newly diagnosed with crohns

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Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 4:15 AM (GMT -7)   
Hi all
 
Three weeks ago I was diagnosed with crohns disease. I have been unwell on and off for 2 years with fatigue, bloating, excessive sweating and running to the loo.
 
I have been to my doctor and have been misdiagnosed several times, up until 3 weeks ago when I had a gastro/colonoscopy. 
 
I am now under a GI and am on prednisone.  In the next month or so while I wean off the prednisone my GI wants to start me on a drug called imuran. 
 
I am very nervous about the diagnosis, treatment and wonder if I am ever going to feel "healthy" again. Currently I am battling with constant sweating, bloated stomach, insomnia,  very fatigued and running to the loo.  I guess  I am what is called in a "flare-up",pretty sure some level of anxiety has set in too, because my whole life seems to have stopped.  Havent worked for 2 months (too fatigued and sweaty).
 
Wondering if any one out there who has suffered the same can shed some light on how they controlled their symptoms and is this a normal part of crohns?  Do you ever feel well again?
 
Thanks
 
Charlee
 

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/26/2010 5:30 AM (GMT -7)   
Yes most Crohns patients do feel well again, often for long periods of time. The reason you feel so bad is that you have had active, untreated disease for quite some time. The pred is the first step in bringing the inflammatory condition under control, and the imuran (which is widely and successfully used as a maintenance drug) will very likely put you into long term remission, or at least significantly reduce the severity of your inflammation. If not, there is a major arsenal of Crohns drugs. Fact is most Crohns patients live fairly normal lives AS LONG AS THEY REMAIN ON MAINTENANCE MEDS, something that cannot be stressed too strongly. The danger is when some people say, well, I feel fine now so I no longer need these daily pills. And then you end up hospitalized or having surgery. There is a lot of good info on this and other Crohns sites, although it is important to realize that there are also some sites and posts that border on quackery . . . for example, someone will likely come along soon and tell you the answer is all diet modification or some such . . . sensible Crohns treatment is in fact a combinattion of sensible eating, the right meds and regular care from a qualified gastroenterologist.

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 5:41 AM (GMT -7)   
MikeB

Thank you for replying. And thank you for the advice. Although I have a GI specialist, I think that most of my knowledge and good support will come from others with the disease too. You are right in that there are many different web sites on the net and lots of advice on things like diet only or herbal remedies only. Although I desperately wish diet could alone help, I am readily realising that its not the only answer! Will definitely stick with your advice. Just still in shock, very nervous about the future and yes, scared too. Would give anything to just wake up to say it was a bad dream..still in shock!

Charlee

tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/26/2010 5:51 AM (GMT -7)   
charlee, welcome to the forum. I found this site back in February when I was diagnosed. I can definitely tell you even though I have been diagnosed with only mild crohns there were days I thought I would NEVER feel better. But hang in there because it does get better. I am currently on Entocort for inflammation (low dose steroid) and Lialda which is an antiinflammatory. I went for months with cronic pain in my abdomen and finally gave in and saw a dr. I have had mild symptoms on and off for 8 years and was misdiagnosed as having IBS so it is a miracle I had no significant damage. My best advise would be to form a comfortable relationship with your GI and his staff. Never underestimate the power of the drs staff. They are the stopping point between you and your doc. As far as diet my doctor really did not advise me on that because everyone with crohns seems to be different. I can handle just about anything in moderation if my stomach feels ok. It may take you a little bit to navigate foods and see what bothers you and to what extent. And as the other poster mentioned stay on maintenance meds. Diet alone cannot treat this disease. Some people will tell you they are on the SCD diet and have been in remission for years but the problem is this disease can be active and causing damage and you may feel fine and not realize it. The hardest part for me was coming to grips with the fact that I have a lifetime chronic illness. But it can be managed. Get a good support system and know this board is always full of people willing to help.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 6:13 AM (GMT -7)   
tewcute,

Thanks for your reply! Believe it or not I am already feeling a little better just knowing that there really are others out there! Will take on what you have said about the doctor. I guess having been misdiagnosed with a miriad of doctors appointments with a GP over the past 2 years has had me "loose" a bit of faith in the medical field, even though I know they are the ones that can help me. The bright side is (I guess) finally having a diagnosis at least. If I could just have a day off from the symptoms to get my head around it all! Funnily enough, I have worked out that lactose milk and breads/wheat/?gluten makes me worse. Sticking clear of those for the moment. Lots of homework on the net with the crohns sites as a "beginners guidence" but it seems to be an individual thing. Good for you on having mild crohns only, after my gasto/colonoscope the surgeon said I had colitis from "top to toe". Starts at the oesophogous and ends at, litterally the end. Lots of bloating, gas etc. Good luck to you and I hope that you can remain with only a mild form of crohns.


Thanks

Charlee

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/26/2010 8:01 AM (GMT -7)   
Hi Charlee and welcome to the best Crohns forum out there. I have to agree with the above suggestions given by MikeB. Right now you are in a flare up, but once the Pred starts kicking in and you start the Imuran you will see better days. But as MikeB suggests if the Imuran is not the one for you, there are always other options. For example, I didn't do well on Imuran, but they tried me on the sister med 6mp and I did much better on that one. I am currently maintained solely on Asacol and it works well for "me". As far as diet goes, its important to remember that diet is very individual for each us. Some follow the SCD or Makers Diets and they work well for them. I personally follow a low residue diet all the time and it works best for "me" and in my opinion less restrictive than the the other diets. But as I said some have had success with those diets too. Also as MikeB stated you should ALWAYS consider diet and medications as complimentary of eachother. I learned the hard way what happens when you do not treat this disease at all times. After my first couple of flares once I quickly got them under control I decided I didn't need to take my meds all the time. What happened is while I was busy getting on with my life, the Crohns was still in there doing its damage on a microscopic level unbeknownst to me until I was completely obstructed and needed emergency surgery. And you will hear many of the same stories on this very forum.

I also want you to know that there is life with Crohns too. I have had this disease for almost 35 years and MikeB almost 40 years. For myself I have had 3 grown adult daughters all conceived and born after my diagnosis, 5 grandbabies, a wonderful husband, and been at the same job for over 20 years.

Again welcome to Healingwell, and feel free to ask any questions you might have, one of our supportive members will be along to answer any questions you might have.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 3:50 PM (GMT -7)   
Sorry for the late, "thanks for your reply" but I had to go to bed after my last enty. Live is Australia, so my time is probably not your time! It is a great forum. Glad I came across it. I've only had the net on since diagnosis believe it or not, so I am very new to all of this. Some great advice from you, am off to see a new GP today who will hopefully give me a little more talking time with him and a "not so rushed appointment". Will check in on the forum today with some more questions - I have some other symptoms which I am not sure if they are related to crohns or not. Will be interesting to find out if others have had the same
Thanks again
Charlee

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/27/2010 12:05 AM (GMT -7)   
scool Welcome to healing well Charlee and don't worry about late responces as us members live through out the world. This isn't chat where everyone is on at the same time. For instance I'm in BC Canada and it's just past midnight for me now. From my experience when I came off prednisone away went the fatigue as well, hope you get the same result Rob. :-)
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Ellie81
New Member


Date Joined Apr 2010
Total Posts : 7
   Posted 4/27/2010 1:39 PM (GMT -7)   
Welcome to the forum! I was diagnosed in Aug 09 and all I can say is give it time! My meds are changing on a monthly basis and you'll have good days and bad days but this forum really helps answer a lot of questions you may have and gives you a lot of support.

Take care!

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 4:29 PM (GMT -7)   
Thanks Rob and Ellie81

This forum is definitely a great part of crohns - yes..I have found something good about crohns!
Heaps of support and advise - probably the best medicine prescribed and you dont need a medical degree! Its easy to feel like your the only one, but a forum like this is a constant reminder that people throughtout the whole world are with you - very relieving.

thank you all

charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/27/2010 4:30 PM (GMT -7)   
Welcome to HealingWell! Sorry you have to be here though..

Sincerely,
Matthew

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 4/27/2010 4:35 PM (GMT -7)   
Hi Charlee,
Welcome to Healingwell!
This is a great web-site! I have made so many dear friends here! I was dx with Crohns in 05' but I think I had it for some time before....ended up having complete blockage! Anyway,  this website is a comfortable/confidential  place to come and talk about ANYTHING...which is super, especially if you are home alot.
I couldn't have wrote it better (what MikeB said!!!) he has a way with words:)
I agree that taking your med's prescribed to you by your Gastro Dr. in combination of diet. You'll become good friends with your Gastro Doc..at least I am cuz' I see them so much!
I was prescribed pred..just like you and then Imuran and Asacol together..then just Imuran over a 1 1/2 year time period.  After a 1 1/2 years of this combo...I needed a resection to remove the infected area and it was the best thing I ever did so far. Now, on Imuran and haven't had a big flare since. I do however have some complications of the area removed...extra D n' stuff! but it is still better than it was. WAY BETTER!! There are up and down days... with any Auto-Immune disease. You will learn to understand what does or doesn't work...and it will all become second nature. truly!
I would sugest keeping a food diary. REALLY helps... to look back on it. Also, it is super normal to feel shock! I couldn't even write on this website for a year! I just would read and get freaked out and go into denial...haha..but in the long run I couldn't deny that all these people are my "peeps"
Good Luck!
Welcome
Heather
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 4:53 PM (GMT -7)   
Thanks again, and again and again!!!

I cant believe the amount of support since joining. And I cant believe what alot of you have been thru and yet you are still here, lending support, ideas encouragment etc. Its very scary to think that I too will be under the knife (possibly serveral times) throughout the rest of my life, and have to overcome some of the most scariest complications, but at least I know there are others out there who know what it is like and can help get thru the tough times.

Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


engineer555.9
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 4/27/2010 9:19 PM (GMT -7)   
I'm copying and pasting my post to a "success stories" thread I just made. I was searching around when I stumbled upon this site. I read a few touching stories that inspired me to join and share mine. In short, yes you will feel well again. It is entirely possible, and has been the case for me, that you will feel entirely disease free for years. Where there is a will there is a way. You need to consider being proactive about your health in general now. This is a life long disease and you will have to forever eat healthy, exercise regularly, and rest your body and mind from daily stresses. You can do it, just like the millions of others who have before you :)

"I was diagnosed with Crohn's when I was 17 years old on March 2, 2005. I'm now 23 and I've been in relative remission since May 2005 and have been fistula and abscess free since early 2007.

Prior to being diagnosed I weighed 174lbs (5ft 8in) and played high school football. I dropped to 135 lbs in less than a month and was bed ridden with a fever for 5 days before the doctor finally decided that imuran, prednisone, and cipro alone wouldn't be enough. With my first dosages of remicade immediate relief came and as I mentioned within 2 years I was complication free. I am still traumatized by the pain I underwent when first diagnosed. I had a marble sized abscess that had to be excised and drained with a catheter thingy (looked like a small straw), which was by far the most painful thing I've ever experienced. The abscess site was SO tender and this rigid straw thing would dig into it bone deep. I had to walk around school doped up on lortab with a straw sticking out of my rear and a packing that absorbed..drainage. I was only 17. After the catheter was removed an EUS discovered several fistula tracts and in order to prevent further abscesses, a fistualectomy was done in addition to a seeton placement. I had the seeton for about 10 months, which meant keeping a packing up my crack to collect drainage from the fistula hole kept open by the seeton. The fistualectomy scared me so bad. I got into the shower post surgery, took my packings off and blood spilled everywhere. It looked like a pig had been slaughtered in my tub there was so much blood. I felt around near my anus and found a hole that I could insert 3 fingers about 2 inches deep into (fistualectomy). It was just scary. I feared I was horribly scarred now. How the hell would a hole like that heal up?(guess what though, it did heal!) And you can imagine how it felt to defecate with all of this going on...felt like acid coming out. I've been fortunate and not had anything removed from my internally though.

That is a small glimpse at my story. I've also battled severe life threatening fungal and bacterial sinus infections that required surgery on many occasions. I've been hospitalized with pneumonia, laser treated hand warts weekly for 2 years (SO PAINFUL), fought off molluscum and even MRSA.

Where there is a will there is a way. Despite all of this, I will be graduating in Fall 2010 with a degree in Civil & Environmental Engineering. I worked all through college, paid my way, dealt with crohn's and all of it's complications, and gained my weight back and more. I now weigh 192lbs...can you believe that!!!?? I have crohn's and I weigh 192 lbs with approx. 10% body fat. I can bench press over 300 lbs, and I've NEVER ONCE taken anabolic steroids. If I can do it, SO CAN YOU!

Please never lose hope. NEVER. This disease attacks your mind as much as your body. Keep your heads up..."
Age: 23
Gender: Male
Diagnosed: March 2 2005
Weight before diagnosis: 174lbs
Weight at sickest: 135lbs
Current weight: 192lbs 10% body fat
Current medication: Remicade 5mg/kg e. 7wks; Veramyst 27.5 mcg, Singulair 10mg

I joined this forum in hopes that my success story will inspire others to be proactive about their condition and to never lose hope.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 10:04 PM (GMT -7)   
engineer555.9,

Wow!! I dont know where to begin. You have been thru so much. I dont know how you have pulled off studying for a degree and are just about to complete it. You definitely are a success story. I agree with you in that the mind has to stay healthy too. I just wish it would stop thinking of all the negatives and focus on the positives. I guess I'm scared of what is too come. When you read stories of multiple surgeries, life-threatening situations, pain, inability to do the day to day basics and very little understanding or their lack of knowledge about the nitty gritty of crohns from family members it just seems as though you are getting more and more removed from the life you once knew. Thats why this forum is so helpful. thanks for writing.

charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


engineer555.9
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 4/27/2010 11:20 PM (GMT -7)   
Charlee, my advice to you is learn everything you can about the disease. During the first 2-3 years of college I did several research papers on Crohn's. The refereed journals I had access to really helped my perspective. Prior to any doctor visits with your GI, I recommend you have a list of things you want to ask.

This disease is very different for each individual. Certain meds work for some people that do not work for others, some people can still drink alcohol, others cannot even have a sip, etc etc. So on that token, don't be frightened by stories of surgery after surgery. It's entirely possible that your Crohn's will be under control in no time at all with little to no bumps in the road. And if not, these stories can help you see that regardless of what happens, even in worst case scenarios, you can live a relatively normal life.
Age: 23
Gender: Male
Diagnosed: March 2 2005
Weight before diagnosis: 174lbs
Weight at sickest: 135lbs
Current weight: 192lbs 10% body fat
Current medication: Remicade 5mg/kg e. 7wks; Veramyst 27.5 mcg, Singulair 10mg

I joined this forum in hopes that my success story will inspire others to be proactive about their condition and to never lose hope.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/28/2010 12:29 AM (GMT -7)   
engineer555.9,

I am certainly in the infancy of learning about the tx and mx of the disease. As with the commom cold, you can have a bad time with it or get thru it relatively unscaved! However, this has most certainly been the biggest health challenge of my life. Fear of the unknown, while finding out of the possibilities I guess! Lets hope they stay as possibilities and not probabilities. Doing alot of research re next step after coming down off prednisone. Looking at the side effects and long term use of 5ASA and 6MP= NOT LIKING THE SIDE EFFECTS OR STEMMING PROBLEMS - SCARY!! My GI wants to start me on imuran in about 2 weeks. I want to be able to take some other possibilities to the table.

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/28/2010 12:40 AM (GMT -7)   
OK. Stop scaring yourself by looking things up on the internet :-).

Remember, even Panadol can sound scary if you read enough info on potential side-effects.

In terms of taking other possibilities to the table, you might like to speak with your doctor about enteral nutrition. This generally has more effectiveness in youngsters than in adults, but you might still benefit from trying it. Basically, it's living on specially-formulated medical drinks for a specified period (usually about six weeks). In some people, this can have as great a benefit as being on high doses of steroids. If you're interested, you can find more information by clicking on the "nutrition" link in my signature (below).

As far as your gp goes, try asking for an extended appointment when you make your booking. That way, you ought to have the talking time you need :-).

All the best to you,

Ivy (in Aus too).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/28/2010 12:48 AM (GMT -7)   
Ivy,
Someone from Aus too! Fantastic - yeah, I know. Just in that overreactive initial phase. Can I ask, where are you up to with the crohns and what treatments. Living in rural Australia. Nearest metro areas approx 5 hours away (by car)
charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/28/2010 12:57 AM (GMT -7)   
Oh, boy. How on earth did you manage your colonoscopy, then? I hope you didn't have to prep at home and then drive all the way to your metro hospital?

I'm in regional Aus and am lucky to have a good gastro & basic hospital locally, but have to go to the capital city for senior specialist appts (like you, 4-5 hrs away by car; less by train).

We have a few Aussies here, and three or four other Aus moderators, so don't feel that you're alone or unusual :-).

Treatments - used up most of the standard options when I was in my teens; now use anti-TNF meds when they are available (things like Infliximab) and languish, sick, when they aren't.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/28/2010 1:14 AM (GMT -7)   
Ivy,

Regional, but not in the sticks. Regional city - one public hospital - where I work, another private hospital. GI specialist here who has an endoscopy centre with his practice and surgeons avaiable at both hospitals. My new GP (as of yesterday) said he knows of a good team at Concord Hospital, Sydney if the anti is upped and I need more specialist treatment in the future. Glad to here there are Aussies on the site - more assuance closer to home. Have only got the net on a couple of weeks ago (believe it or not). Real life was too busy - but it comes in handy.
Handled the prep for the colonoscopy OK - the dunny didnt though!
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/28/2010 1:22 AM (GMT -7)   
Aah! You should keep an eye out for SydneyJo, then, who lives exactly where her name suggests :-). She has Crohn's and moderates on the rheumatoid arthritis forum, and might be able to give you some good pointers on Crohn's resources closer to your home.

It sounds to me as if you have a really well-prepared and cluey gp who is already thinking about your future treatment options, and that's really encouraging.

I thought you were living right out in flying doctor territory, and was worried for you. Glad to hear that you have a hospital and gastro nearby: you need to be able to call on someone who lives close to your home (and radio communication doesn't count :-).

Have you joined Crohn's Colitis Australia yet? They offer good advice should you ever need it, and put out a very informative magazine several times a year - it's a good way to get informed and empowered.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/28/2010 1:32 AM (GMT -7)   
Ivy,
Will go to the rheumatiod arthritis forum and post out SydneyJo. Havent yet joined Colitis Australia but have looked at the site. You almost need a GPS to surf the net when youre new on it...and talk about information overload! Yeah, I think hes going to be a good GP.

No flying doctors here - feel sorry for those who need them at the drop of a hat with their various illness's now. Having something that's with you for life like this changes heightens your awareness about others, thats for sure.

Tell me, whats a co-moderator/ moderator? - remember...new to this!
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/28/2010 1:49 AM (GMT -7)   
LOL. Moderators look after individual forums and help ensure that the discussions here are kind and supportive. Sometimes people post advertisements here, and we make sure those are deleted before they can do much damage. And we do a lot of extra stuff too behind the scenes, and consult with each other if we're not sure that a member is getting the help s/he needs, to see if we can find some extra resources / support for that person.

Moderators are assigned to individual forums: I'm in Crohn's, for instance. I'm a co-moderator, though, because this is a busy forum and there are quite a few moderators here.

Rheumatoid arthritis, though, is a slower forum so can get by with only one moderator, so SydneyJo is it: she doesn't need another moderator to share the workload, so she is a moderator rather than a co-moderator.

Complicated, innit? :-)
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/28/2010 5:41 AM (GMT -7)   
Ivy,
Late to reply, sorry. Not good at this internet thingy. But have cottoned on to LOL. Laugh as loud as you like - good for the soul! Yes, it is complicated, but I get it....your sought of like a 2IC??
Good to get in with the bosses! I jumped over to the RA forum - gave a hoy hoy for Jo. She found me and so did you I see! Hope she can tell me if there are some good dr's or teams of specialists in Sydney. Just want to know all the options from those specializing in crohns before leaping into any and every possible drug on the market because a hell of a lot of them seem to be very toxic. If Jo knows of a specialist centre in Sydney or the like it may be something I can propose to my GI. My GP made reference to a team a Concord. Asked Jo if she knew anything of them (or the like). Thanks for all your help today Ivy - invaluable. Keep laughing as I stumble my way thru the net - god knows how I found the healingfourm - just fell into it. Thats a good stumble. Good for me!

Charlee.
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil

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