I am so tired why am I so tired...

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/23/2010 8:36 PM (GMT -7)   
So tired all the time. No energy, lots of pain. My God when this all end. I feel I can't fight any more.
Sometimes I wish I could lay down and sleep and maybe never wake up again. I've just had it with
all the diseases I've got....

Sorry for the despondency, but quite honestly I feel like crap. I have 2 more tests coming up, but even
they seem like a waste of time, it's more of the same old, same old....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1658
   Posted 4/23/2010 8:45 PM (GMT -7)   
I know it is so hard but we crohnnie's are stronger than this disease! Everytime I get to the point that I feel overwhelmed I tell myself it could always be worse and how lucky I am to be alive. I think about my family and the beauty of the world and I continue to fight, just as you should. Be strong, things will get better. If you feel like you just can't cope, it may be time for some medical intervention to help with the depression. Please keep your chin up and keep fighting. We are here for you and are fighting right along side you!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
No surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions. 
Been through MANY medications with terrible results.
Currently on Cimzia, Welchol (for crohns), Ambien (prn), xanax(prn), Cod Liver Oil and Feosol iron.
Organic diet has made a big difference for me. 
Learning how to love life and relax. 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/23/2010 8:59 PM (GMT -7)   
Thanks, but it's more my pancreas problems right now, they are making me feel so yucky...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/24/2010 1:08 AM (GMT -7)   
Huge hugs to you, Vicky. Fatigue is so hard to cope with, isn't it?

Do you have many commitments there? Are you able to take some time out from the demands of real life and just rest? I only share half your illnesses so this may not be true for you, but I find that the best way to overcome the fatigue is to just rest, whenever possible, when it strikes, rather than trying to push through it.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 4/24/2010 1:18 AM (GMT -7)   
Don't be scared of Remicade, it helps.  I took it for 2 years and now I am on Humira which I give myself every 2 weeks.  Be afraid of prednisone, and it's long term affects.  It is really comforting to be on a site that there are others going through the same pain.  Our familys' don't understand because they feel helpless.  Kind of like us!

kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 4/24/2010 1:22 AM (GMT -7)   
I have realized that alot of Crohns Patients are getting Lupus and FM,  I want to know where you live?   I bet you are in a moist, tree filled environment?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/24/2010 8:02 AM (GMT -7)   
Hugs Vicky!! I am currently in remission, but I am still tired every single day. In fact my husband and I joke about me always having to take a nap before I go to bed. I agree with Ivy, if you feel tired, do rest. Hugs!!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/24/2010 8:24 AM (GMT -7)   
Ivy, my only commitment, is babysitting my Grand children. I have the Baby (Christian 14 mths old) 3 days a week,
and his brother (Aidan 41/2 yrs old) 2 days. The other day he goes to daycare. While I love them to bits, and I love
to have them, because in a round about way they keep my mind off my problems, but here lately, I have to admit
it's getting a little too much. BUT, being a stubborn British person, I just don't want to give in!!
My pancreas specialist told me that my blood work indicates I'm unwell right now, So Ivy and Gail, I will take your
advice to try and rest, but even when I am resting I still feel exhausted (if you know what I mean).

Thanks for caring. xxx
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4096
   Posted 4/24/2010 3:16 PM (GMT -7)   
I'm so sorry Vicky. I don't have any advice...I hope things get a little easier soon!
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/24/2010 3:28 PM (GMT -7)   
"Even when I rest I feel exhausted": I know exactly what you mean, Vicky. It's so hard, and I'm so sorry.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/24/2010 5:11 PM (GMT -7)   
I know this feeling, I had it almost all winter long. Fighting the Strep A infection & my Anemia ( which I didn't even know about at the time) all I wanted was the couch so I could lay down..
<<<<HUG>>> Hang in there Girl!

Sincerely,
Matthew
PS you seem to be getting depressed, be aware of it, and beware!

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 4/24/2010 6:41 PM (GMT -7)   
You are amazing that you can watch your grandkids while dealing with this stuff. You do need to take care of yourself though. I admire your strength.
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/24/2010 7:18 PM (GMT -7)   
Thanks every one for your kind words, it really does help...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/24/2010 9:12 PM (GMT -7)   
Add my support to your list. There are days I don't seem to wake up. It's truly disheartening at times.

Try to cut yourself some slack, and take care of yourself as best you can.

Crohn's sucks and pancreatitis is nasty, in a way your body's demand for sleep it it's way of seeing to heal itself.

I hope you get some relief soon,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5854
   Posted 4/28/2010 3:37 PM (GMT -7)   
     How do you find the stamina to watch your grandchildren?  Thank God I was fairly healthy when we had to watch ours.  I didn't get UC until I was 52 and had a few years remission off and on.  At the time, our granddaughter was 6 and grandson 3.  Our daughter was going through a bad divorce and almost lost her house...terribly stressful times.  My ulcerative proctitis has been flaring almost constantly since May of 08.  Our grandkids are now 13 and 9.  There is NO WAY I would be able to watch them now.  My daughter was able to secure a position back with the federal government where she worked before having the children..whew.  Good pay, good benefits and lots of time off.
     I hope you are feeling better soon.  The Humira seems to be working for me, so far.  Remicade failed so I am cautiously optimistic.  Surgery may be in my future, but I don't even want to think about that now. shakehead .
 
Ulcerative Proctitis since Sept of 1998. Hospitalized for eight days.  Prednisone, Asacol, Rowasa enemas.  Two year remission. Flare..switched from Asacol to Colazal.  Two year remission.  Started 6MP in 2002.  Flared yearly from 2003 to May of 08.  Hospitalized for ten days in May of 08.  Flaring more often since.  Off 6MP. Remicade failed. Now on Humira, Colazal, 20 mgm of Pred and tapering, Cort enemas, Canasa, Calcium with D, Benecar with water pill for blood pressure.  Ambien/Tylenol PM for sleep.

 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/28/2010 7:46 PM (GMT -7)   
Hi Christine, actually I don't know where I find the energy, but as I said before, they do take my mind of things.

I can't take Remi or humira, actually none of the big gun meds. So I'm down to using low dose prednisone (can't have
high doses over a long period due to my bones) If that doesn't keep me ticking over, then surgery is my only alternative.

I really think right now, dealing with 3 diseases is taking it's toll. Plus we're also going through a stressful time financially,
the same as many others. BUT it seems to suck more when you get to our age, should be looking for a decent retirement,
and wham, you end up thinking you'll never retire. Not such a good place to be...

Thanks for your post.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/28/2010 8:47 PM (GMT -7)   
When it rains... It pours...

I'm sorry you're having such a hard time, Dunny... I hope things get better for you soon... *Hugs*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 4/28/2010 8:48 PM (GMT -7)   
Thanks Celey.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

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