I don’t have Crohn’s Diease but I stumbled upon this forum and I was hoping that I could get some advice and experiences of other members. In October of 2009 I was diagnosed with a perirectal abscess. The Abscess was Drained and ended up being a 4.5 cm deep wound. I knew things were not healing properly with the wound site, so I went to a colon rectal surgeon. She confirmed that the it has turned into an anal fistula, 5 days ago she placed a rubber band type of seton and told me that in 6 to 8 weeks I would have to have the fistula cut open and allowed to heal.
My question about the seton ; I can feel the knots in my anal canal and its causing a massive amount of pain and it makes me feel like I need to have a bowel movement, is this a normal sensation? I was told to turn/ move it and when I did this I think I turned it to much, because the knots passed through the initial opening of the fistual. The pain has somewhat subsided but I can feel it rubbing against the incision hole now. I'm going to call the doctor first thing in the morning, but I didn't know if any of you guys had experienced this and maybe I'm just being overly worried.
My question about the fistula surgery is, how bad is the scar. I know everyone scars differently etc but I watched a video of the surgery online and it seems like a huge valley is just cut into your cheek, does it actually heal up a bit better than it looks.
I would love to hear about any of your experiences and ways that I can make recovery of the surgery go as smoothly as possible. I have a very low threshold for pain so I’m very nervous that this is going to be horrible pain for a very long time. Thanks again for any help or advice.
I've posted quite a few times about my abscess/fistula surgery. They don't "think" I have Crohns, but they always say they can never be sure, that Crohns can "do whatever it wants."
I had a rubber band seton placed, it looped up just from the inside of my anus about 2 inches up. My CRS did not tighten it for a month or so, just allowed it to drain the abscess. It was sore and uncomfortable for a while but felt so much different to me than the pain of the abscess and fistula that I had had for so long, that it was tolerable for me. My "knots" hung from the bottom of the loop and really didn't bother me if I had the gauze pad placed properly. Are you using gauze? It applied enough pressure that I eventually just couldn't feel it, kind of like how you forget you are wearing ring on your finger.
I also had an incision, to the right of my anus, to allow the abscess to drain and heal from the inside out. It freaked me out in the beginning, when I saw how bit it was- but I hear it wasn't so big compared to other people. My incision was about 2.5-3 cm deep, and I'd say about 3 cm wide, cut to the right of my anus. It has since healed up and you can't even see the incision, it has kind of just become one of those little "wrinkles." I still have some drainage, and have to wear a gauze pad, but the deep abscess is gone.
My CRS said this may be my new normal, I'm not sure yet. I have to go back and see him again in 2 months- he wanted the scar tissue to heal a bit more before he makes a final decision ( I still have a hard bump where the abscess/seton was, which I don't think is normal, but he doesn't seem too concerned). Overall I feel much better and I loved my seton, I felt sad when it fell out. Weird, I know. That little sucker helped me feel better!
I hope you have a positive experience! I can only speak for myself. Good luck!
I just saw your post- after my surgeries for a few days I tried to stick to bland soft foods, like chicken and rice, canned fruits, potatoes, pasta etc. Things that just kind of go through you. I do have to admit, after one surgery and being sick from anesthesia and not eating at all for two days, I HAD to have a fast food cheeseburger and fries, which I never eat. It was like hangover food :)
I was terrified of pooping for a few days until I realized it really didn't hurt worse than what I was already feeling from the surgery.
Good luck. I too lost 10 lbs before my surgery- it's all back on now :( But I guess that is good!