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Doc's visit always leaves me depressed
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Date Joined Mar 2009
Total Posts : 452
Posted 4/26/2010 10:35 AM (GMT -7)
It seems like evey time I go to the doctor now, I just get more depressed. As I have mentioned in the past, lately I don't feel like the Remicade has been helping me much anymore. A lot of the benefits that I had when I first started it has faded away. I went into our visit hopeing to get a pill cam done to see if the CD has spread elsewhere.
Well, I never got to talk to him about
the cam. When I told him how I was feeling and my thoughts about
Remicade, he told me that for some reason, and they don't know why, Remicade takes a lot longer to kick in and work 100% on people that have CD in the Colon. He also said that the reason felt great the first time afterwards was that because it was a new thing for my body and now my body is used to it so the body doesn't care about
it anymore. So now I can attribute everything to the Remicade not working at full strength. That brought me down a little. I wish he would have told me that before I started it.
Then I got even more bad news. I have been having a lot of pain and some blood when I wipe. My doc looked and told me I do have a hemmoroid. He then told me there was nothing he could do. Surgery wasn't an option and with the CD there really isn't any medicine to use. I told me to soak it 3 days a week which is not really an option for me as I will not bath in my tub. I did say if it got really bad with itching and burning I could use OTC medicine. I have in the past and it doesn't really help.
So yet again, I have left his office with no real help. I know he couldn't really help and he did give me info on why I feel the way I do. The CD is just kicking my butt again and I hate it.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily, Loperamide HCL - 2mg every other day
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Date Joined Apr 2009
Total Posts : 166
Posted 4/26/2010 10:44 AM (GMT -7)
I'm sorry that it was such a frustrating visit. I understand from the doctor's perspective that it is hard to provide answers when we all respond so differently to treatment. But wouldn't it be nice to have one say, "Yup, I can fix that for you. Here take this, do this....and it will go away with 100% certainty tomorrow and it will never bother you again"!!
I hope you feel better soon. If you haven't already tried them, baby wipes, or something like Tucks, will be less painful for wiping with your hemorrhoid. Take care.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.
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Date Joined Apr 2010
Total Posts : 232
Posted 4/26/2010 7:28 PM (GMT -7)
Not sure why you wont' sit in your tub, but sitz baths with Epsom salts can be a real help. Alternatively you can do Epsom salt water trade off. One bowl with ice cold water, one with hand hot water, 2 wash cloths, start with hot, 4 mins, then cold 4 mins, repeat 2x's ending with cold.
But here's what will help your roids. Vitamine E ointment. The only thing that worked for me, now as soon as feel any sign I start with it. In Canada, Webbers makes a good one, blue and white box, about
8 bucks, found in the first aid section of all major drugstores.
I just used folded up TP and wipe it on, pushing up into the anus a bit to get it in there.
I've suggested this to many people, all come back with good reports. Screw the OTC stuff, it's only good for saggy eyes, maaaybe.
Note: Make sure it's an ointment. If you can't find any where you are, get some vasaline and some multi spectrum vite E caps, 1 cap per tablespoon of vasaline should do, feel free to play with that recipe.
The way I see it, you find your tricks one symptom at a time. This works!
I will also chew vite e caps if I get mouth ulcers, they clear in 2 days...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.
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Date Joined Dec 2009
Total Posts : 681
Posted 4/26/2010 11:54 PM (GMT -7)
Great trick Toronto I've cut and pasted to my note pad for future reference.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.
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