so i may need an ablation

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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/20/2010 3:46 PM (GMT -7)   
I know it's not Crohn's Related... but I love you guys and i need the support.

POS: It can REALLY help the SVT's. and It is simple and done many many times.
CONS: 2% chance this procedure can give me a stroke or heart attack or a permanant pace maker. if there are complications.. They are.

Alternative. I go on medication but episodes can happen again.. They have not happened yet since I have been on the medication.

Anyone ever have one done?
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1658
   Posted 4/20/2010 4:01 PM (GMT -7)   
Each case is different but I have to tell you my experience. I had many issues with SVT and was referred for  ablation by the ER and I when went for a second opinion with my cardiologist, it was his opinion that my SVT was related to my chronic anemia and blood loss. I was placed on biologics and took high dose iron supplements and slowed the bleeding enough to rid me of the anemia and after about 6-12 months the SVT stopped and I haven't had an incident in 2 years. My advice to you is to get a second opinion and possibly a third opinion  because ablation is a very serious procedure. Best of luck to you! 
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions. 
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me. 
Learning how to love life and relax. 


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 4/20/2010 5:30 PM (GMT -7)   
I agree with pmedic. Unfortunately when your digestive system is not absorbing nutrients sufficiently, it can affect all parts of the body. My husband experienced palpitations and tachycardia when he was in the hospital a couple of years ago - not because something was wrong in his heart, but because his body malnourished. I think you should get your crohn's under control and in better nutritional status, and get a second and third opinion before you commit to a risky procedure.

I hope you get some answers soon. This must be very rough. Hang in there, and hopefully you'll be on the road to recovery soon.

(((Hugs)))
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/21/2010 6:19 AM (GMT -7)   
my doctor, who i love so much wants me to get my crohn's under control and be put on heart rate medication. she doesnt want me to have the ablation.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 4/21/2010 9:31 AM (GMT -7)   
i had ablation done on my SVT at 18 years. I'd suffered from it since i was 11 and the episodes were becoming more and more serious. I was on the meds, but being a typical stroppy teen would refuse to take them! It finally got to the point where it was lasting over 4 hours at a time. I had the surgery done under local anesthetic and i cried alot going in!! Since then (i'm now 24) i havent had a single problem. I was diagnosed with crohns almost two years later.

I dont regret the surgery at all, and i looked so much healthier. I actually had some color in my cheeks!

I think if the SVT is affecting your life and the meds arent working or you simply dont want to take them, have the surgery. If its not affecting your life then dont have the surgery but know that it is there should things change.

PS. my ablation was on friday the 13th!!
Dx - Crohn's - 2006, Depression = 2010
Currently - Humira fornightly, iron tablets, B12 3 monthly, prenatal vits+minerals
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks,
Allergic to Infliximab
Doing BSc (Hons) degree Equine Science - some support from uni. This year has had to be split in to two.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 4/21/2010 12:50 PM (GMT -7)   
The SVT's just started 3 days ago. This is why i am in the hospital. The medication is working but they are stopping IT I.V and giving it to me ORALLY. How Do i know i will absorb it all.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 4/21/2010 1:24 PM (GMT -7)   
forgive me, i thought you had asked if anyone had had an ablation surgery. i had so i replied with my experience of SVT and ablation surgery.
Dx - Crohn's - 2006, Depression = 2010
Currently - Humira fornightly, iron tablets, B12 3 monthly, prenatal vits+minerals
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks,
Allergic to Infliximab
Doing BSc (Hons) degree Equine Science - some support from uni. This year has had to be split in to two.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/21/2010 9:46 PM (GMT -7)   
Geeee, I have those all the time. I feel so much better when I am clean. Ohhhhh, you said ablation ...Thought you said ablution ...Sheepish grin,,,,,,,Never mind . Just pulling your leg, but I do agree you should avoid a risky procedure if possible.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Lili_Enigma
Regular Member


Date Joined Jul 2009
Total Posts : 24
   Posted 4/21/2010 10:27 PM (GMT -7)   
I have had an ablation - I posted to your older post too.

It is really important to get a full diagnosis first - is it an electrical problem brought on by an extra or faulty nerve? if so, the ablation will work, and the tachycardia cause is unrelated to Crohn's. If not, you need more information before doing ANY procedure. However, you also have to consider the sider effects of the heart meds. I have Wolf Parkinson White (I posted on your older post too) which is an extra AND faulty nerve. I was put on Digoxin for years. No one told us what the long term effects of this drug on the heart muscle are. Digoxyn (Digitalis) can cause SERIOUS issues all its own, as can many other heart rhythm meds. The ablation has a less than 2% risk rate if done by a specialist - mine has a .05% risk rate. And if you discuss in advance such things as NOT ablating if the extra nerve is too close to the AV node it is safer (no risk of blocking).

All I am saying, is what you decide needs to be based on a proper diagnosis and careful discussion of risks and benefits with your doctor. I had the ablation for my WPW, but I am NOT having one for my Inappropriate Sinus Tachycardia (my second heart condition), as it is NOT caused by an extraneous nerve. The cause is from outside of the heart and an ablation has a very low success rate, not worth the risk rate. I am having constant tachycardias nowadays, but it is due to POTASSIUM deficiency from the Crohn's. Potassium is a HUGE influence on heart rhythm. Perhaps the anemia and other dietary factors are an influence on the frequency of your tachycardias as well as the underlying condition?? Just be sure to ask your doctor about side effects and long term effects of your DRUGS too. :)
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