Sniper ? about pancreas issues.

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 4/17/2010 8:07 AM (GMT -7)   
Sniper, you said in your post to samsmom that you were taking Greon 20, but then you weaned off. I was taking
that, but now they've changed me up to Viokase. Same thing, take 4 with meals and 2 with snacks, but there's no
talk of my coming off mine. My last ERCP showed a little more damage and some bilary sludge. I was wondering
do you also have high triglycerides like I do?
My other question is, did your chronic pancreatitis cause your diabetes? I know I'm at a greater risk of developing
diabetes, and a 1 in 5 chance of pancreatic cancer. All good stuff to look forward too (smile)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/17/2010 3:31 PM (GMT -7)   
Bump
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/17/2010 9:12 PM (GMT -7)   
Hi Dunny. Not sure if the pancreas trouble caused the diabetes. I was in the guinea pig stage at that time and I had several doctors pushing pills and test at me. I'm tired right now and my mind is fuzzy but I do recall being on a med and being weaned off only to end up with Addisons disease . Cant recall what that med was right now but I'll check my books and let you know. As for triglycerides, mine are not too high. I'm like borderline. Not on any meds for it . I was having weak spells and passing out and my GI found a spot near my pancreas that he thought may be the cause. It wasn't, it was my heart but thats another story.I did not have any pancreas trouble until I had the three tests, EUS, ERCP and one I cant recall something like EGD ,,all at one time in New Orleans. They sent me home that night still knocked out. My wife had to drive me home and when I did wake up had to bring me to ER. They think the dye caused it but I was ready to die myself from the pain. Ever sense those test I have had recurring trouble. The diabetes showed up around that time too . The pig pancreas was a way of resting mine and it did help. I even recall a ER doc telling me one time that they could remove my pancreas and I could live off oral meds. I still dont think that is possible . Perhaps I was sedated and got him wrong. As for developing cancer, I tell myself that I would have a better chance of surviving it should it happen because they watch for it in me. Should it turn up they would catch it early and thats a good thing. The same is true for you . Hope that helps ease your mind a little..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/17/2010 9:22 PM (GMT -7)   
I'm thinking my pancreas is wonky too. Yesterday, I had really really bad pain in my mid back about an hour after eating. My liver enzymes are currently high too. Guess I'll be calling the GI Monday. If it's not one thing, it's another :-(
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/18/2010 7:49 AM (GMT -7)   
Sniper, thank you so much for getting back to me. You really have had a rough ride of it have'nt you!! I thought
I was bad enough, with developing *spin off* diseases one after the other. Lupus and everything else I can
seem to handle, but this pancreas thing really has me down. I guess It's the constant pain, and dramatic weight
loss that's taking it's toll. I go to see the pancreatic specialist tomorrow, as my amylase levels are high, and I
have'nt felt too good now for a couple of weeks. His nurse told me there is a chance he might want to admit me
for pain and hydration control, also to find out why blood work is out of whack.
I guess you're right about the cancer issue, but I can't help but worry, because it is one of the more aggressive
kind. I know I should'nt waste my life worrying about the might be's. If it was'nt for the constant pain reminder
I think I would relax more!!

spookyhurst, It sounds as though a visit would be a good move. My pain does seem to be more epi-gastric, although
it does radiate through to my back. I do have enzymes to help with the pain when eating, but I fear eating now...
I wish you luck!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/18/2010 9:36 AM (GMT -7)   
Dunny , So sorry your having this. I know just how painful it can be and even when its bearable you feel queasy. I do find like every other DD you sorta get used to it and go on, but its not fun. Have you ever been checked for fatty liver disease ?? That showed up first in me but has sense gone away. Wooooo Hooooo something went away !!!! My diabetes is type 2 but so far all attempts to keep it in check with oral meds has failed. May end up on insulin soon and I really dont want that . Despite all my aches and pains I have been working pretty hard in my yard. Neighbor was over this week and asked what the H--- I was trying to do, kill myself ? I said yes, trying to commit stupidiside and end all my troubles by working myself to death. Funny thing is , besides back pain , it looks like I feel better . Maybe its the indorphins ....
Spooky, it dont hurt to get something checked out. I was about to give up on the weak spells because all the docs thought it was diabetes or crohns related and test showed no troubles, even a stress test. I told my wife I was going to complain one more time and then give up. That last complaint to my family doctor ended up in a test called a, calcium score. My score was 400 and doc sent me the next day to a heart spl. He told me a score of 1 or more meant blockage and he did a heart cath that evening. I had 100% blockage of the left main coronary artery . Had bypass the next morning because he could not get a surgeon that evening. Surgeon said I had had the blockage long enough that my heart was trying to reroute blood flow around the blockage. I asked him what was happening when I had the weak spells and tunnel vision. He said,, " you were trying to die ! " Good thing I complained that one more time...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/18/2010 10:39 AM (GMT -7)   
Hey Sniper, I've been gardening too... It's a killer, but like you say, it kinda takes your mind off. Stupidiside! ha ha!
What a wonderful way to go. I think I'll join you. I swear the closer to 60 I get, the stupider I am. Fatty liver? I don't
know about that. I do have Fatty stools, but that goes with territory.
I'm sorry you had to have by-pass surgery. My husband had a triple by-bass done 11/2 years ago. His was on his aorta
and both femoral arteries, so his heart wasn't involved. BUT I worry that if he doesn't slow down, OR do as told, his heart
will be the next. OMG listen to us. I tell ya, it's an age thing!!
Keep smiling my friend, and thanks.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/18/2010 1:55 PM (GMT -7)   
dunny, I do have some epigastric pain as well, but the back is worse. Also, this business all started with bloating and major gurgling right after eating. Then after a few days, the pain came. Every time I gurgled my back throbbed worse. Do you ever have anything like that? Right now, as long as I eat hardly anything (yogurt, jello), there's no gurgles and no real pain.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/18/2010 4:15 PM (GMT -7)   
The only time I get really loud gurgling or loud bowel sounds, is with crohns, and it's never a good sign, especially
when the noise is followed by pain.
I think you really should see your GI. Good luck!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 4/18/2010 6:49 PM (GMT -7)   
Thanks dunny :-). I was initially worried it was crohn's, but I don't have any pain in my usual "crohn's" places (just that pain in the back) or symptoms. Maybe it's a stomach issue. I have a feeling I don't produce enough stomach acid, which maybe would cause all that gurgling after I eat. Or maybe my pancreas isn't producing enough enzymes. Hopefully my GI will move up my appointment from June, but she's tough to get into.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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