Any success stories?

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Regular Member

Date Joined Jan 2010
Total Posts : 69
   Posted 4/22/2010 6:02 PM (GMT -6)   
   I know people do not come on the forums to talk about how awesome they are doing. But these forums are sometimes pretty negative. All I read about is fistula after abscess, followed by obstruction and surgery.
   Anyone on here (or anyone know someone) that is doing or has been doing fairly well? How about some success stories? Thanks.

Regular Member

Date Joined Mar 2010
Total Posts : 300
   Posted 4/22/2010 6:18 PM (GMT -6)   
well, I am not in remission (yet) but I sure as heck feel a lot better with my treatment. Keeping my fingers crossed that when I ween off entocort the inflammation will not come back but for today I am feeling pretty good.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)

What A Life
Regular Member

Date Joined Mar 2010
Total Posts : 116
   Posted 4/22/2010 6:40 PM (GMT -6)   
Well I got over a flare this past week... Just had some constipation and pain, followed with a few days of D. I'm doing well now; just taking my pentasa. I've been eating really poorly recently and stopped working out cause I severely sprained my ankle... It threw my body for a loop. I was still able to make it to my friends bachelor party and live it up for 3 straight days though!! Happy to say I feel pretty good; just a little bloated from the heaping pile of onion rings I just ate ****!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.

Regular Member

Date Joined Mar 2008
Total Posts : 381
   Posted 4/22/2010 10:53 PM (GMT -6)   

55 years of good health before being diagnosed with Crohn's after my first colonoscopy. Have had a resection but very few symptoms ever. No side effects from the med I am on. Golf, curl and ride my horse. Have had a stress filled year (my Dad just passed away from bone cancer) and other issues I have posted but as of today things are a whole lot better.

Life is good and I am thankful every day for family and friends including ones on this forum. Thank you for your support.

58 yr. old F dx. CD 07/07
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009

Veteran Member

Date Joined Mar 2007
Total Posts : 1471
   Posted 4/23/2010 3:35 AM (GMT -6)   
I have posted this same topic before myself. I think that the ones that are doing well are reluctant to post, as it seems almost unfair to others who are going through such tough times. We shouldn't look at it like that, as we all need to hear that there's hope for success out there. I personally enjoy reading posts about how well and how successful certain meds are. 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 4/23/2010 3:59 AM (GMT -6)   
I'm in remission and have been for 14 months! And have spent the majority of the eight and a bit years I've had Crohn's in remission, I'm quite lucky even though my Crohn's is classed as severe it is remissive, just means when I'm ill I'm really ill but inbetween I'm great!! I just loiter on here mainly as I'm a massive procrastinator lol and also the people here gave me so much help whenever I felt poorly its nice to think I might be able to give some of that back. I also know 3 people in real life who have Crohn's and they're all doing great too.

Regular Member

Date Joined Jul 2008
Total Posts : 97
   Posted 4/23/2010 10:28 AM (GMT -6)   
I'm am a sucess story! I was diagnosed in May of 08, my dr said he hasn't seen a worse case than mine, couldnt even finish my first scope cause my intestines were so thin! Started Remicade and have been in remission ever since! It's my miracle drug! SO FAR!! LOL  I haven't had any flairs since! THANK YOU GOD!! My biggest complaint is fatigue but other than that Im GREAT!!
Tannie 27 yrs Crossett,AR *Currently in Remission*
dx May 08 ,Just finished a 8 month round of pred in January 09. Remicade every 8 wks. 
Taken off 6-MP due to liver toxicity 09/08
Taken off of Asacol also 09/08

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 4/23/2010 10:34 AM (GMT -6)   
Well I have lived with this darn disease for almost 35 years and I have been in remission for over 5 years. I still have bumps in the road once in awhile, but for the most part I am doing well. I credit my maintainence meds for keeping me this way, thats why I am always a big proponent of maintainence meds. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2005
Total Posts : 1710
   Posted 4/23/2010 3:08 PM (GMT -6)   
Knock on wood, I've been feeling soooo much better since my surgery in January. Since being diagnosed in '82 I've had many more good healthy feeling years than flaring or being symptomatic. I get up & go to work, enjoy my grand babies and my dog. It's gardening season now so I'll be outside enjoying that now too. CD symptoms are almost nil currently, no D and heartburn controlled with Nexium.

I echo Nanners, stay on maintenace meds if you can -- I know from experience on this one. Listen to your body, it will tell you when something is up.

Regular Member

Date Joined Apr 2009
Total Posts : 382
   Posted 4/24/2010 10:25 AM (GMT -6)   
I'm in total remission. There are a lot of people who are doing great and have no reason to be on these message boards anymore. It's expected that the posts will be mostly from people who are having problems because they want their questions answered.
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil

Veteran Member

Date Joined Nov 2007
Total Posts : 4056
   Posted 4/24/2010 5:04 PM (GMT -6)   
I have IBS which is always an irritating challenge, but my Crohn's has been in remission for a couple of years. I've never needed any surgeries...hoping it stays that way!
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Marina B.
New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/26/2010 4:56 PM (GMT -6)   
To jpnutritionfirst: What does "Organic SCD" stand for? Thanks!

Veteran Member

Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2010 11:52 AM (GMT -6)   
I have been doing fairly well... This being April means that there's a lot of rain... which tends to play havoc with my joints... but tummy-wise I'm doing a lot better than I used to...

My biggest problems right now are that I get fatigued too easily... and I'm starting to go on an emotional decline again... which could spell trouble Crohn's-wise if I don't get it under control soon...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Veteran Member

Date Joined Sep 2005
Total Posts : 769
   Posted 4/27/2010 6:05 PM (GMT -6)   
I know how depressing these forums can be without any of the ‘light’ that remission tales can bring.

I’m 24, and I have had Crohn’s (what my specialist terms severe and aggressive crohn’s colitis) for 5 ½, almost six years. I was diagnosed in my 1st yr of university and though I flared constantly throughout my degree, I finished with a high GPA!

Throughout uni I had a negligent GI who neglected my condition to the point that I had multiple abscesses and fistula, and through desperation I took myself to the ER and had multiple hospital stays before dumping my GI for a fantastic surgeon who put me onto an absolute gem of a specialist – a leader in the gastroenterology field in research and treatment in Australia.

I am now on remicade, and have been since October last year. I felt the benefits right away and my abscess wound from surgery and the fistula began healing days after my first infusion.

I am still in remission (or what I would term remission) and feeling great. I still have odd days where things are bad because I have a stricture, but all in all, compared to ‘life in a flare’ – I feel fantastic. I now really appreciate the good days, and I feel positive that whatever happens I have a great team of doctors behind me. I work full-time and am going to begin my honours degree at university in July this yr. I am proud that I got through uni and kept working despite Crohn’s and abscesses! I won’t let this darn disease hold me back!

Regular Member

Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 6:43 PM (GMT -6)   

Well, I am only new to this forum and as much as there are alot of sad and "going thru tough times" stories, from what I can make out alot of those on the forum have also enjoyed bouts of remission whereby they have felt really well. I guess it is in those times that even though people are experiencing flares and are really unwell, they also know what it is like to have times where they are feeling well and strive to get back there. Reading about times where people are in remession and how they got there would be a very encouraging for those that are suffering - gives us hope and even a possible new direction of treatment to take to our doctor to try. I will definitely let everyone know when I am feeling better, thats for sure!

37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium

New Member

Date Joined Apr 2010
Total Posts : 8
   Posted 4/27/2010 10:54 PM (GMT -6)   
I was diagnosed with Crohn's when I was 17 years old on March 2, 2005. I'm now 23 and I've been in relative remission since May 2005 and have been fistula and abscess free since early 2007.

Prior to being diagnosed I weighed 174lbs (5ft 8in) and played high school football. I dropped to 135 lbs in less than a month and was bed ridden with a fever for 5 days before the doctor finally decided that imuran, prednisone, and cipro alone wouldn't be enough. With my first dosages of remicade immediate relief came and as I mentioned within 2 years I was complication free. I am still traumatized by the pain I underwent when first diagnosed. I had a marble sized abscess that had to be excised and drained with a catheter thingy (looked like a small straw), which was by far the most painful thing I've ever experienced. The abscess site was SO tender and this rigid straw thing would dig into it bone deep. I had to walk around school doped up on lortab with a straw sticking out of my rear and a packing that absorbed..drainage. I was only 17. After the catheter was removed an EUS discovered several fistula tracts and in order to prevent further abscesses, a fistualectomy was done in addition to a seeton placement. I had the seeton for about 10 months, which meant keeping a packing up my crack to collect drainage from the fistula hole kept open by the seeton. The fistualectomy scared me so bad. I got into the shower post surgery, took my packings off and blood spilled everywhere. It looked like a pig had been slaughtered in my tub there was so much blood. I felt around near my anus and found a hole that I could insert 3 fingers about 2 inches deep into (fistualectomy). It was just scary. I feared I was horribly scarred now. How the hell would a hole like that heal up?(guess what though, it did heal!) And you can imagine how it felt to defecate with all of this going on...felt like acid coming out. I've been fortunate and not had anything removed from my internally though.

That is a small glimpse at my story. I've also battled severe life threatening fungal and bacterial sinus infections that required surgery on many occasions. I've been hospitalized with pneumonia, laser treated hand warts weekly for 2 years (SO PAINFUL), fought off molluscum and even MRSA.

Where there is a will there is a way. Despite all of this, I will be graduating in Fall 2010 with a degree in Civil & Environmental Engineering. I worked all through college, paid my way, dealt with crohn's and all of it's complications, and gained my weight back and more. I now weigh 192lbs...can you believe that!!!?? I have crohn's and I weigh 192 lbs with approx. 10% body fat. I can bench press over 300 lbs, and I've NEVER ONCE taken anabolic steroids. If I can do it, SO CAN YOU!

Please never lose hope. NEVER. This disease attacks your mind as much as your body. Keep your heads up...

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 4/28/2010 2:38 AM (GMT -6)   
well when i went to go for surgery in Oct..the Remicade had pretty much gotten rid of all my rectal inflammation and my fistual was removed...i call that a success...there are lots of good stories out there i am sure..lots of amazing doctors and wonderful surgeons..who really save us when we truly need it..

 Crohn's Lupus Hyperthyroid..Pentasa Remicade Fistula tag removed!


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