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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/18/2010 11:41 AM (GMT -7)   
Does anyone take this for pain??

Im trying to figure the best one for me to where i can eat freely and still not be so sluggish or etc..

norco 325 is good but makes me dehydrated/and chill like than feverish. dont kno y.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/18/2010 11:56 AM (GMT -7)   
I use Oxycodone aka Percoset daily for my chronic pain. I only use 1/2 three times a day and it works well to keep things manageable. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/18/2010 2:26 PM (GMT -7)   
I'm not sure if this would be a good one to use for intestinal pain. It does tend to bind one up.

Besides, debilitated, I don't know if your doctors will be too happy about such a young person using a med like this for chronic pain. They took me off it for exactly that reason -- too young to have to deal with the problems that long-term use can bring...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/18/2010 2:36 PM (GMT -7)   
well ive been on fentanyl for almost a year. which makes oxycodone look like a skittle or a M&m
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 4/18/2010 3:53 PM (GMT -7)   
Hi, visiting from the UC forum. My doctors have always cautioned about taking opiates or other narcotics for chronic pain. I've actually seen in my nursing practice also that folks develop a tolerance and the med doesn't help, then it has to be increased. This happens over and over until the dosage can't be increased without killing the patient. I guess we healthcare people tend to think that's a bit extreme, lol.

Most IBD-ers I know try to maintain day to day with non-narcotic drugs, and save the big guns for when they have something exceptional - like surgery. You may want to talk to your doctor; a referral for pain management consult may be in order also.

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 4/18/2010 4:23 PM (GMT -7)   
Hey there,


I just caught your other post. I agree with the above posted here by some our wise members. :-)


Taking opioids for long-term use in inflammatory bowel disease patients is fraught with difficulty, as it may lead to opioid dependence and gastrointestinal dysfunction.



These adverse effects may lead to confusion regarding the status of inflammatory bowel disease activity.


Narcotic bowel syndrome (NBS) is a subset of opioid bowel dysfunction that is characterized by chronic or frequently recurring abdominal pain that worsens with continued or escalating dosages of narcotics.



I see from your history that you have nasty disease but please do consider a pain management clinic to develop an individually-tailored treatment plan just for you.



I wish you peace,



Kitt

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 4/18/2010 4:50 PM (GMT -7)   
I use the same as Nanners. It controls  the pain. I also use 2% lidocaine gel for the open/draining area,fistula and abscess by my anus. Most of us seem to need something PRN around here.

Mary Lynn


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/19/2010 7:15 AM (GMT -7)   
I think you will tolerate oxycodone, Like you said, you've been on fenanyl, so these should be ok.

I take vicodin, but occasionally have to have oxycodone, when my pancreatic pain gets too bad. The only
thing I've noticed with it, is the tendacy to give me a headache, but morphine does that to me too. Being
a migrains sufferer, I don't like to take this med too often. I often worry what I'm gonna do when I do
need stronger meds on a regular basisi.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/19/2010 8:52 AM (GMT -7)   
I was a bit hesitant to post this as i dont want sympathy i will do all i can to stop others from going thru what i did n it has CHANGED ME N LIFE PERMANTELY
I was over medicating on pain meds percocets n morphine
lost both parents n hubby left all within a couple of yrs
i got so bad i lost me
my daughter came home too find me face down in glass coffee table in a seizure
from there life support and a LONG stint in hospital
today i am free of those meds n yes they started helping my pain but literally numbed the person i was
i am now totally DEAF cannot hear a thing
have become less dependent on my 17 yr old daughter but i was fully dep on her at first

she is hurt n angry n i dont blame her
i was the one that did it not her
but she paid a heavy price n i could have died

PLEASE do not think percs are like m n ms as they are not
you build a tolerance and then one day your mind can literally snap
i also hv an issue with short term memory now

please DO find a good pain clinic this is not how you want to be is it

lyn..still living thank God n my doc n family / family here
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/19/2010 9:28 AM (GMT -7)   
Lyn, I'm so sorry to hear all that, but I can truly understand how it can happen, I've often worried about the
same thing, but thankfully, my tolerance of percocet and the stronger meds is not good, so I guess I'm lucky
in that respect. This is not sympathy, it's empathy so thanks for sharing, and lets hope that those seeking guidance
reads your post. God Bless.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/19/2010 9:37 AM (GMT -7)   
Thanks vicky
yes i believe pain meds have a place in DD but i needed to numb more pain n anxiety then i could handle at the time
my tolerance is very high as you no doubt understand im just happy it is over with n i still am here to share hoping i can help even if only one person ya know
huggs
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/19/2010 10:33 AM (GMT -7)   
Pain control is certainly an issue with IBD. When I start having colon spasms, anti spasmodics do not help and I have to take 1/2 a loritab. I feel really bad about it and it scares me a little but it means a big difference in my quality of life. Without taking it, I would be sick as a dog for a couple of days in pain. I suffered too long with pain and luckily I do not have to take it very often at all, maybe once a month. I think antidepressants are good for pain, you just have to find the right one or combination of them to work. It might help you.
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/19/2010 10:39 AM (GMT -7)   
im on an ad now n yes it helps me out alot ty
thats a great idea as well for those not wanting to take major pain meds imho
as i said i know the pain but i hv to deal with it so different now

ty
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/19/2010 2:07 PM (GMT -7)   
Yep, it's all about quality of life. Vicodin does that for me. But they tell me I'll need stronger stuff, but the longer I keep them
away the better I feel. (This is pain control for my pancreas)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/19/2010 4:29 PM (GMT -7)   
Unfortunately, issues that opiates raise in UC are not those in CD generally. We don't usually run the risk of Megacolon & other colon issues. Unfortunately, many GI's don't recognize the difference, EITHER..

Matthew

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/19/2010 8:23 PM (GMT -7)   
TES Matthew straight up n said very well imho
tk care you kk
huggs
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 4/20/2010 3:52 AM (GMT -7)   
I am very sorry to hear that some of you have had some terrible experiences with using narcotic medications for pain management, but this is not always the case for most people. I went down that route of not using pain medication and suffered so needlessly for years. I tried every single thing that I could outside of narcotics and finally with the advisement of an incredible internal medicine doctor and my G.I. decided to go down the lortab route. It has changed my life in ways that I never would have thought of and has helped immensely with my abdominal pain and arthritic pain. When this disease progresses enough, it becomes a chronic pain disease and it is not shameful or unwise to use a medication to treat that. If you can do that without the aid of a narcotic pain medication that is great, but if you can not it does not mean that you are doing something wrong.
There are a lot of old school G.I.s that have not caught on to the notion that antispasmotic medications will not solve all the pain issues. It is a completely individualized decision to decide if your situation would be better served by going with a strong medication. You have to consider your family history, your personality, your crohn's disease, and your addictive tendencies. If a person has a family history of alcoholism or drug addiction and carries the addiction gene, I would probably not recommend narcotics. As for the part that they bind you up, I consider that an amazing benefit to the medication and gravy on the original purpose of using the medication. If the medication is closely monitored by a responsible doctor or pain management clinic, they will be able to recognized if the medication is being abused or misused. They can also be responsible in the way that the medication is dispensed and make sure that a proper dosage is prescribed to help avoid the tolerance issues. You will eventually become tolerant as you will with most non narcotic medication also(anyone ever had to increase their remicade? I have) but your doctor can still increase the dosage responsibly or change you to a different medication if needed. To sum it up though, don't put off pain medicaton because of someone else's poor experience. There is always a chance for bad experiences with any medication but you may find that it ends up be a life changing medication similiar to what many others have.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/20/2010 6:03 AM (GMT -7)   
I DID SAY meds have a place n many do need them
i was taking them for physicak n emotional pain hu n thats not what they are for

i glad the lortab works for you

lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/20/2010 7:38 AM (GMT -7)   
Plus physical pain can litterly cause a cascade over the network of the brain triggering all sort of responses, including the emotional ones of fight or flight.  Because noone can really stop those fight or flight triggers and those can cause anxiety, panic, and depression if you are unable to escape the pain, which when it comes to crohns pain is very difficult escape.  So it is very easy to see how this issues are very intermingled and really is a good idea to treat both the physical and emotional aspects of pain. Take it slow, take it gentle, and always have a Doctor monitering your issues.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 4/20/2010 8:51:50 AM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/20/2010 9:17 AM (GMT -7)   
So so agree with you on that Navy you need to have docs total knowledge n care when coing off stronger opiayes

huus
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 4/20/2010 10:12 AM (GMT -7)   
I agree that strong pain medications are a blessing when they are prescribed and used appropriately. Like many of us, however, I have to resist their seductive powers. First, they do provide more complete pain relief for very severe pain. Add to that the fact that they tend to make us feel good in general - those endorphin receptors in our brains - and they can become a problem without our even realizing it.

Everything is a balancing act, I guess. I've had major pain constantly for more than 20 years, so I've had personal experience with the issue.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/20/2010 10:42 AM (GMT -7)   
It never ceases to amaze me, no matter how long I've been on this forum, this subject always get peoples
interest. Must be a hot topic :)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 4/20/2010 4:36 PM (GMT -7)   
Well, when you think about it, we don't have many options for pain relief because we can't take aspirin and other pain relievers that can cause bleeding. Last summer, I found myself in horrible pain with my colitis. So, in desperation, I took 1/2 of a loritab and found it relieved my pain quickly and it also stopped the spasms so I could actually have a bm. It was like a miracle for me after 20+ years of suffering with IBS/IBD with nothing to help. I was taking motrin in the past few years for pain relief until the GI told me to lay off them. So, perhaps this wouldn't be an issue if we had more options for pain relievers. We are backed against the wall on this one.
diagnosed 1/09 with colitis location: sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, prediabetes, high BP, fibromyalgia, GERD
low thyroid
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal
pexeva, rolaids, pepsid (as needed)
Blood test positive for Crohn's via prometheus ibd serology panel


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 4/21/2010 1:11 AM (GMT -7)   
I think that the reason that this is such a hot topic on forums is because of the black eye that people give the medication through the media. This in turn makes many of us feel guilty for even entertaining the thought of used narcotic pain medication out of fear that we will be labeled as drug addicts, drug seekers, or weak. It is nice to know that when you have legitimate pain that it is ok and justified to use these types of meds. Many of us are in such severe pain all the time without any answers and it is nice to know that we are not alone. It is nice to know that other people experience the constant battles that we have with E.R.s, G.I.s, or family members and are not wrong in standing up for ourselves.
Howlyncat, I caught that you were using it for other reasons and I respect and admire you for the fact that you recognized the problem and addressed it. I just wanted to make sure that the many others that read this and that may post on the subject or just follow it understand that one bad experience does not mean that you should have to suffer. It is something that should be taken into account but not the determining factor in one's decision. I was one of these people and see it from the view of the person who did not want the bad stigma but was desperate for relief of the pain and burdens that came with it

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/21/2010 2:45 AM (GMT -7)   
Stronger, non-addictive, painkillers are in development, apparently, and I think that will be a blessing for those of us with IBD.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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