Just upset today...

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/27/2010 10:57 AM (GMT -7)   
All of this gets to be too much... I am not handling the prednisone very well.. I feel like crap..and its not working yet. The GI told me to give it more time but to get myself to the dr to treat the cold.. which turns out to be a sinus infection. The dr told me that they have to be careful treating sinus infections because the gut gets upset...so they gave me levaquin..and a probiotic... I get to the pharmacy and they take me aside and tell me that the prednisone and the levaquin could cause my tendons to rupture. So its not enough I am worried about the prednisone but now I have to be careful to watch my tendons.. and any pain I might feel.

Sorry.. for some reason today I keep crying.. I am just getting really down about this..it came out of nowhere... I lost my job because I ran out of fmla leave and they let me go.. I haven't felt good since Christmas..tired of the diarrhea, the pain...I can't seem to find another job ...I just want to feel better...I just guess I am feeling a little hopeless.. I know there are others that have it way worse than me and maybe i have no right to complain but I just went life back in control... and it doesn't feel like it will shakehead
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/27/2010 11:09 AM (GMT -7)   
Ah, June... *Hugs* You have every right to complain... What you're going through sucks... and you shouldn't have to deny your feelings... Try to be careful about crying too much, though... It can make you sick... and when you're having tummy trouble, it just causes even more problems (I know, I've been there)... Allow yourself to be sad but not to the point that you make yourself sick, okay?

I know it doesn't seem like it now, but your life will get back on track eventually... It just takes time... Try to do something today to make yourself feel good... A hot bath, maybe?

I hope things get better for you soon...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/27/2010 11:13 AM (GMT -7)   
Hi June,
I am so sorry, this is hard and Crohn's is cruel.

Part of the crying is the Pred. It turns all emotions up to 11. On the other hand a good cry is healing. It took me years to cry about getting Crohn's.

I'm not sure what I can say to help you. I've been at this 24 years and have just begun to flare after a 9 year relative remission.

Pred does not work for all, but you have to try it to see what will help you. You might want to try colloidal silver for your infection (small doses will not turn you blue). Consult with your best healthfood store.

In the mean time, as much as you'll hate hearing this, you are sick. Cutting ourselves some slack on that is hard, but it must be done.

It's good your married, you will have to rely on your husband. That IBD is in the family, I would like to think, will mean you'll get support from them.

Check out low dose Natlrexone therapy, it's another option, though just beginning to be tested in US for IBD.

What would you do if one of your kids were sick? You'd put them to bed and comfort them. There's no reason to not do this for yourself.

Sending you healing thoughts. Keep posting and let us know how you are,

HUGS and HUGS,
M.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


riesasmom
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 4/27/2010 12:31 PM (GMT -7)   
Hi June,
The prednisone does give you large mood swings. That might be part of the reason you have been crying so much. But, I think a good cry is warranted in your case.You have alot going on right now. My daughter was diagnosed in Sept of 2007 at age 11 and I still have a good cry now and then. I don't let her see me cry but sometimes I fear the worst and it builds up. Then I get over it because I have to get back to life and try to find something to help her. You will feel better soon as the prednisone kicks in I think. Hope things get better soon. Diana

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/27/2010 1:05 PM (GMT -7)   
well i started crying and it released the floodgates... so did all your kindness...I think I am getting scared over the side effects and the interactions.. and it seems like they try to help you which causes more problems and you get to the point that you don't know what to do...should i have fought harder over the choice of antibiotics.. the prednisone.. seems like with every pill i take I am risking something...

hugs back to all of you ... thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Ellie81
New Member


Date Joined Apr 2010
Total Posts : 7
   Posted 4/27/2010 1:09 PM (GMT -7)   
Hi June
 
I totally sympathise with you, hope you're okay tongue
 
I am on prednisone and sometimes I just start crying for no reason.  Worse thing you can do is read the side effects!  When they say if you have suidical thoughts ..... what the??!!!  I really don't want to know please!!! ha  I am married like you and we are very lucky to have such supportive husbands and famly.  Give the meds time to work, you will start to feel better, you've just got to try and pick yourself up as best you can, I know it's not easy though.
 
You'll get there and keep in touch on this forum, it really helps xxx
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/27/2010 1:43 PM (GMT -7)   
Ahhh Junerainbow, big hugs to you!! I have had this darn disease for nearly 35 years and I still have those pity party days and bawl my eyes out too. And I am not on Pred!! Stress has been my big issue lately, which in turn triggers the IBS I have with my Crohns too. Its just one of those things that we have hit us every so often. You are definetly not alone in your feelings. By the way don't read the side effects, they will just scare you. If you read the side effects of Tylenol they would scare you too. But these meds we have to take are a neccessity sometimes in order to get us feeling better. Hope you get feeling better soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/27/2010 2:05 PM (GMT -7)   
I typically do not read the side effects.. but the drs and the pharmacist both made me understand the dangers of levaquin and steroids..they both gave me more information than I ever had on a drug .. told me what to watch for...the pharmacist spent 10 minutes talking and I admit I was overwhelmed ...apparently this is a serious complication of levaquin and they needed me to know..add to that all of the talk here about prednisone.. just kinda felt like i was drowning in ick...

Nanners.. this disease sucks..you are right. thanks so much for the hugs..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/27/2010 5:25 PM (GMT -7)   
I am of the belief, the more you know the better, in the end, you can respond. Yes it overwhelms, and it will overwhelm again, poopies! But you have to know what to watch for.

Decide for yourself how long you willing to give the pred to work, as it is, in the end, your call. The antibiotic therapy remains an option, as do others.

I too am lucky that for this flare I have the support of an amazing husband. I did the first 20 years on my own, without family support. My friends are also amazing, but there's something to be said for the love of a good spouse.

The pred will increase your feelings of fear too, the one time I was on them I realized that much of the fear was not really mine, it was the drug and the hospital environment. I decided 10% of what I was feeling was truly mine, it allowed me to cope better, it really did.

The good news is all the positive emotions will go to 11 too, those I owned 100% of ! Not giving any credit to pred for the good stuff. Na ah!

Hugs and Hugs
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 4/27/2010 5:55 PM (GMT -7)   
junerainbow,

I can only hope that everyone who responds to you will stop those tears for a little while and give you some relief. I am on prednisone as well as dealing with the shock and emotions that go with being dx with crohns recently. A combination of both of these and even further, reading about what to expect in the future with CD (complications) has definitely seen (and still sees)me cry and feel so down on occassions that I wish I could wake up and be someone different. BUT...
to wake up and be someone different will only give you another set of problems. Everyone has something behind the closet doors, and if they dont, they will at some point. Take some comfort in the fact you know what you have, and the advantage of this is the support from others with the same. Can I suggest that maybe your Dr can change your sinus infection AB to something else with less side effects?
Stay on the forum with us until you stabilize a bit.
Charlee
37y/o female from Australia
Dx: chrones April 2010
Meds: Currently : prednisone, calcium


engineer555.9
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 4/27/2010 11:03 PM (GMT -7)   
I've taken loads and load of levaquin, never a single side effect. I usually get sides from clindomyacin (heart burn) and EES. I've seen commercials about levaquin sides and law suits, but I've never met anyone who hasn't tolerated it well. Also, I took levaquin and prednisone post-op when I had fungal sinus surgery removal. Yeah I blimped out, but that's normal for prednisone. You'll make it through, I'm sorry you've had such a tough time. Not trying to downplay your worries, because they are substantial, however just letting you know that I and many others have tolerated that regimen of meds fine :) Get to feeling better
Age: 23
Gender: Male
Diagnosed: March 2 2005
Weight before diagnosis: 174lbs
Weight at sickest: 135lbs
Current weight: 192lbs 10% body fat
Current medication: Remicade 5mg/kg e. 7wks; Veramyst 27.5 mcg, Singulair 10mg

I joined this forum in hopes that my success story will inspire others to be proactive about their condition and to never lose hope.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 4/28/2010 1:13 AM (GMT -7)   
sorry to hear you going through a tough time at the moment and I'm sure eventually things will work out for you. As others have said, preds do cause mood swings. I know when I was on the preds,especially high doses, I would cry for no reason,some one just had to say one word to me sometimes and that would be me for the day,in tears!! I think there are a lot of us crohnies,whether we take preds or not do get very emotional,I seem to remember not so long a go there was a post about being emotional and a lot of replies too!!
I hope you feel better soon and keep your chin up!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/28/2010 6:04 AM (GMT -7)   
thank you all so much.... I woke up feeling a little less overwhelmed...truthfully the dr and pharmacist scared the heck out of me.. I guess they were covering themselves because as you stated there are many lawsuits over levaquin.. I have to talk to the gi dr today because I am still getting severely sick each morning..and he thought the pred would cover that. but I am going to try and just take this one day at a time.. I allowed myself to cry yesterday but keep my head up today..

thank you all ....so much.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/28/2010 6:16 AM (GMT -7)   
You can do this! I am a big believe in comedy therapy as well. So find you funniest movies tv shows etc and actaully sit down and watch them
((((((((JUNE))))))))
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/28/2010 6:18 AM (GMT -7)   
deal!!!
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/28/2010 9:48 AM (GMT -7)   
I am a huge believer in not suffering in silence. The prednisone sucks and has side effects galore. Our doctors have the power to make those side effects more tolerable IF we ask them to (or demand it in some cases). So ask. For the most part it is a short term fix for a short term problem. Like taking a sleeping pill for the insomnia, an anti anxiety pill for the panic and mood swings. BUT the doctor can't help you if you don't ask. So figure out what side effects are bothering you the most, which sounds like the mood swings, and ask for something to help you get through it. A compassionate doctor should help you. After all it is the medication causing this problem and when the dose gets lower, you will be back to normal and won't need help with mood swings so you won't need medication.

I hope things start to turn around soon for you. sending you big (((((HUGS)))))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 4/28/2010 3:53 PM (GMT -7)   
Everyone here cares so very much. Take all the advice you are given. Pred. sucks,period the end. Be kind to yourself. A prayer has been sent for you.

Mary Lynn


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/28/2010 4:00 PM (GMT -7)   
thank you ... ended up crying again today...disappointed in myself...talked to the dr...and he wants me to hang on another week with the higher dose of prednisone..my body hurts so bad today... they told me to just rest....could be the levaquin, could be the sinus infection , could be the crohn's... its all getting to me..

thank you for the prayers... thank you very much.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/28/2010 4:21 PM (GMT -7)   
One thing you should know, should you decide you've had enough of the pred, DO NOT STOP SUDDENLY. You have to wean off it.

Just thought it important to say this, I'm sure you've been told.

Hugs
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/28/2010 4:26 PM (GMT -7)   
thank you for the reminder... hugs to you too.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/28/2010 8:58 PM (GMT -7)   
Prednisone sucks... *Hugs* Hang in there...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/29/2010 5:34 AM (GMT -7)   
June,
I was thinking of you today and I wonder if you really need to get this joint pain really checked out. With the tendency of the autoimmune cascade have you had your ANA tested? How about your RA factor? Keep searching.
Hugs,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/29/2010 6:01 AM (GMT -7)   
I have had them checked out...I was checked out for all sorts of autoimmune issues just before the gluten intolerance was discovered because MS is on my mom's side..but I will bring this up to my dr again.. the pred was helping the joints at first... but once I added levaquin the pain has worsened... will call dr today.

thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/29/2010 6:33 AM (GMT -7)   
The pred could be what is messing up your joints. I figured it out by taking Glucosamine Sulfate (Health food stores have better products than big chain pharmacies, I recommend Naka, with a line over the first a).

Day one, take 1 cap

Day 2, 1 cap 2x's a day

Day 3 2caps 2x's a day

By day 5 if your pain is reduced it's the prednosone, which can, as one of it's lovely side effects, go after your joints, or in my case, my feet... sigh...

If it is the pred, the glucosamine will prevent damage, just keep taking it for a good 6 months after you stop pred, which doesn't mean I'm saying stop the pred, just that you need time for this suppliment, which not only goes after inflammation, but also helps to protect and repair.

Best,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 4/29/2010 6:45 AM (GMT -7)   
do you ever feel like you are caught in a whirlwind of drugs... take this but it will cause this.. so take that to relieve that..and so on...

thanks guys for letting me vent...
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.

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