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RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/27/2010 6:56 AM (GMT -7)   
Hey everone! So I did my Colonoscopy- clear. Upper GI and SBS- Clear. NOW WHAT? Does that mean that I dont have anything? I have an appt this Thursday to discuss whats next.. Have any of you ever been diagnosed with CD through a different exam? My diarrhea has subsided quite a bit since being on Asacol but I still have muscle/bone aches.. I also noticed that I have been getting anxiety.. I also still have mucus in my stool. What other exams are there that may determine CD after these other 3 have come out clear???
RoseAnnette
 
**Keep Moving Forward**
 
~Asacol 400mg 2 pills 3x's a day
~1 Vitamin B12 a day
~Awaiting biopsy and bloodwork results.


RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/27/2010 6:58 AM (GMT -7)   
**I have also noticed some small red pieces (That look like undigested tomato or something similar) in my stools.. Not in every one of them but in some.. What could this be? I dont eat tomato or red pepper.. Doesnt look like it could be blood but it's bright red...**

RoseAnnette
 
**Keep Moving Forward**
 
~Asacol 400mg 2 pills 3x's a day
~1 Vitamin B12 a day
~Awaiting biopsy and bloodwork results.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/27/2010 7:03 AM (GMT -7)   
You are passing the shells of the Asacol tablet, very normal, so don't worry about that. I would suggest you request a pill cam test if you haven't done one yet. These see in areas the scopes can't reach. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/27/2010 7:16 AM (GMT -7)   
How about an Upper Endoscopy? Is that different?
RoseAnnette
 
**Keep Moving Forward**
 
~Asacol 400mg 2 pills 3x's a day
~1 Vitamin B12 a day
~Awaiting biopsy and bloodwork results.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/27/2010 7:57 AM (GMT -7)   
That just looks at your stomach and the first part of your small intestine. You are better off doing the pill cam because it takes pictures all the way thru your system where NO scopes can reach. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

RoseAnnette
Regular Member


Date Joined Mar 2010
Total Posts : 69
   Posted 4/27/2010 8:01 AM (GMT -7)   
Thanks everyone!
RoseAnnette
 
**Keep Moving Forward**
 
~Asacol 400mg 2 pills 3x's a day
~1 Vitamin B12 a day
~Awaiting biopsy and bloodwork results.


DCS54B
New Member


Date Joined Apr 2010
Total Posts : 18
   Posted 4/29/2010 10:15 AM (GMT -7)   
Hi RoseAnnette.........I was diagnosed with CD without any positive biopsies.  I have had so many tests that  I couldn't possibly count them if my life depended on it.  During the course of trying to get diagnosed, I went through about 6-7 Doctors - I couldn't find one that was aggressive enough, took me seriously, etc..........  Many Doctors will not make the Crohn's DX without positive biopsies from a colonoscopy or endoscopy but there are a lot of other ways to diagnose.  I have had numerous other tests come back "normal" as well, including a pill cam. 
 
They finally diagnosed me based on:
* Symptoms
*Family History
*Reaction to Crohn's Meds
*Blood Serologies - My ASCA scores and inflammatory markers are always 2-3 times the normal amount
*Several abnormal CT Scans that showed thickening of the bowel wall and stranding - keep in mind that I have also had several "Normal"scans
* A few partial small bowel obstructions from the inflammation
* A few other questionable test results
* Additional extra-intestinal symptoms
 
 
Good luck!
 
 
DCS 54B
 
Crohn's DX in 2006 but sick for well over a year before that. Currently just started on Humira, Pred - 40mg (hoping to taper off of this soon), Phenergan 25gm prn, Percocet, Pentasa 500mg, Protonix 40mg and Lomotil, prn. 
 
I live my life to the fullest, enjoy every day and am excited for the day when we will be able to say good-bye to CD and UC.  I am becoming active in my local CCFA chapter and have found them to be a wonderful resource!


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 4/29/2010 3:03 PM (GMT -7)   
Okay and here I say: Did the pill thing, did all the other ways to look for Crohns years ago. Here's what I DO know about finding it. You have to be in active flare for it to be visible. That's what I do know about diagnosing it. And...doing all the tests and such won't necessarily show it. I know that I tend toward getting active disease near my resection scars as I am now...but I also know that doesn't mean much. For some reason a doctor decided to enlighten me to the fact that you can get ulcers and inflammation anywhere during a flare. I almost asked if he thought I was retarded but I did restrain myself. :-P
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin


Rita67
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/29/2010 3:45 PM (GMT -7)   
I hate to say this and it may have been the time that I was diagnosed (1988) but I went through every test there was and wasn't diagnosed. I was finally diagnosed when my small bowel obstructed and they had to resect. They did a biopsy and diagnosed Crohns. It may be different now.

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 4/29/2010 9:24 PM (GMT -7)   
Eating tomatoes and peppers may irritate your intestine. When my disease was active, I couldn't touch fiber.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes

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