medication expenses

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sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 4/27/2010 9:47 AM (GMT -7)   
I've basically stopped taking my meds because I can't afford to keep taking them. It's bad for me I know, but things are already tight as it is. A couple of my meds are cheap enough for me to take but the Pentasa, forget it. I can't afford 500 a month for it. The new insurance I'm moving to (high risk pool) doesn't cover any of my CD for 6 months, including meds. I'm going to try and see if the makers of pentasa will get me on a program to lower the cost. my GI really wants me on remicade and I would too, but that will have to wait until after the 6 months.

I can keep taking my imuran (maybe) and omeprazole, but the others are out. I see my GI on Thursday and it will probably be the last time I see him in a while, will be seeing my PCP until the 6 month wait is over. I'm not sure I can keep taking the imuran though as I have to get my blood checked every 2 weeks. Anybody have suggestions?
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/27/2010 1:58 PM (GMT -7)   
You could ask if your doctor can give you samples. Usually they have samples in the office and then the reps bring in more periodically. If you explain the situation maybe they can hook you up until your 6 month wait is over.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 4/27/2010 3:00 PM (GMT -7)   
If I had to pay full price for Pentasa, I wouldn't take it either. It's of questionable benefit anyway. I truly don't think it's worth paying for.

Stay on the imuran and consider blood tests every month instead of every two weeks.

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 4/27/2010 3:07 PM (GMT -7)   
You may wish to consider getting your meds from Canada. You can reduce your cost to about $175 per month for Pentasa
David
Diagnosed March 3rd 2010, Kapidex 60mg, Pentasa 3000 mg, D 50,000 (weekly)


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 4/27/2010 3:46 PM (GMT -7)   
Thanks for the suggestions

For those who get their meds from canada, where do you go?
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 4/27/2010 3:51 PM (GMT -7)   
I am still getting samples from the doc, she is trying different meds. So I can not give you specifics, but the cheapest was a place in Winnipeg. My brother in law is a CPA in Winnipeg and I asked him and he confirmed they are ligit and safe.
On my med plan, it would cost me about the same to source in US, so I will go to Canada and hope my insurance company will not raise my rates when I have to buy.
David
Diagnosed March 3rd 2010, Kapidex 60mg, Pentasa 3000 mg, D 50,000 (weekly), Probiotics, Probiotic Yougurt, SCD


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 4/28/2010 9:03 AM (GMT -7)   
You should look into needymeds.com and cdfund.org

They might be able to assist with copay assistance or even free drug- its worth looking into!

Hope this helps:)
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


DCS54B
New Member


Date Joined Apr 2010
Total Posts : 18
   Posted 4/29/2010 9:55 AM (GMT -7)   
I have taken a lot of meds over the past 5 years or so and they have all pretty much failed me.  My Dr. just started me on Humira - he had actually given me the choice between Humira and Remicade and after talking to a lot of people who have taken both, I decided to start the Humira.  Anyway, they also have a program called the Humira Protection Plan.  This is a co-pay card and it applies to people with or without private insurance.  I have really good insurance but this card brings it down to $5 per shipment of medication.  I just paid $5 the other day for a 3 month supply (6 shots)..............this plan is good for the first year and my understanding is that at the end of the year, you can just renew it.  You might want to ask your Doctor about Humira and this program OR look further into the Remistart if you want to do Remicade.
 
If you want to call and ask about the Humira Protection Plan just so you know what your options are, the number is: 1-888-486-4723.
 
Good Luck!


DCS 54B
 
Crohn's DX in 2006 but sick for well over a year before that. Currently just started on Humira, Pred - 40mg (hoping to taper off of this soon), Phenergan 25gm prn, Percocet, Pentasa 500mg, Protonix 40mg and Lomotil, prn. 
 
I live my life to the fullest, enjoy every day and am excited for the day when we will be able to say good-bye to CD and UC.  I am becoming active in my local CCFA chapter and have found them to be a wonderful resource!


kia c.
Regular Member


Date Joined Jun 2004
Total Posts : 111
   Posted 4/29/2010 10:39 AM (GMT -7)   
My reply echos DCS54B's.  I've enrolled in the Humira Protection Plan ... and my months supply costs just $5.00.  Not sure how much of the Humira's cost it will cover when we roll over into 2011 and I start my deductible again.  But every little bit helps. 
 
I've also noticed a few of the pharmecitucles advertise; "If you need help affording XYZ medication, call XYZ Labrotories."  It wouldn't hurt to ask your doctors for any samples, and then place a call to the maker of the prescribed drug and ask if they offer any assistance. 
 
It's a tough choice to decide weather to take your expensive medication ... or buy groceries for the week. 
 
kia  
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