Interesting Article in the Wall Street Journal about Crohns'

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aronk
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Date Joined Jun 2006
Total Posts : 229
   Posted 4/27/2010 7:13 AM (GMT -7)   
 
 
 
Please let me know if you can't read this and I will copy and paste the article.  Very interesting stuff.
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort.  Will have a "redo" resection on April 6.


jpnutritionfirst
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Date Joined Apr 2009
Total Posts : 383
   Posted 4/27/2010 7:17 AM (GMT -7)   
i doubt stem cells will pan out as a viable treatment option, esp since only 20% of Crohn's patients have the nod2 mutation (though they will probably get around to all of the so called mutations)

also getting a stem cell transplant is not some quick, painless procedure
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade since 6/09
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil
Remission


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 4/27/2010 7:47 AM (GMT -7)   
True, but 20% is better than 0%. Having IBD isn't quick and painless either.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


riesasmom
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Date Joined Dec 2009
Total Posts : 44
   Posted 4/27/2010 8:13 AM (GMT -7)   
The article was very interesting. I'm always glad to see research going on, but since they are only at the "mouse" stage, I don't predict anything concrete for decades. By the time they get around to "humans", who knows where we will all be. I'm sorry to sound so negative, but there are so many different types of  trials and research etc, but it takes forever! The only thing that seems to get accomplished, is the drug companies coming out with stronger and stronger drugs with dangerous side effects. I have to have hope though that there is a miracle waiting to be discovered.

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 4/27/2010 9:04 AM (GMT -7)   
irritable-bowel conditions like Crohn's disease...
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


aoccc
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Date Joined Feb 2005
Total Posts : 455
   Posted 4/27/2010 9:27 AM (GMT -7)   
Same old info recycled and repackaged for years WSJ did however get their biz plugs in there.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 4/27/2010 9:46 AM (GMT -7)   
Should you really trust a source that cannot even get the disease correct?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2010 9:49 AM (GMT -7)   
*lol* Yeah, that was my thought, too, Navy... //^_^\\'.... I hate it when things do that.... *It doesn't just happen with Crohn's disease, either... All sorts of diseases get mistaken for something else* One that particularly irritates me is how some people will confuse schizophrenia with multiple personality disorder... //-_-\\'... Ah, the uninformed masses...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 4/27/2010 11:29 AM (GMT -7)   
That's a ridiculously inexcusable mistake by the WSJ. I wrote an email to the author to let her know.

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/27/2010 11:52 AM (GMT -7)   
I've seen that mistake made by too many journalists and given the little press Inflammatory Bowel Disease gets as it is... sigh.

But hey, let's not poo poo the research, it's too easy to do. Poo poo, get it? heh heh heh
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 4/27/2010 1:41 PM (GMT -7)   
My step-father emailed that article to me earlier. That was my first response to him - hard to take it serious when they can't get the inflammatory part of the name right. Drives me nuts when people use the wrong term (irritable). It just continues to lead to people not being able to differentiate between IBS and IBD.

On the flip side, I'm still hopeful for stem cells. Just hope that they get something figured out while I'm around to appreciate it! I still swear by Prochymal, but that doesn't really mean much anymore. So sad when everything else failed and it was so remarkable. Maybe there's hope on the horizon.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 4/27/2010 3:27 PM (GMT -7)   
Also, I like the position they took re drugs. Drugs work and change in diet does not help. Tell that to positive response SCD and Makers folks.
David
Diagnosed March 3rd 2010, Kapidex 60mg, Pentasa 3000 mg, D 50,000 (weekly)


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 4/27/2010 3:27 PM (GMT -7)   
Also, I like the position they took re drugs. Drugs work and change in diet does not help. Tell that to positive response SCD and Makers folks.
David
Diagnosed March 3rd 2010, Kapidex 60mg, Pentasa 3000 mg, D 50,000 (weekly)


coolgirl09
Regular Member


Date Joined Sep 2009
Total Posts : 21
   Posted 4/27/2010 4:26 PM (GMT -7)   
The first thing I noticed was the "irritable bowel" thing, too! I couldn't believe that the WSJ would print something like that. I'm glad they're at least trying to write about it, though. My brother has type 1 diabetes, and when he was diagnosed the doctors told my dad a cure was coming in the next decade or so. That was 1985. It's hard to get the right balance of optimism and realism. I'm still trying to figure that one out...
Dx'ed with CD in 8/2009
currently on:
prenatal vitamin for my baby due 9/5/10!
Zoloft for my craziness
Remicade for CD (5mg/kg every 8 weeks)


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 6:54 PM (GMT -7)   
Well Ive only been recently diagnosed with CD and can only wish it was "irritable". I agree, the world, probably especially journalists need to recognize the difference between IBS and IBD. The difference in tx and mx is totally different. But good on you for posting any information which gives us hope. I know I will do the same, after all the more we know the better informed and prepared we can be - we may even be able to avoid, or at least minimalize complications.
Keep an eye out for who's doing what! Thanks

Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


vixen
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Date Joined Jan 2010
Total Posts : 794
   Posted 4/28/2010 10:21 AM (GMT -7)   
 
Thought you would like to know that they are doing something past the 'mouse' stage here in the uk. Not sure of the ins and outs of it at the moment though. A local support group has been set up near to where I live(still in it's infancy-only had two meetings) but one of the men there has been accepted for some sort of stem cell treatment at a large hospital in the next county.
 
At our next meeting I will try and find out some more 

beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 4/28/2010 12:11 PM (GMT -7)   
The article has been corrected! Woohoo! cool

(Well, partly. The 5th paragraph still says "irritable-bowel." I sent Shirley another email. She actually replied to my email yesterday, so I give her credit for attempting to fix the error.)

Post Edited (beave) : 4/28/2010 1:14:57 PM (GMT-6)

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