Do these symptoms need to be told to the Doctor?

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Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 4:22 PM (GMT -7)   
Hi again
 
Joined the forum last night (my time)..from Australia.  Thanks for the support.  I am off to a new GP today and was wondering if I should mention that I am having intermittent lower
back pain and small raised cluster lumps on my hands? Does anyone know wether these are related to crohns, or am I over reacting?
 
Thanks
Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/26/2010 4:32 PM (GMT -7)   
I would mention it. I let my doctor know about any strange things that crop up. I used to not be that way, I would just write stuff off and now I don't. Maybe I have turned into a hypochondriac but it never hurts to ask! I do know that with my crohns I have scroilitis(spelling?) and I have seen more than a few crohnies that have it so I believe they can be tied together. For me it is a pain in my lower back that acts up every now and again. Doesn't ache or throb but I can not lift my leg very far before pain sets in. Are the cluster lumps like water blisters? I also used to break out in those and my GP told me it was a precursor to eczema. Chrohns can affect your eyes, skin and liver from what I have researched and been told. Off topic it is so cool that you live in australia! That would be my number one place to visit if I weren't so afraid to fly!!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 4:43 PM (GMT -7)   
tewcute,

Off topic - Australia is pretty great, but then again I havent been anywhere else to comapre. Would love to go to the US / UK one day, but not sure if that will ever happen!

On topic - Will ask the doctor at the risk of the "hypercondriac" label. But right now with everything sprialling down, I am just waiting for my left arm to drop off!!!
The blister like things on my hands are not so water like, just raised skin coloured clusters, mainly on the knuckles - will ask him today. I can now see about the back pain (have looked on the web), your probably right. Definitely worth a mention.

Thanks
Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 4/26/2010 4:57 PM (GMT -7)   
hmm..I am not sure about the blisters. Mine weren't like that. Hopefully that is nothing very serious. Could even be an allergic reaction to something you touched. Don't worry about the hypochondriac thing. Most doctors understand. I do not pester mine every day with phone calls. I just mention stuff in the office. They laugh at me now because I called my GP after taking flagyl because one stool was green. They told me nope not a side effect probably something I ate but they got quite the giggle out of it!! She still teases me when i see her! Keep us updated!
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 5:09 PM (GMT -7)   
tewcute

I will keep updating and checking in. Interesting turn of events this crohns disease. Reading what others are going thru helps alot, gives you the "heads up" on what might lye ahead.

Thanks alot
Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 4/26/2010 6:58 PM (GMT -7)   
It's a good rule of thumb that if you don't know if you should tell a doctor something, you probably should.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2689
   Posted 4/26/2010 7:06 PM (GMT -7)   
Yes, I would. I've found my GP to be a lot more useful in my crohn's symptoms (that are outside my intestines) then any GI was. Never hurts to ask, it's what they are there for!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 4/26/2010 9:09 PM (GMT -7)   
You should always share everything with your doctor and let her decide if it is important. I used to get bumps on my hands called something like granuloma anularie or some such thing. they finally disappeared some years back.
 


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/26/2010 9:20 PM (GMT -7)   
Thanks everyone! Just got back from seeing the new GP. He is pretty good. Took an interest in the bumps on the hands. Said that it is most likely linked to the crohns. Will definintely have a look on the web re granuloma anularie - thanks FunGuy. They dont hurt, just look hidius! Said lower back pain at this stage is probably stress related - Fancy!! Onward and forward ....

Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/26/2010 11:42 PM (GMT -7)   
How does the lower back pain present itself? Kidney pain? transverse(across)?
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 9:47 PM (GMT -7)   
Grandpato2,

The lower back pain is a sharp, grabbing like pain right in the spine. It doesnt favour the left or the right and remains central. Doesnt radiate anywhere. Presents itself when I am moving or bending down/twisting. Went to a new GP yesterday who said it is probably stress related?? It seems to be too specific to be stress. Just kind of grabs me at times throughout the day.

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, probiotics, fish oil


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/27/2010 10:03 PM (GMT -7)   
Sharp, sudden, when you bend/grab--Ah, sounds like you put your back out a bit or a pinched nerve, or both. I can't recommend Bowen therapy enough, especially for IBD'ers with weak connective tissue and likely adhesions.

http://www.boweninstitute.ca/bowen/index.html

Bowen comes out of Osteopathy, works on tendons only, very gentle and calming -- likely to help with your CD symptoms too, though the day after you may feel worse, you'll notice a difference in sensation, after, 2 days after you'll be much better. May take a treatment or two, or three, depending on how out it is. It got me walking after a year lying down and cured me of migraines -- hand to head.

I really cannot say enough good about this body work. I've tried many and this is the only one that actually helps me in the long term.

There's a practitioner search, hope they have some one in your area (* means more training and often Naturopaths trained in it, go for and ND if you can -- tax deductible at the least) Also, there are other sites, good to google Bowen and your area, country. Not all practitioners post info on all sites...

Watch how you bend to grab stuff until you get it fixed.

(once I put a tendon out in my ass, from pooping in the wrong position, try s'plaining that one..)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 10:12 PM (GMT -7)   
Mtoronto2,

I,ll take an intermittent back pain over a pulled arse tendon from a dunny visit. You win!! Thanks for the advise about bowen therapy - will look into it. Laughed alot at the end of your script! The picture will stay in my head for a while with that one!! I,ll watch out when I grab stuff if you take care on the dunny.

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/28/2010 11:37 PM (GMT -7)   
Sound to me like a plain old pulled muscle. Often with a pinched nerve the pain radiates or travels somewhere specific. If someones handy that you trust have he or she place a hand softly over the pained area as you (carefully) twist and bend up and down. They may see or feel muscle spasms traveling up and down the spine usually immediately beside the bones. That indicates a pulled muscle.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 4/29/2010 12:33 AM (GMT -7)   
You might find it beneficial to visit a remedial massage therapist. They can be quite good at sorting this sort of thing out.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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