c-diff questions

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tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/22/2010 8:47 AM (GMT -7)   
Hi all! I have been doing really well on entocort and lialda. Dr says I will be on the entocort for several months. Pain has gone away and I am just experiencing some mild cramping mainly in he morning. My concern is that I never ever had issues with chronic diarrhea in all the 8 years I have been dealing with this. Now, all of a sudden it is 2-4 bouts of full on diarrhea first thing in the morning literally as soon as I wake up. I don't really attribute all of it to food because most days I eat very light and try to eat binding foods. I was on Flagyl twice towards the end of January and beginning of February. I know the website says it is rare to get c-diff from flagyl but I was wondering if anyone had had that experience. It did not seem like the big D kicked in until I was on the flagyl the second time. As of last week I have stopped losing weight for no reason which I take as a good sign. But I am so not used to not having formed bowel movements. It seems to be a morning issue because I can move around and get out the rest of the day. Should I be tested for C-diff? I do not feel bad or have anyother issues other than the diarhhea. I have taken immodium in the past when I would have minor issues and it would bind me up for days. Now if I take it I am going again the next day and that is so unusual for me! Also I have had periods of a few days where I have normal bowel movements again. so I do not know what to think!!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/22/2010 9:34 AM (GMT -7)   
I think if you had C-Diff you would be going WAY more than you are now. I think its just part and partial with having a Crohns flare. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 4/22/2010 9:38 AM (GMT -7)   
about this time last year I was sure I had c-diff. I ended up being admitted to the hospital the D got so bad. It was triggered by the antibiotics (cipro and Flagyl) that I was sure of. However I was tested for c-diff (a couple times) and the test was negative. It turned out to just be a lot of inflammation. I still think it was caused by the antibiotics and even my GI doesn't seem to want me on them.

I'd say get tested because it's easy enough to do. There are others on here who have had to deal with c-diff (not just fear of it like me!) so I'm sure they'll pop in soon.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/22/2010 9:41 AM (GMT -7)   
Thank you Nanners. That was what I thought too but wanted some other opinions. I am trying to get better about following up with drs and taking things to them. I was told to follow up with a GI for some symptoms I had last year and I did not. Maybe if I had I would not be in this flare..but..c'est lavie!! :) I like to get ideas here before I go off the deep end and my dr thinks I am a hypochondriac. It is hard transitioning from being that person who NEVER had to see a dr except for routine stuff to now have regular visits and seriously watching and analyzing my pooh. kinda funny I guess!!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/22/2010 9:44 AM (GMT -7)   
thank you sr5599. I will definiely keep an eye on it and if I progress to more than a few diarhhea in the morning I will definitely call and be tested. I feel like I analyze every little thing and it is annoying!! I told my dr I never want to go on flagyl again. By day 4 I was nauseous was having diarrhea and by day 6 throwing up and just the thought of taking the pill made me sick to my stomach. I have never had an antibiotic react that way with me!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/22/2010 11:55 AM (GMT -7)   
Usually when you have a C-diff infection there is a very foul odor to your stool as well as the number of times you are going. I've had it twice, years ago. But a few years ago I was deathly ill from some sort of virus and my God my poo smelled awful. When I got to the hospital the odor got me a private room because they didn't want to take a chance of infecting anyone else in case it was C-diff. After they ran the tests I was clear, but I was happy to take the private room!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/22/2010 1:50 PM (GMT -7)   
thanks suzanne, that is good to know. no foul smelling poop for me. It just concerned me because it is seriously full on diarhhea. My history has been 2-4 regular bowel movements a day and sometimes I would even skip a day. But, so far unless I just eat like crap it is confined to the morning so I am thinking c-diff would not do that. But I am going to keep a watch on it.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)

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