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leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 4/24/2010 10:05 AM (GMT -7)   
Ok. So, I was in the hospital for 3 days almost 2 weeks ago due to some sort of flare. Extreme pain on my left side, 20+ bathroom trips, was passing nothing but mucus with blood streaks by the time I went in to the ER. They admitted me, put me on Flagyl, Levaquin, and prednisone.

A week later, my doctor ordered a colonoscopy.

It came back completely clear, biopsies included.

What the HECK?? I am completely baffled, as is my doctor. I'm still having pretty steady pain on my left side, but nowhere near the level it was when I was in the hospital. Bowels are close to normal (5-6 trips a day), but I'm still on prednisone, which usually keeps things fairly calm.

Anyone have any great ideas or suggestions? I'm at my wit's end with all this. It's impeding my ability to work, enjoy my toddler, go out, etc. Help. :(
30/f
chronic active colitis/possible Crohn's - unspecified IBD
Lialda 2x/day
Entocort 9mg 1x/day
Darvocet or Tramadol as needed


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 4/24/2010 3:01 PM (GMT -7)   
A couple of years ago, I was having severe Diarrhea. The docs thought it was a Crohn's flare and kept increasing my prednisone, which only made everything worse. They finally tested my stool and found out it was Salmonella...Cipro cleared it up. Maybe you had some sort of bacterial infection, which would cause all of your symptoms, but not show up on a colonoscopy. Now that you have had the antibiotics, you may have cleared the infection. How are you feeling now?
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 4/24/2010 9:08 PM (GMT -7)   
I agree with gumby44.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/25/2010 7:42 AM (GMT -7)   
Another thought is to request a Pill cam test. This test sees areas where the scopes can't reach. Good luck and I hope you feel better soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 4/30/2010 8:43 AM (GMT -7)   
They've actually tested my stool repeatedly to no avail....everything negative. This has been ongoing for a few years now - most times I get scoped, it comes back with active colitis, but nothing else. This time it just came back totally clear, which has everyone stumped.

Nanners, I'm supposed to have the PillCam done in the next month.....hopefully that will help.
30/f
chronic active colitis/possible Crohn's - unspecified IBD
Lialda 2x/day
Entocort 9mg 1x/day
Darvocet or Tramadol as needed

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