getting so tired of the same foods for the last 3 years. I go to the bathroom anyway because the inflamation has been there for so long but some days its worse then others. I also just found out recently that pizza and spagetti sauce or alfrdo sauce will have me running to the bathroom more then usual so I haven't had that stuff in a long time. I really believe because of the fact that I am so scared to eat that it is the cause for my extreme weight loss. I don't know if the surgeon is going to recommend surgery and I am not sure if I should say I want it. I don't know what to do :-(. I am always hungry but am so scared to eat. Does anyone think if I took an imodium and ate some chinese food it would be safe? I just want something different...........

Nanners, I wanted to ask you a question being that I see you also suffer from anxiety/panic disorder. I take xanac (1mg.) 3 times a day and have been on it for so many years. If I do have the surgery is there anyway I can still take it because I am so worried about withdrawel and panic attacks. After surgery do they let you take anything by mouth or is everything through an IV? If you can't take anything by mouth is there another way for them to give me the xanax?

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5864
   Posted 4/17/2010 1:43 PM (GMT -6)   
I guess my post didn't count...

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 4/17/2010 1:46 PM (GMT -6)   
Thank You NiceCupOfTea, sorry I must have been writting my post while you was writing to me. This is so scarey and I hate to sound like a big baby but I guess thats part of me suffering from anxiety. I felt a little better about reading your post regarding the side effects they have to mention for the medications but then my mind starts thinking "what if I'm that one in a million". So i guess even if I ask to have surgery I will still need to be on remicaid or something to keep it in remission, sighhhh. I just feel like I don't have any luck, for instance: the endoscopy and colonoscopy I had last Thursday... right after I started running a fever....nobody has ever heard of this when I went to the hospital and I still have no idea on why it happen. My husband said it could have been from the biopsy being that I am so inflamed but the GI doctors nurse said they have never heard of that. I think I just haven't found a doctor who seems like they care and the ones I've had barely will answer my questions. Maybe if i found a good GI doctor I would feel more comfortable. I guess because I have healthfirst/medicaid (insurance) the doctors I am seeing just don't care :-(

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 4/17/2010 4:43 PM (GMT -6)   
Hello everyone, I am so confused about this DigestaCure. My husband just got off the phone with someone and they said they have only had a 4% rate of people who it hasn't helped and you get ALL your money back if it doesn't help you. My husband asked how long the product has been out and the man told him 2 years and out of the whole 2 years only 4% didn't get better and got their full money back. I am thinking on one hand that the money back gurantee is so good because that means they stand behind their product 100%. There is a book on the website that you can download for free and everything. My husband seems to have a lot of hope in getting this stuff for me and making me feel better. He is going to read some more of the book tonight when the kids go to bed. I believe it's made from aloe vero and I believe that is a good thing. It suppose to rebuild your immune system or something. I don't know, I am so tired right now that I don't even know if I'm making any sense. Would anyone else consider trying this product? Maybe someone else can go through the website and take a look and let me know what you think. I just want to live a normal life again...........
www.digestaqure.com

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 5864
   Posted 4/17/2010 8:15 PM (GMT -6)   
Firstly, apologies for getting hold of the wrong end of the stick :-/

It's not much consolation, but I can empathise with most of what you've written in your first post: the feeling of not having any luck with medical treatments; the bafflement over certain symptoms, including fevers (a week ago I got hit with a fever which reached 39.8C; it lasted for a day and I have no idea what caused it); and finally not feeling like any doctor I've had has really cared whether I get better or not. I can also empathise with how tired and wretched this disease makes you feel.

I'm also having a colonoscopy on Monday (all day prepping tomorrow - that will be fun >_>), so like you my treatment is up in the air right now - well, I'm not on any treatment. That's what the colonoscopy is for; to determine whether I need surgery or not.

I did have a look at the DigestaQure website. The thing which rattles my chain is that it claims to "cure" Crohn's; even if it made you feel better it won't cure the disease and it could come back at any time. I doubt it could cause any harm, so if money were no object, I'd say give it a try. But I'm worried you won't get your money back and you will have wasted money on a snake oil treatment for nothing. If you wanted to go the natural route, then some people have had success with a strict diet tailored for IBD (SCD - Specific Carbohydrate Diet) and a regime of probiotics and various supplements. That won't cure Crohn's either, but it can sometimes control the symptoms to the point of making them go away almost entirely. It's a big commitment, however, and surely an expensive one too. Me, I'd want to exhaust every single drug option first before I considered such a lifestyle change.

I don't want to push you, but I do think you'd be best off with surgery and a drug treatment like Remicade :-/ I think you would feel so much better if you could get rid of the diseased part of your terminal ileum, and sort out the fistula/abcess too.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 4/18/2010 4:35 AM (GMT -6)   
Sweetnakira,
You need to realize that the makers of products like the one you mentioned are not going to tell you everything. These products are not FDA approved and they do not have to disclose all of the results of testing or even all of the ingredients. They thrive on people like yourself buying it out of desperation for relief and a return to a normal life. There are so many products out like this and they are completely a waste of your time. You have to remember that if they had such a huge success rate, G.I.s from all over the world would be ordering it and prescribing it for all of their patients. They would benefit big time if this product did even half of what they proclaim. You notice that they show the effectiveness of their product on their refund rate and not by actual testing. This is a skewed number because of the fact that many people will not return the product out of embarassment or because they just don't want to take the time to do so. That does not mean that the product worked for them if they did not ask for the guarentee.
Please do not take this message personal, be please take it as another crohnie that has been where you are now and don't want you to make the same mistakes that I made. When I first got sick and started on Remicade every month, I looked for every possible cure that I could. I ordered the late night tv products for pain and bought the berry juices from the himalayas. Not one of them worked for me and I wasted a ton of money and them and did not send it back for the refund because I did not want to admit to my wife that I threw our money away. Instead I just bought the crap and when it did not work I just stop buying and let it get forgotton. Now I realize that I just wasted so much money when I would just end up back on the real medications for real relief.
Whether it is surgery or remicade, you are eventually going to need to be on a medication and use a real doctor to maintain your disease. Every person thinks that they are going to be the first person to beat this disease with diet or some supplement but it always ends up bad without medication. This disease takes a combination of diet, exercise, emotional stability, and real medication to get it under control and maintain it. This is a great site to get support and knowledge on everyone of the previously mentioned items. Stay positive and don't look for the quick fix as this is a marathon disease.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3069
   Posted 4/18/2010 5:09 AM (GMT -6)   
sweetnakira~please do not waste your money on that...it won't make you feel better!

Your fever could be from your fistula and the infection there as well as the one going on in your small intestine/colon. Please make sure that you ONLY see a ColoRectal Surgeon for your fistula! That area is VERY delicate and it is important that the surgeon have experience with Crohn's patients. Our bodies do not heal like a regular person's, too, they usually take longer:( I have had many abscesses/fistulas and treatment can be tricky but Flagyl is a med that can really help the infection with them...Remicade or Humira can help close fistulas with some people (unfortunately we are all different and respond to meds differently).

If you have to have a resection, maintenance drugs are very important afterwards!! Like Nanners said!!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


Paul A.
New Member


Date Joined Oct 2006
Total Posts : 17
   Posted 6/29/2010 6:57 PM (GMT -6)   
I haven't tried digestaqure but i have tried other brands. I am not telling anyone here to try or not try it, just do the research. When you go to research you will also find that the aloe companies all come from Florida and they go out of business every couple of years come back as a different company. Somethings work for some people and don't work for others.  All these aloe companies rely on customer feedback, they will even go as far as joining a forum and writing a fake post. 
They may even spell a few words wrong and say things that are totally unrelated to what people with UC experience.    
 Then you call up and sure enough the representative used to have UC and knows what you are experiencing.  It's the same BS. You will get a packet with the pills that includes a low residue type diet with a anti-diarrhea protocol. 
Just a little buyer beware.
 
 

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 362
   Posted 6/29/2010 10:38 PM (GMT -6)   
hmm, are you saying this topic was posted by a sleeper agent for DigestaCure? I wouldn't be surprised, but that would be pure evil.
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 8/19/2010 1:59 PM (GMT -6)   
Hi,
 
It's been a long time since I posted.  I was really ironic that when I decided to post again, the first post I read was yours.
 
I was diagnosed with Chrohn's at the age of 19, but know that I had suffered long before that. I'm am now 64 years old.
 
First of all I'm surprised that the drs and nurses at the hospital did not know that experiencing a high fever and/ or chills right after a colonoscopy are symptoms that require a call to your dr. asap.  I just had a colonoscopy this morning and on the post GI endoscopy instruction sheet it says to report these symptoms (as well as some others) to you dr asap.  It's amazing how uninformed some hospital professionals are.
 
As far as surgery and recurrence of CD:  I have had 3 surgeries and have had a recurrence each time.  It's 2 years since my last one.  My colosnoscopy shows active disease in the same area (ileum).  I don't think that each time the disease gets worse as you were told.  This disease is not a one-size-fits-all.  Some have recurrence after surgery and some are not so lucky.  The only reason I agreed to my last surgery was that I needed to have my gallbladder removed and surgeon said he could remove the extremely narrowed bowel at the same time. Before then,  I was only able to eat a very low-residue diet, and was extremely afraid of another blockage.  I understand totally when you say you are afraid to eat.  Food became a very scary issue for me too.
 
I know that the meds for this disease have some scary side effects, but I chose to take them for a better quality of life.
I was on Humira once every other week, and now will be taking the shot every week.  Medication is all trial and error. You have to find what works for you.
 
So sorry you are going through this.  This site is great for "talking" to people who really understand what you're going through.  Hang in there!  Hope you find a dr that helps.  Sending you hugs.    Potty Pooper

potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 373
   Posted 8/19/2010 2:02 PM (GMT -6)   
Sorry!  Meant some have no recurrence.....

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 8/19/2010 5:16 PM (GMT -6)   
How come this thread has been pulled up from as long ago as April!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/19/2010 6:54 PM (GMT -6)   
drop this thread it pisses me off, it's bull****. just like that dude that came on afew months ago saying he had some cure that cured cd, it is a scam and they prey on us sick people, i like debilitated (god rest his sole) response. and everybody that can see a scam, thanks for picking up on it. we're sick here, and we don't need sooth sayers. I'm going to bed

artist guy
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